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USDV4
Uniform Data Set version 4
UDSv4 - Template
United States
Reference ID
USDv4
Producer(s)
National Alzheimer’s Coordinating Center (NACC) and the NIA-funded ADRC network
Collections
Clinical Trial
Metadata
DDI/XML
JSON
Created on
Jul 02, 2026
Last modified
Jul 07, 2026
Page views
11404
Study Description
Data Dictionary
Data files
UDSv4TemplateForXMLD_2026-04-14_0731.REDCap.xml
Variable Groups
Form Header
Custom Instrument
A1 Participant Demographics
A1a Social Determinants of Health
A2 Co-participant demographics
A3 Participant Family History
A4 Participant Medications
A4a ADRD Specific Treatments
A5-D2: Participant Health History/Clinician-assessed Medical Conditions
B1 Vital Signs and Anthropometrics
B3 Unified Parkinson's Disease Rating Scale (UPDRS) - Motor Exam
B4 CDR Dementia Staging Instrument
B5 Neuropsychiatric Inventory Questionnaire (NPIQ)
B6 Geriatric Depression Scale
B7 Functional Assessment Scale (FAS)
B8 Neurological Examination Findings
B9 Clinician Judgment Of Symptoms
C2/C2T Neuropsychological Battery Scores
D1a Clinical Syndrome
D1b Etiological Diagnosis and Biomarker Support
Variable Groups
Variable group: A2 Co-participant demographics
Variables
20
a2_coparticipant_demographi
cs_complete
Complete?
a2not
0d2. If 'A2 Co-Participant Demographics' not submitted, specify reason
frmdatea2
0a. A2 Co-Participant Demographics - Form date
incntfrq
IVP Q4a1./FVP Q5a1. What is the approximate frequency of all types of contact?
incntmdx
Other (SPECIFY):
incntmod
IVP Q4./FVP Q5. What is the primary mode of contact with the participant?
incnttim
IVP Q4a2./FVP Q5a2. What is the average amount of time spent in contact with the participant during each encounter? (Please include an average of all encounter types)
initialsa2
0b. A2 Co-Participant Demographics - Examiner's initials
inknown
IVP Q2./FVP Q3. How long has the co-participant known the participant? (If the co-participant has known the participant for less than 1 year, use 0.)
inlivwth
IVP Q3./FVP Q4. Does the co-participant live with the participant?
inmemten
IVP Q8./FVP Q9. Compared to 10 years ago, would you say that the participant's memory is much worse, a little worse, the same, a little better, or much better?
inmemtroub
IVP Q7./FVP Q8. About how often does the participant have trouble remembering things?
inmemwors
IVP Q6./FVP Q7. Do you feel like the participant's memory is becoming worse?
inrelto
IVP Q1./FVP Q2. What is the co-participant's relationship to the participant?
inrely
IVP Q5./FVP Q6. Is there a question about the co-participant's reliability?
langa2
0c. A2 Co-Participant Demographics - Language
modea2
0d. A2 Co-Participant Demographics - In-person, remote, or not completed?
newinf
1. Is this a new co-participant (i.e., one who was not a co-participant at any past UDS visit)?
rmmodea2
0d1a. What modality was used to collect this remote 'A2 Co-Participant Demographics' form?
rmreasa2
0d1. If 'A2 Co-Participant Demographics' form was completed remotely, specify reason
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