Uniform Data Set version 4
UDSv4 - Template

United States

Reference ID

USDv4

Producer(s)

National Alzheimer’s Coordinating Center (NACC) and the NIA-funded ADRC network

Collections

Clinical Trial

Metadata

DDI/XML JSON

Created on

Jul 02, 2026

Last modified

Jul 07, 2026

Page views

13848

Data file: UDSv4TemplateForXMLD_2026-04-14_0731.REDCap.xml

Cases:	60
Variables:	1686

Variables

sib7meval

2g5. Sibling 7 -- Method of evaluation

sib7ago

2g6. Sibling 7 -- Age of onset of primary dx

sib8yob

2h1. Sibling 8 -- Birth year (YYYY)

sib8agd

2h2. Sibling 8 -- Age at death

sib8etpr

2h3. Sibling 8 -- Primary Dx

sib8etsec

2h4. Sibling 8 -- Secondary dx

sib8meval

2h5. Sibling 8 -- Method of evaluation

sib8ago

2h6. Sibling 8 -- Age of onset of primary dx

sib9yob

2i1. Sibling 9 -- Birth year (YYYY)

sib9agd

2i2. Sibling 9 -- Age at death

sib9etpr

2i3. Sibling 9 -- Primary Dx

sib9etsec

2i4. Sibling 9 -- Secondary dx

sib9meval

2i5. Sibling 9 -- Method of evaluation

sib9ago

2i6. Sibling 9 -- Age of onset of primary dx

sib10yob

2j1. Sibling 10 -- Birth year (YYYY)

sib10agd

2j2. Sibling 10 -- Age at death

sib10etpr

2j3. Sibling 10 -- Primary Dx

sib10etsec

2j4. Sibling 10 -- Secondary dx

sib10meval

2j5. Sibling 10 -- Method of evaluation

sib10ago

2j6. Sibling 10 -- Age of onset of primary dx

sib11yob

2k1. Sibling 11 -- Birth year (YYYY)

sib11agd

2k2. Sibling 11 -- Age at death

sib11etpr

2k3. Sibling 11 -- Primary Dx

sib11etsec

2k4. Sibling 11 -- Secondary dx

sib11meval

2k5. Sibling 11 -- Method of evaluation

sib11ago

2k6. Sibling 11 -- Age of onset of primary dx

sib12yob

2l1. Sibling 12 -- Birth year (YYYY)

sib12agd

2l2. Sibling 12 -- Age at death

sib12etpr

2l3. Sibling 12 -- Primary Dx

sib12etsec

2l4. Sibling 12 -- Secondary dx

sib12meval

2l5. Sibling 12 -- Method of evaluation

sib12ago

2l6. Sibling 12 -- Age of onset of primary dx

sib13yob

2m1. Sibling 13 -- Birth year (YYYY)

sib13agd

2m2. Sibling 13 -- Age at death

sib13etpr

2m3. Sibling 13 -- Primary Dx

sib13etsec

2m4. Sibling 13 -- Secondary dx

sib13meval

2m5. Sibling 13 -- Method of evaluation

sib13ago

2m6. Sibling 13 -- Age of onset of primary dx

sib14yob

2n1. Sibling 14 -- Birth year (YYYY)

sib14agd

2n2. Sibling 14 -- Age at death

sib14etpr

2n3. Sibling 14 -- Primary Dx

sib14etsec

2n4. Sibling 14 -- Secondary dx

sib14meval

2n5. Sibling 14-- Method of evaluation

sib14ago

2n6. Sibling 14-- Age of onset of primary dx

sib15yob

2o1. Sibling 15 -- Birth year (YYYY)

sib15agd

2o2. Sibling 15 -- Age at death

sib15etpr

2o3. Sibling 15 -- Primary Dx

sib15etsec

2o4. Sibling 15 -- Secondary dx

sib15meval

2o5. Sibling 15 -- Method of evaluation

sib15ago

2o6. Sibling 15 -- Age of onset of primary dx

sib16yob

2p1. Sibling 16 -- Birth year (YYYY)

sib16agd

2p2. Sibling 16 -- Age at death

sib16etpr

2p3. Sibling 16 -- Primary Dx

sib16etsec

2p4. Sibling 16 -- Secondary dx

sib16meval

2p5. Sibling 16 -- Method of evaluation

sib16ago

2p6. Sibling 16 -- Age of onset of primary dx

sib17yob

2q1. Sibling 17 -- Birth year (YYYY)

sib17agd

2q2. Sibling 17 -- Age at death

sib17etpr

2q3. Sibling 17 -- Primary Dx

sib17etsec

2q4. Sibling 17 -- Secondary dx

sib17meval

2q5. Sibling 17 -- Method of evaluation

sib17ago

2q6. Sibling 17-- Age of onset of primary dx

sib18yob

2r1. Sibling 18 -- Birth year (YYYY)

sib18agd

2r2. Sibling 18 -- Age at death

sib18etpr

2r3. Sibling 18 -- Primary Dx

sib18etsec

2r4. Sibling 18 -- Secondary dx

sib18meval

2r5. Sibling 18-- Method of evaluation

sib18ago

2r6. Sibling 18 -- Age of onset of primary dx

sib19yob

2s1. Sibling 19 -- Birth year (YYYY)

