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USDV4
Uniform Data Set version 4
UDSv4 - Template
United States
Reference ID
USDv4
Producer(s)
National Alzheimer’s Coordinating Center (NACC) and the NIA-funded ADRC network
Collections
Clinical Trial
Metadata
DDI/XML
JSON
Created on
Jul 02, 2026
Last modified
Jul 07, 2026
Page views
11413
Study Description
Data Dictionary
Data files
UDSv4TemplateForXMLD_2026-04-14_0731.REDCap.xml
Variable Groups
Form Header
Custom Instrument
A1 Participant Demographics
A1a Social Determinants of Health
A2 Co-participant demographics
A3 Participant Family History
A4 Participant Medications
A4a ADRD Specific Treatments
A5-D2: Participant Health History/Clinician-assessed Medical Conditions
B1 Vital Signs and Anthropometrics
B3 Unified Parkinson's Disease Rating Scale (UPDRS) - Motor Exam
B4 CDR Dementia Staging Instrument
B5 Neuropsychiatric Inventory Questionnaire (NPIQ)
B6 Geriatric Depression Scale
B7 Functional Assessment Scale (FAS)
B8 Neurological Examination Findings
B9 Clinician Judgment Of Symptoms
C2/C2T Neuropsychological Battery Scores
D1a Clinical Syndrome
D1b Etiological Diagnosis and Biomarker Support
Variable Groups
Variable group: B5 Neuropsychiatric Inventory Questionnaire (NPIQ)
Variables
33
agit
4a. Agitation/aggression -- Is the patient resistive to help from others at times, or hard to handle?
agitsev
4b. Severity
anx
6a. Anxiety -- Does the patient become upset when separated from you? Does he/she have any other signs of nervousness such as shortness of breath, sighing, being unable to relax, or feeling excessively tense?
anxsev
6b. Severity
apa
8a. Apathy/indifference -- Does the patient seem less interested in his/her usual activities or in the activities and plans of others?
apasev
8b. Severity
app
13a. Appetite/eating -- Has the patient lost or gained weight, or had a change in the type of food he/she likes?
appsev
13b. Severity
b5not
0d2. If 'B5 Behavioral Assessment: NPI-Q' not submitted, specify reason
del
2a. Delusions -- Does the patient have false beliefs, such as thinking that others are stealing from him/her or planning to harm him/her in some way?
delsev
2b. Severity
depd
5a. Depression/dysphoria -- Does the patient seem sad or say that he/she is depressed?
depdsev
5b. Severity
disn
9a. Disinhibition -- Does the patient seem to act impulsively, for example, talking to strangers as if he/she knows them, or saying things that may hurt people's feelings?
disnsev
9b. Severity
elat
7a. Elation/euphoria -- Does the patient appear to feel too good or act excessively happy?
elatsev
7b. Severity
frmdateb5
0a. B5 Behavioral Assessment: NPI-Q - Form date
hall
3a. Hallucinations -- Does the patient have hallucinations such as false visions or voices? Does he or she seem to hear or see things that are not present?
hallsev
3b. Severity
initialsb5
0b. B5 Behavioral Assessment: NPI-Q - Examiner's initials
irr
10a. Irritability/lability -- Is the patient impatient and cranky? Does he/she have difficulty coping with delays or waiting for planned activities?
irrsev
10b. Severity
langb5
0c. B5 Behavioral Assessment: NPI-Q - Language
modeb5
0d. B5 Behavioral Assessment: NPI-Q - In-person, remote, or not completed?
mot
11a. Motor disturbance -- Does the patient engage in repetitive activities such as pacing around the house, handling buttons, wrapping string, or doing other things repeatedly?
motsev
11b. Severity
nite
12a. Nighttime behaviors -- Does the patient awaken you during the night, rise too early in the morning, or take excessive naps during the day?
nitesev
12b. Severity
npiqinf
1. NPI CO-PARTICIPANT:
npiqinfx
Other:
rmmodeb5
0d1a. What modality was used to collect this remote 'B5 Behavioral Assessment: NPI-Q' form?
rmreasb5
0d1. If 'B5 Behavioral Assessment: NPI-Q' form was completed remotely, specify reason
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