Uniform Data Set version 4
UDSv4 - Template

United States

Reference ID

USDv4

Producer(s)

National Alzheimer’s Coordinating Center (NACC) and the NIA-funded ADRC network

Collections

Clinical Trial

Metadata

DDI/XML JSON

Created on

Jul 02, 2026

Last modified

Jul 07, 2026

Page views

11406

Variable Groups

Variable group: A1 Participant Demographics

Variables 136

a1_participant_demographics
_complete

adinat

IVP Q22./FVP Q13. ADI national percentile:

adistate

IVP Q21./FVP Q12. ADI state-only decile:

admina1

0e. A1 Participant Demographics - Administration:

birthmo

1a. Participant's month of birth

birthsex

5. What sex were you assigned at birth, on your original birth certificate?

birthyr

1b. Participant's year of birth

chldhdctry

2. In which country or region did you spend most of your childhood?

educ

10a. How many years of education have you completed?

ethafamer

3c1. Race - Black or African American - African American

ethasnoth

3b7. Race - Asian - Other

ethasnothx

3b7a. Race-Asian-Other (Specify)

ethblkoth

3c7. Race - Black or African American - Other

ethblkothx

3c7a. Race - Black or African American - Other (Specify)

ethchamor

3f3. Race - Native Hawaiian or Pacific Islander - Chamorro

ethchinese

3b1. Race - Asian - Chinese

ethcuban

3d4. Race - Hispanic or Latino - Cuban

ethdomin

3d5. Race - Hispanic or Latino - Dominican

ethegypt

3e3. Race - Middle Eastern or North African - Egyptian

ethenglish

3g1. Race - White - English

ethethiop

3c5. Race - Back or African American - Ethiopian

ethfijian

3f5. Race - Native Hawaiian or Pacific Islander - Fijian

ethfilip

3b3. Race - Asian - Filipino

ethgerman

3g2. Race - White - German

ethguatem

3d6. Race - Hispanic or Latino - Guatemalan

ethhaitian

3c3. Race - Black or African American - Haitian

ethhawaii

3f1. Race - Native Hawaiian or Pacific Islander - Native Hawaiian

ethhisoth

3d7. Race - Hispanic or Latino - Other

ethhisothx

3d7a. Race - Hispanic or Latino - Other (Specify)

ethindia

3b2. Race - Asian - Asian Indian

ethiran

3e2. Race - Middle Eastern or North African - Iranian

ethiraqi

3e5. Race - Middle Eastern or North African - Iraqi

ethirish

3g3. Race - White - Irish

ethispanic

3d. Race - Hispanic or Latino

ethisrael

3e6. Race - Middle Eastern or North African - Israeli

ethitalian

3g4. Race - White - Italian

ethjamaica

3c2. Race - Black or African American - Jamaican

ethjapan

3b6. Race - Asian - Japanese

ethkorean

3b5. Race - Asian - Korean

ethlebanon

3e1. Race - Middle Eastern or North African - Lebanese

ethmarshal

3f6. Race - Native Hawaiian or Pacific Islander - Marshallese

ethmenaoth

3e7. Race - Middle Eastern or North African - Other

ethmenaotx

3e7a. Race-Middle Eastern or North African-Other (Specify)

ethmexican

3d1. Race - Hispanic or Latino - Mexican

ethnhpioth

3f7. Race - Native Hawaiian or Pacific Islander - Other

ethnhpiotx

3f7a. Race - Native Hawaiian or Pacific Islander - Other (Specify)

ethnigeria

3c4. Race - Black or African American - Nigerian

ethpolish

3g5. Race - White - Polish

ethpuerto

3d2. Race - Hispanic or Latino - Puerto Rican

ethsalva

3d3. Race - Hispanic or Latino - Salvadoran

ethsamoan

3f2. Race - Native Hawaiian or Pacific Islander - Samoan

ethscott

3g6. Race - White - Scottish

ethsomali

3c6. Race - Black or African American - Somali

ethsyria

3e4. Race - Middle Eastern or North African - Syrian

ethtongan

3f4. Race - Native Hawaiian or Pacific Islander - Tongan

ethvietnam

3b4. Race - Asian - Vietnamese

ethwhioth

3g7. Race - White - Other

ethwhiothx

3g7a. Race - White - Other (specify)

exrtime

IVP Q17./FVP Q8. How much time in total do you spend each week exercising or engaged in physically strenuous activities that cause increases in your breathing or heart rate for at least 10 minutes continuously? (Include activity at work, traveling to and

frmdatea1

0a. A1 Participant Demographics - Form date

gendkn

IVP Q4h./FVP Q1h. Gender-Don't know

genman

IVP Q4a./FVP Q1a. Gender-Man

gennoans

IVP Q4i./FVP Q1i. Gender-Prefer not to answer

gennonbi

IVP Q4e./FVP Q1e. Gender-Non-binary/genderqueer

genoth

IVP Q4g./FVP Q1g. Gender-I use a different term (specify)

genothx

IVP Q4g1./FVP Q1g1. Gender--I use a different term (Specify)

gentrman

IVP Q4c./FVP Q1c. Gender-Transgender man

gentrwoman

IVP Q4d./FVP Q1d. Gender-Transgender woman

gentwospir

IVP Q4f./FVP Q1f. Gender-Two-spirit

genwoman

IVP Q4b./FVP Q1b.Gender-Woman

handed

9. Are you left- or right-handed (for example, which hand would normally be used for writing or throwing a ball)?

initialsa1

0b. A1 Participant Demographics - Examiner's initials

intersex

6. Have you ever been diagnosed by a medical doctor or other health professional with an intersex condition or a "Difference of Sex Development (DSD)" or were you born with (or developed naturally in puberty) genitals, reproductive organs, and/ or chromos

langa1

0c. A1 Participant Demographics - Language

livsitua

IVP Q12./FVP Q4 What is your living situation?

