Uniform Data Set version 4
UDSv4 - Template

United States

Reference ID

USDv4

Producer(s)

National Alzheimer’s Coordinating Center (NACC) and the NIA-funded ADRC network

Collections

Clinical Trial

Metadata

DDI/XML JSON

Created on

Jul 02, 2026

Last modified

Jul 07, 2026

Page views

11415

Variable Groups

Variable group: A3 Participant Family History

Variables 234

a3_participant_family_histo
ry_complete

dadageo

1b6. Father -- Age of onset of primary dx

daddage

1b2. Father -- Age at death

dadetpr

1b3. Father -- Primary Dx

dadetsec

1b4. Father - Secondary dx

dadmeval

1b5. Father -- Method of evaluation

dadyob

1b1. Father -- Birth year

frmdatea3

0a. A3 Participant Family History - Form date

initialsa3

0b. A3 Participant Family History - Examiner's initials

kid10agd

3j2. Child 10 -- Age at death

kid10ago

3j6. Child 10 -- Age of onset of primary dx

kid10etpr

3j3. Child 10 -- Primary Dx

kid10etsec

3j4. Child 10 -- Secondary dx

kid10meval

3j5. Child 10 -- Method of evaluation

kid10yob

3j1. Child 10 -- Birth year (YYYY)

kid11agd

3k2. Child 11 -- Age at death

kid11ago

3k6. Child 11 -- Age of onset of primary dx

kid11etpr

3k3. Child 11 -- Primary Dx

kid11etsec

3k4. Child 11 -- Secondary dx

kid11meval

3k5. Child 11 -- Method of evaluation

kid11yob

3k1. Child 11 -- Birth year (YYYY)

kid12agd

3l2. Child 12 -- Age at death

kid12ago

3l6. Child 12 -- Age of onset of primary dx

kid12etpr

3l3. Child 12 -- Primary Dx

kid12etsec

3l4. Child 12 -- Secondary dx

kid12meval

3l5. Child 12 -- Method of evaluation

kid12yob

3l1. Child 12 -- Birth year (YYYY)

kid13agd

3m2. Child 13 -- Age at death

kid13ago

3m6. Child 13 -- Age of onset of primary dx

kid13etpr

3m3. Child 13 -- Primary Dx

kid13etsec

3m4. Child 13 -- Secondary dx

kid13meval

3m5. Child 13 -- Method of evaluation

kid13yob

3m1. Child 13 -- Birth year (YYYY)

kid14agd

3n2. Child 14 -- Age at death

kid14ago

3n6. Child 14 -- Age of onset of primary dx

kid14etpr

3n3. Child 14 -- Primary Dx

kid14etsec

3n4. Child 14 -- Secondary dx

kid14meval

3n5. Child 14 -- Method of evaluation

kid14yob

3n1. Child 14 -- Birth year (YYYY)

kid15agd

3o2. Child 15 -- Age at death

kid15ago

3o6. Child 15 -- Age of onset of primary dx

kid15etpr

3o3. Child 15 -- Primary Dx

kid15etsec

3o4. Child 15 -- Secondary dx

kid15meval

3o5. Child 15 -- Method of evaluation

kid15yob

3o1. Child 15 -- Birth year (YYYY)

kid1agd

3a2. Child 1 -- Age at death

kid1ago

3a6. Child 1 -- Age of onset of primary dx

kid1etpr

3a3. Child 1 -- Primary Dx

kid1etsec

3a4. Child 1 -- Secondary dx

kid1meval

3a5. Child 1 -- Method of evaluation

kid1yob

3a1. Child 1 -- Birth year (YYYY)

kid2agd

3b2. Child 2 -- Age at death

kid2ago

3b6. Child 2 -- Age of onset of primary dx

kid2etpr

3b3. Child 2 -- Primary Dx

kid2etsec

3b4. Child 2 -- Secondary dx

kid2meval

3b5. Child 2 -- Method of evaluation

kid2yob

3b1. Child 2 -- Birth year (YYYY)