sib19agd

2s2. Sibling 19 -- Age at death

sib19etpr

2s3. Sibling 19 -- Primary Dx

sib19etsec

2s4. Sibling 19-- Secondary dx

sib19meval

2s5. Sibling 19-- Method of evaluation

sib19ago

2s6. Sibling 19 -- Age of onset of primary dx

sib20yob

2t1. Sibling 20 -- Birth year (YYYY)

sib20agd

2t2. Sibling 20 -- Age at death

sib20etpr

2t3. Sibling 20 -- Primary Dx

sib20etsec

2t4. Sibling 20 -- Secondary dx

sib20meval

2t5. Sibling 20-- Method of evaluation

sib20ago

2t6. Sibling 20 -- Age of onset of primary dx

nwinfkid

Since the last UDS visit, is new information available concerning the status of the participant's biological children?

kids

3. How many biological children does the participant have?

kid1yob

3a1. Child 1 -- Birth year (YYYY)

kid1agd

3a2. Child 1 -- Age at death

kid1etpr

3a3. Child 1 -- Primary Dx

kid1etsec

3a4. Child 1 -- Secondary dx

kid1meval

3a5. Child 1 -- Method of evaluation

kid1ago

3a6. Child 1 -- Age of onset of primary dx

kid2yob

3b1. Child 2 -- Birth year (YYYY)

kid2agd

3b2. Child 2 -- Age at death

kid2etpr

3b3. Child 2 -- Primary Dx

kid2etsec

3b4. Child 2 -- Secondary dx

kid2meval

3b5. Child 2 -- Method of evaluation

kid2ago

3b6. Child 2 -- Age of onset of primary dx

kid3yob

3c1. Child 3 -- Birth year (YYYY)

kid3agd

3c2. Child 3 -- Age at death

kid3etpr

3c3. Child 3 -- Primary Dx

kid3etsec

3c4. Child 3 -- Secondary dx

kid3meval

3c5. Child 3 -- Method of evaluation

kid3ago

3c6. Child3 -- Age of onset of primary dx

kid4yob

3d1. Child 4 -- Birth year (YYYY)

kid4agd

3d2. Child 4 -- Age at death

kid4etpr

3d3. Child 4 -- Primary Dx

kid4etsec

3d4. Child 4 -- Secondary dx

kid4meval

3d5. Child 4 -- Method of evaluation

kid4ago

3d6. Child 4 -- Age of onset of primary dx

kid5yob

3e1. Child 5 -- Birth year (YYYY)

kid5agd

3e2. Child 5 -- Age at death

kid5etpr

3e3. Child 5 -- Primary Dx

kid5etsec

3e4. Child 5 -- Secondary dx

kid5meval

3e5. Child 5 -- Method of evaluation

kid5ago

3e6. Child 5 -- Age of onset of primary dx

kid6yob

3f1. Child 6 -- Birth year (YYYY)

kid6agd

3f2. Child 6 -- Age at death

kid6etpr

3f3. Child 6 -- Primary Dx

kid6etsec

3f4. Child 6 -- Secondary dx

kid6meval

3f5. Child 6 -- Method of evaluation

kid6ago

3f6. Child 6 -- Age of onset of primary dx

kid7yob

3g1. Child 7 -- Birth year (YYYY)

kid7agd

3g2. Child 7 -- Age at death

kid7etpr

3g3. Child 7 -- Primary Dx

kid7etsec

3g4. Child 7 -- Secondary dx

kid7meval

3g5. Child 7 -- Method of evaluation

kid7ago

3g6. Child 7 -- Age of onset of primary dx

kid8yob

3h1. Child 8 -- Birth year (YYYY)

kid8agd

3h2. Child 8 -- Age at death

kid8etpr

3h3. Child 8 -- Primary Dx

kid8etsec

3h4. Child 8 -- Secondary dx

kid8meval

3h5. Child 8 -- Method of evaluation

kid8ago

3h6. Child 8 -- Age of onset of primary dx

kid9yob

3i1. Child 9 -- Birth year (YYYY)

kid9agd

3i2. Child 9 -- Age at death

kid9etpr

3i3. Child 9 -- Primary Dx

kid9etsec

3i4. Child 9 -- Secondary dx

kid9meval

3i5. Child 9 -- Method of evaluation

kid9ago

3i6. Child 9 -- Age of onset of primary dx

kid10yob

3j1. Child 10 -- Birth year (YYYY)

kid10agd

3j2. Child 10 -- Age at death

kid10etpr

3j3. Child 10 -- Primary Dx

kid10etsec

3j4. Child 10 -- Secondary dx

kid10meval

3j5. Child 10 -- Method of evaluation

kid10ago

3j6. Child 10 -- Age of onset of primary dx

kid11yob

3k1. Child 11 -- Birth year (YYYY)