loc_asian

3b. Race - Asian

loc_black

3c. Race - Black - Countries

loc_ethispanic

3d. Race - Hispanic or Latino

loc_gender

IVP Q4/FVP Q1. Which term(s) best describes your current gender identity?

loc_hispanic

3d. Race - Hispanic or Latino

loc_mena

3e. Race - Middle Eastern or North African - Countries

loc_nhpi

3f. Race - Native Hawaiian or Pacific Islander

loc_raceaian

3a. Race - American Indian or Alaska Native

loc_raceasian

3b. Race - Asian

loc_raceblack

3c. Race - Black or African American

loc_racemena

3e. Race - Middle Eastern or North African

loc_racenhpi

3f. Race - Native Hawaiian or Pacific Islander

loc_raceunkn

3h. Race - Don't know

loc_racewhite

3g. Race - White

loc_sexorient

IVP Q7./FVP Q2. Which term(s) best describes your sexual orientation?

loc_show_appendix1_1

Show Appendix 1, page 1?

loc_show_appendix1_2

Show Appendix 1, page 2?

loc_show_appendix2_1

Show addendum 2, page 1?

loc_show_appendix2_2

Show addendum 2, page 2?

loc_white

3g1-7. Race - White - Countries

lvleduc

10b. What is your highest level of education?

maristat

IVP Q11./FVP Q3. What is your current marital status?

medva

IVP Q16./FVP Q7. Have you ever obtained medical care or prescription drugs from a Veterans Affairs (VA) facility?

memten

IVP Q20./FVP Q11. Compared to 10 years ago, would you say that your memory is much worse, a little worse, the same, a little better, or much better?

memtroub

IVP Q19./FVP Q10. About how often do you have trouble remembering things?

memwors

IVP Q18./FVP Q9. Do you feel like your memory is becoming worse?

modea1

0d. A1 Participant Demographics - In-person or remote?

predomlan

8. What is your primary language? (Primary language is defined as the predominant language you have used throughout your life. Please take into consideration first language learned and used as well as the length of use.)

predomlanx

8a. Participant's primary language-Other (specify)

priocc

23. Participant's primary occupation throughout their working life (Select 'show addendum' to see codes)

raceaian

3a. Race - American Indian or Alaska Native

raceaianx

3a1. Race - American Indian or Alaska Native (Specify)

raceasian

3b. Race - Asian

raceblack

3c. Race - Black or African American

racemena

3e. Race - Middle Eastern or North African

racenhpi

3f. Race - Native Hawaiian or Pacific Islander

raceunkn

3h. Race - Don't know

racewhite

3g. Race - White

refctrregx

26b. Center registry - specify

refctrsocx

26a. Center social media - specify

refersc

25. Principal referral source

referscx

25a. Principle referral source-Other, specify

reflearned

26. If the referral source was a self-referral or a nonprofessional contact, how did the referral source learn of the ADRC?

refothmedx

26d. Other media - specify

refothregx

26e. Other registry - specify

refothwebx

26c. Other website - specify

refothx

26f. Other - specify

residenc

IVP Q13./FVP Q5. What is your primary type of residence?

rmmodea1

0d1a. What modality was used to collect this remote 'A1 Participant Demographics' form?

rmreasa1

0d1. If 'A1 Participant Demographics' form was completed remotely, specify reason

served

15. Have you ever served on active duty in the U.S. Armed Forces, military Reserves, or National Guard?

sexornbi

IVP Q7c./FVP Q2c. Sexual Orientation-Bisexual

sexorndnk

IVP Q7f./FVP Q2f. Sexual Orientation-Don't know

sexorngay

IVP Q7a./FVP Q2a. Sexual Orientation-Lesbian or Gay

sexornhet

IVP Q7b./FVP Q2b. Sexual Orientation-Straight/Heterosexual

sexornnoan

IVP Q7g./FVP Q2g. Sexual Orientation-Prefer not to answer

sexornoth

IVP Q7e./FVP Q2e. Sexual Orientation-I use a different term

sexornothx

IVP Q7e1./FVP Q2e1. Sexual Orientation--I use a different term (specify, e.g., asexual, queer, questioning)

sexorntwos

IVP Q7d./FVP Q2d. Sexual Orientation-Two-Spirit

sourcenw

24. ADRC enrollment type:

zip

IVP Q14./FVP Q6. What are the first three digits of the ZIP code of your primary residence? (For example, if your ZIP code is 12345, enter 123)

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