kid3agd

3c2. Child 3 -- Age at death

kid3ago

3c6. Child3 -- Age of onset of primary dx

kid3etpr

3c3. Child 3 -- Primary Dx

kid3etsec

3c4. Child 3 -- Secondary dx

kid3meval

3c5. Child 3 -- Method of evaluation

kid3yob

3c1. Child 3 -- Birth year (YYYY)

kid4agd

3d2. Child 4 -- Age at death

kid4ago

3d6. Child 4 -- Age of onset of primary dx

kid4etpr

3d3. Child 4 -- Primary Dx

kid4etsec

3d4. Child 4 -- Secondary dx

kid4meval

3d5. Child 4 -- Method of evaluation

kid4yob

3d1. Child 4 -- Birth year (YYYY)

kid5agd

3e2. Child 5 -- Age at death

kid5ago

3e6. Child 5 -- Age of onset of primary dx

kid5etpr

3e3. Child 5 -- Primary Dx

kid5etsec

3e4. Child 5 -- Secondary dx

kid5meval

3e5. Child 5 -- Method of evaluation

kid5yob

3e1. Child 5 -- Birth year (YYYY)

kid6agd

3f2. Child 6 -- Age at death

kid6ago

3f6. Child 6 -- Age of onset of primary dx

kid6etpr

3f3. Child 6 -- Primary Dx

kid6etsec

3f4. Child 6 -- Secondary dx

kid6meval

3f5. Child 6 -- Method of evaluation

kid6yob

3f1. Child 6 -- Birth year (YYYY)

kid7agd

3g2. Child 7 -- Age at death

kid7ago

3g6. Child 7 -- Age of onset of primary dx

kid7etpr

3g3. Child 7 -- Primary Dx

kid7etsec

3g4. Child 7 -- Secondary dx

kid7meval

3g5. Child 7 -- Method of evaluation

kid7yob

3g1. Child 7 -- Birth year (YYYY)

kid8agd

3h2. Child 8 -- Age at death

kid8ago

3h6. Child 8 -- Age of onset of primary dx

kid8etpr

3h3. Child 8 -- Primary Dx

kid8etsec

3h4. Child 8 -- Secondary dx

kid8meval

3h5. Child 8 -- Method of evaluation

kid8yob

3h1. Child 8 -- Birth year (YYYY)

kid9agd

3i2. Child 9 -- Age at death

kid9ago

3i6. Child 9 -- Age of onset of primary dx

kid9etpr

3i3. Child 9 -- Primary Dx

kid9etsec

3i4. Child 9 -- Secondary dx

kid9meval

3i5. Child 9 -- Method of evaluation

kid9yob

3i1. Child 9 -- Birth year (YYYY)

kids

3. How many biological children does the participant have?

langa3

0c. A3 Participant Family History - Language

modea3

0d. A3 Participant Family History - In-person or remote?

momageo

1a6. Mother -- Age of onset of primary dx

momdage

1a2. Mother -- Age at death

mometpr

1a3. Mother -- Primary Dx

mometsec

1a4. Mother - Secondary dx

mommeval

1a5. Mother -- Method of evaluation

momyob

1a1. Mother -- birth year

nwinfkid

Since the last UDS visit, is new information available concerning the status of the participant's biological children?

nwinfpar

1. Since the last UDS visit, is new information available concerning the status of the participant's biological mother or father?

nwinfsib

2. Since the last UDS visit, is new information available concerning the status of the participant's full siblings?

rmmodea3

0d1a. What modality was used to collect this remote 'A3 Participant Family History' form?

