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Uniform Data Set version 4
UDSv4 - Template

United States
Reference ID
USDv4
Producer(s)
National Alzheimer’s Coordinating Center (NACC) and the NIA-funded ADRC network
Collections
Clinical Trial
Metadata
DDI/XML JSON
Created on
Jul 02, 2026
Last modified
Jul 07, 2026
Page views
11404
  • Study Description
  • Data Dictionary
  • Data files
  • UDSv4TemplateForXMLD_2026-04-14_0731.REDCap.xml
Variable Groups
  • Form Header
  • Custom Instrument
  • A1 Participant Demographics
  • A1a Social Determinants of Health
  • A2 Co-participant demographics
  • A3 Participant Family History
  • A4 Participant Medications
  • A4a ADRD Specific Treatments
  • A5-D2: Participant Health History/Clinician-assessed Medical Conditions
  • B1 Vital Signs and Anthropometrics
  • B3 Unified Parkinson's Disease Rating Scale (UPDRS) - Motor Exam
  • B4 CDR Dementia Staging Instrument
  • B5 Neuropsychiatric Inventory Questionnaire (NPIQ)
  • B6 Geriatric Depression Scale
  • B7 Functional Assessment Scale (FAS)
  • B8 Neurological Examination Findings
  • B9 Clinician Judgment Of Symptoms
  • C2/C2T Neuropsychological Battery Scores
  • D1a Clinical Syndrome
  • D1b Etiological Diagnosis and Biomarker Support

Variable Groups

Variable group: A2 Co-participant demographics
Variables 20
a2_coparticipant_demographi
cs_complete
Complete?
a2not
0d2. If 'A2 Co-Participant Demographics' not submitted, specify reason
frmdatea2
0a. A2 Co-Participant Demographics - Form date
incntfrq
IVP Q4a1./FVP Q5a1. What is the approximate frequency of all types of contact?
incntmdx
Other (SPECIFY):
incntmod
IVP Q4./FVP Q5. What is the primary mode of contact with the participant?
incnttim
IVP Q4a2./FVP Q5a2. What is the average amount of time spent in contact with the participant during each encounter? (Please include an average of all encounter types)
initialsa2
0b. A2 Co-Participant Demographics - Examiner's initials
inknown
IVP Q2./FVP Q3. How long has the co-participant known the participant? (If the co-participant has known the participant for less than 1 year, use 0.)
inlivwth
IVP Q3./FVP Q4. Does the co-participant live with the participant?
inmemten
IVP Q8./FVP Q9. Compared to 10 years ago, would you say that the participant's memory is much worse, a little worse, the same, a little better, or much better?
inmemtroub
IVP Q7./FVP Q8. About how often does the participant have trouble remembering things?
inmemwors
IVP Q6./FVP Q7. Do you feel like the participant's memory is becoming worse?
inrelto
IVP Q1./FVP Q2. What is the co-participant's relationship to the participant?
inrely
IVP Q5./FVP Q6. Is there a question about the co-participant's reliability?
langa2
0c. A2 Co-Participant Demographics - Language
modea2
0d. A2 Co-Participant Demographics - In-person, remote, or not completed?
newinf
1. Is this a new co-participant (i.e., one who was not a co-participant at any past UDS visit)?
rmmodea2
0d1a. What modality was used to collect this remote 'A2 Co-Participant Demographics' form?
rmreasa2
0d1. If 'A2 Co-Participant Demographics' form was completed remotely, specify reason
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