Uniform Data Set version 4
UDSv4 - Template

United States

Reference ID

USDv4

Producer(s)

National Alzheimer’s Coordinating Center (NACC) and the NIA-funded ADRC network

Collections

Clinical Trial

Metadata

DDI/XML JSON

Created on

Jul 02, 2026

Last modified

Jul 07, 2026

Page views

11401

Variable Groups

Variable group: A1a Social Determinants of Health

Variables 63

a1a_sdoh_complete

a1anot

0d2. If 'A1a Social Determinants of Health' form was not completed, specify reason

abandoned

19. I often feel abandoned

actafraid

34. In your day-to-day life how often do people act as if they are afraid of you?

admina1a

0e. A1a Social Determinants of Health - Administration:

billpay

8. How difficult is it for you to meet monthly payments on your bills?

childcomm

22. If you have children, how often do you have contact with your children (including child[ren]-in-law and stepchild[ren]) either in person, by phone, mail, or email (e.g., any online interaction)?

closefrnd

20. I miss having a really close friend

compcomm

14. Where would you place yourself on this ladder compared to others in your community (or neighborhood)? Please mark the number where you would place yourself.

delaymed

26. In the past year, how often did you delay seeking medical attention for a problem that was bothering you?

docadvice

29. In the past year, how often did you follow a doctor's advice or treatment plan when it was given?

eatless

10. At any time, did you ever eat less than you felt you should because there wasn't enough money to buy food?

eatlessyr

11. In the last 12 months, did you ever eat less than you felt you should because there wasn't enough money to buy food?

emptiness

16. I experience a general sense of emptiness

expage

expancest

37a1. My ancestry or national origins

expappear

37a8. Some other aspect of my physical appearance

expdisab

37a11. A physical disability

expeducinc

37a10. My education or income level

expgender

37a2. My gender

expheight

37a6. My height

expnoans

37a15. Prefer not to answer

expnotapp

37a14. Not applicable - I do not have these experiences in my day-to-day life

expother

exprace

exprelig

37a5. My religion

expsexorn

37a9. My sexual orientation

expskin

37a12. My shade of skin color

expstrs

38. When you have had day-to-day experiences like those in questions 31 to 36, would you say they have been very stressful, moderately stressful, or not stressful?

expweight

37a7. My weight

finsatis

7. How satisfied are you with your current personal financial condition?

finupset

9. If you have had financial problems that lasted twelve months or longer, how upsetting has it been to you?

friendcomm

23. How often do you have contact with close friends either in person, by phone, mail, or email (e.g., any online interaction)?

friends

18. I feel like I don't have enough friends

frmdatea1a

0a. A1a Social Determinants of Health - Form date

guardedu

15. What was your mother's (or primary person who raised you up until age 18) highest level of education completed at the time they were raising you?

healthacc

30. Overall, which of these describes your health insurance, access to healthcare services, and access to medications?

incomeyr

6. Which of these income groups represents your household income for the past year? Include income from all sources such as wages, salaries, social security or retirement benefits, help from relatives, rent from property, and so forth. This information wi

initialsa1a

0b. A1a Social Determinants of Health - Examiner's initials

langa1a

0c. A1a Social Determinants of Health - Language

lesscourt

31. In your day-to-day life how often are you treated with less courtesy or respect than other people?

lessmeds

12. At any time, have you ended up taking less medication than was prescribed for you because of the cost?

lessmedsyr

13. In the last 12 months, have you ended up taking less medication than was prescribed for you because of the cost?

loc_exp

37. When reflecting on the day-to-day experiences in questions 31 to 36, what do you think are the main reasons for these experiences?

missedfup

28. In the past year, how often did you miss a follow-up medical appointment that was scheduled?

misspeople

17. I miss having people around

modea1a

0d. A1a Social Determinants of Health - In-person, remote, or not completed?

notsmart

33. In your day-to-day life how often do people act as if they think you are not smart?

ownscar

1. Do you or someone in your household currently own a car?

parentcomm

21. If your parents are still alive, how often do you have contact with them (including mother, father, mother-in-law, and father-in-law) either in person, by phone, mail, or email (e.g., any online interaction)?

participate

24. How often do you participate in activities outside the home (e.g., religious activities, educational activities, volunteer work, paid work, or activities with groups or organizations)?

poormedtrt

36. How frequently do you receive poorer service or treatment from doctors or in hospitals compared to other people?

poorserv

32. In your day-to-day life how often do you receive poorer service than other people at restaurants or stores?

rmmodea1a

0d1a. What modality was used to collect this remote 'A1a Social Determinants of Health' form?

rmreasa1a

0d1. If 'A1a Social Determinants of Health' form was completed remotely, specify reason

safecomm

25b. Community (or neighborhood)

safehome

scriptprob

27. In the past year, how often did you experience challenges in filling a prescription?

threatened

35. In your day-to-day life how often are you threatened or harassed?

transprob

3. In the past 30 days, how often were you not able to leave the house when you wanted to because of a problem with transportation?

transworry

4. In the past 30 days, how often did you worry about whether or not you would be able to get somewhere because of a problem with transportation?

trspaccess

2. Do you have consistent access to transportation?

trspmed

5. In the past 30 days, how often has a lack of transportation kept you from medical appointments or from doing things needed for daily living?

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