rmreasa3

0d1. If 'A3 Participant Family History' form was completed remotely, specify reason

sib10agd

2j2. Sibling 10 -- Age at death

sib10ago

2j6. Sibling 10 -- Age of onset of primary dx

sib10etpr

2j3. Sibling 10 -- Primary Dx

sib10etsec

2j4. Sibling 10 -- Secondary dx

sib10meval

2j5. Sibling 10 -- Method of evaluation

sib10yob

2j1. Sibling 10 -- Birth year (YYYY)

sib11agd

2k2. Sibling 11 -- Age at death

sib11ago

2k6. Sibling 11 -- Age of onset of primary dx

sib11etpr

2k3. Sibling 11 -- Primary Dx

sib11etsec

2k4. Sibling 11 -- Secondary dx

sib11meval

2k5. Sibling 11 -- Method of evaluation

sib11yob

2k1. Sibling 11 -- Birth year (YYYY)

sib12agd

2l2. Sibling 12 -- Age at death

sib12ago

2l6. Sibling 12 -- Age of onset of primary dx

sib12etpr

2l3. Sibling 12 -- Primary Dx

sib12etsec

2l4. Sibling 12 -- Secondary dx

sib12meval

2l5. Sibling 12 -- Method of evaluation

sib12yob

2l1. Sibling 12 -- Birth year (YYYY)

sib13agd

2m2. Sibling 13 -- Age at death

sib13ago

2m6. Sibling 13 -- Age of onset of primary dx

sib13etpr

2m3. Sibling 13 -- Primary Dx

sib13etsec

2m4. Sibling 13 -- Secondary dx

sib13meval

2m5. Sibling 13 -- Method of evaluation

sib13yob

2m1. Sibling 13 -- Birth year (YYYY)

sib14agd

2n2. Sibling 14 -- Age at death

sib14ago

2n6. Sibling 14-- Age of onset of primary dx

sib14etpr

2n3. Sibling 14 -- Primary Dx

sib14etsec

2n4. Sibling 14 -- Secondary dx

sib14meval

2n5. Sibling 14-- Method of evaluation

sib14yob

2n1. Sibling 14 -- Birth year (YYYY)

sib15agd

2o2. Sibling 15 -- Age at death

sib15ago

2o6. Sibling 15 -- Age of onset of primary dx

sib15etpr

2o3. Sibling 15 -- Primary Dx

sib15etsec

2o4. Sibling 15 -- Secondary dx

sib15meval

2o5. Sibling 15 -- Method of evaluation

sib15yob

2o1. Sibling 15 -- Birth year (YYYY)

sib16agd

2p2. Sibling 16 -- Age at death

sib16ago

2p6. Sibling 16 -- Age of onset of primary dx

sib16etpr

2p3. Sibling 16 -- Primary Dx

sib16etsec

2p4. Sibling 16 -- Secondary dx

sib16meval

2p5. Sibling 16 -- Method of evaluation

sib16yob

2p1. Sibling 16 -- Birth year (YYYY)

sib17agd

2q2. Sibling 17 -- Age at death

sib17ago

2q6. Sibling 17-- Age of onset of primary dx

sib17etpr

2q3. Sibling 17 -- Primary Dx

sib17etsec

2q4. Sibling 17 -- Secondary dx

sib17meval

2q5. Sibling 17 -- Method of evaluation

sib17yob

2q1. Sibling 17 -- Birth year (YYYY)

sib18agd

2r2. Sibling 18 -- Age at death

sib18ago

2r6. Sibling 18 -- Age of onset of primary dx

sib18etpr

2r3. Sibling 18 -- Primary Dx

sib18etsec

2r4. Sibling 18 -- Secondary dx

sib18meval

2r5. Sibling 18-- Method of evaluation

sib18yob

2r1. Sibling 18 -- Birth year (YYYY)

sib19agd

2s2. Sibling 19 -- Age at death

sib19ago

2s6. Sibling 19 -- Age of onset of primary dx

sib19etpr

2s3. Sibling 19 -- Primary Dx

sib19etsec

2s4. Sibling 19-- Secondary dx

sib19meval

2s5. Sibling 19-- Method of evaluation

sib19yob

2s1. Sibling 19 -- Birth year (YYYY)

sib1agd

2a2. Sibling 1 -- Age at death

sib1ago

2a6. Sibling 1 -- Age of onset of primary dx

sib1etpr

2a3. Sibling 1 -- Primary Dx

sib1etsec

2a4. Sibling 1 - Secondary dx

sib1meval

2a5. Sibling 1 -- Method of evaluation

sib1yob

2a1. Sibling 1 -- Birth year (YYYY)

sib20agd

2t2. Sibling 20 -- Age at death

sib20ago

2t6. Sibling 20 -- Age of onset of primary dx

sib20etpr

2t3. Sibling 20 -- Primary Dx

sib20etsec

2t4. Sibling 20 -- Secondary dx

sib20meval

2t5. Sibling 20-- Method of evaluation

sib20yob

2t1. Sibling 20 -- Birth year (YYYY)

sib2agd

2b2. Sibling 2 -- Age at death

sib2ago

2b6. Sibling 2 -- Age of onset of primary dx

sib2etpr

2b3. Sibling 2 -- Primary Dx

sib2etsec

2b4. Sibling 2 - Secondary dx

sib2meval

2b5. Sibling 2 -- Method of evaluation

sib2yob

2b1. Sibling 2 -- Birth year (YYYY)

sib3agd

2c2. Sibling 3 -- Age at death

sib3ago

2c6. Sibling 3 -- Age of onset of primary dx

sib3etpr

2c3. Sibling 3 -- Primary Dx

sib3etsec

2c4. Sibling 3 - Secondary dx

sib3meval

2c5. Sibling 3 -- Method of evaluation

sib3yob

2c1. Sibling 3 -- Birth year (YYYY)

sib4agd

2d2. Sibling 4 -- Age at death

sib4ago

2d6. Sibling 4 -- Age of onset of primary dx

sib4etpr

2d3. Sibling 4 -- Primary Dx

sib4etsec

2d4. Sibling 4 - Secondary dx

sib4meval

2d5. Sibling 4 -- Method of evaluation

sib4yob

2d1. Sibling 4 -- Birth year (YYYY)

sib5agd

2e2. Sibling 5 -- Age at death

sib5ago

2e6. Sibling 5 -- Age of onset of primary dx

sib5etpr

2e3. Sibling 5 -- Primary Dx

sib5etsec

2e4. Sibling 5 - Secondary dx

sib5meval

2e5. Sibling 5 -- Method of evaluation

sib5yob

2e1. Sibling 5 -- Birth year (YYYY)

sib6agd

2f2. Sibling 6 -- Age at death

sib6ago

2f6. Sibling 6 -- Age of onset of primary dx

sib6etpr

2f3. Sibling 6 -- Primary Dx

sib6etsec

2f4. Sibling 6 - Secondary dx

sib6meval

2f5. Sibling 6-- Method of evaluation

sib6yob

2f1. Sibling 6 -- Birth year (YYYY)

sib7agd

2g2. Sibling 7 -- Age at death

sib7ago

2g6. Sibling 7 -- Age of onset of primary dx

sib7etpr

2g3. Sibling 7 -- Primary Dx

sib7etsec

2g4. Sibling 7 - Secondary dx

sib7meval

2g5. Sibling 7 -- Method of evaluation

sib7yob

2g1. Sibling 7 -- Birth year (YYYY)

sib8agd

2h2. Sibling 8 -- Age at death

sib8ago

2h6. Sibling 8 -- Age of onset of primary dx

sib8etpr

2h3. Sibling 8 -- Primary Dx

sib8etsec

2h4. Sibling 8 -- Secondary dx

sib8meval

2h5. Sibling 8 -- Method of evaluation

sib8yob

2h1. Sibling 8 -- Birth year (YYYY)

sib9agd

2i2. Sibling 9 -- Age at death

sib9ago

2i6. Sibling 9 -- Age of onset of primary dx

sib9etpr

2i3. Sibling 9 -- Primary Dx

sib9etsec

2i4. Sibling 9 -- Secondary dx

sib9meval

2i5. Sibling 9 -- Method of evaluation

sib9yob

2i1. Sibling 9 -- Birth year (YYYY)

sibs

2.1. How many full siblings does the participant have?

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