kid11agd

3k2. Child 11 -- Age at death

kid11etpr

3k3. Child 11 -- Primary Dx

kid11etsec

3k4. Child 11 -- Secondary dx

kid11meval

3k5. Child 11 -- Method of evaluation

kid11ago

3k6. Child 11 -- Age of onset of primary dx

kid12yob

3l1. Child 12 -- Birth year (YYYY)

kid12agd

3l2. Child 12 -- Age at death

kid12etpr

3l3. Child 12 -- Primary Dx

kid12etsec

3l4. Child 12 -- Secondary dx

kid12meval

3l5. Child 12 -- Method of evaluation

kid12ago

3l6. Child 12 -- Age of onset of primary dx

kid13yob

3m1. Child 13 -- Birth year (YYYY)

kid13agd

3m2. Child 13 -- Age at death

kid13etpr

3m3. Child 13 -- Primary Dx

kid13etsec

3m4. Child 13 -- Secondary dx

kid13meval

3m5. Child 13 -- Method of evaluation

kid13ago

3m6. Child 13 -- Age of onset of primary dx

kid14yob

3n1. Child 14 -- Birth year (YYYY)

kid14agd

3n2. Child 14 -- Age at death

kid14etpr

3n3. Child 14 -- Primary Dx

kid14etsec

3n4. Child 14 -- Secondary dx

kid14meval

3n5. Child 14 -- Method of evaluation

kid14ago

3n6. Child 14 -- Age of onset of primary dx

kid15yob

3o1. Child 15 -- Birth year (YYYY)

kid15agd

3o2. Child 15 -- Age at death

kid15etpr

3o3. Child 15 -- Primary Dx

kid15etsec

3o4. Child 15 -- Secondary dx

kid15meval

3o5. Child 15 -- Method of evaluation

kid15ago

3o6. Child 15 -- Age of onset of primary dx

a3_participant_family_histo
ry_complete

frmdatea4

0a. A4 Participant Medications - Form date

initialsa4

0b. A4 Participant Medications - Examiner's initials

langa4

0c. A4 Participant Medications - Language

modea4

0d. A4 Participant Medications - In-person or remote?

rmreasa4

0d1. If 'A4 Participant Medications' form was completed remotely, specify reason

rmmodea4

0d1a. What modality was used to collect this remote 'A4 Participant Medications' form?

anymeds

Is the participant currently taking any medications?

rxnormid1

rxnormid2

rxnormid3

rxnormid4

rxnormid5

rxnormid6

rxnormid7

rxnormid8

rxnormid9

rxnormid10

rxnormid11

rxnormid12

rxnormid13

rxnormid14

rxnormid15

rxnormid16

rxnormid17

rxnormid18

rxnormid19

rxnormid20

rxnormid21

rxnormid22

rxnormid23

rxnormid24

rxnormid25

rxnormid26

rxnormid27

rxnormid28

rxnormid29

rxnormid30

rxnormid31

rxnormid32

rxnormid33

rxnormid34

rxnormid35

rxnormid36

rxnormid37

rxnormid38

rxnormid39

rxnormid40

a4_participant_medications_
complete

frmdatea4a

0a. A4a AD-Specific Drug Treatment - Form date

initialsa4a

0b. A4a AD-Specific Drug Treatment - Examiner's initials

langa4a

0c. A4a AD-Specific Drug Treatment - Language

modea4a

0d. A4a AD-Specific Drug Treatment - In-person or remote?

rmreasa4a

0d1. If 'A4a AD-Specific Drug Treatment' form was completed remotely, specify reason

rmmodea4a

0d1a. What modality was used to collect this remote 'A4a AD-Specific Drug Treatment' form?

trtbiomark

1. Has the participant ever been prescribed a treatment or been enrolled in a clinical trial of a treatment expected to modify ADRD biomarkers?

newtreat

1a. Since the last UDS visit, is new information available concerning any of the participant's prescribed treatments or clinical trial(s) of a treatment expected to modify ADRD biomarkers?

loc_trt_num

How many treatments/trials?

loc_tgt1

2a1a-2a1e Primary Drug Target

targetab1

2a1a. Primary Drug Target - Amyloid Beta (1)

targettau1

2a1b. Primary Drug Target - Tau (1)

targetinf1

2a1c. Primary Drug Target - Inflammation (1)

targetsyn1

2a1d. Primary Drug Target - Synaptic plasticity / neuroprotection (1)

targetoth1

2a1e. Primary Drug Target - Other target(s) (1)

targetotx1

2a1e1. Primary Drug Target - Other target(s), specify (1)

trttrial1

2a2. Specific treatment and/or trial (1)

nctnum1

2a2b. Specific treatment and/or trial - NCT identifier (1)

startmo1

2a3a. Start date (month) (1)

startyear1

2a3b. Start date (year) (1)

endmo1

2a4a. End date (month) (1)

endyear1

2a4b. End date (year) (1)

caretrial1

2a5. How was the treatment provided? (1)

trialgrp1

2a6. If clinical trial, in which group was the participant? (1)

loc_tgt2

2b1a-2b1e Primary Drug Target

targetab2

2b1a. Primary Drug Target - Amyloid Beta (2)

targettau2

2b1b. Primary Drug Target - Tau (2)

targetinf2

2b1c. Primary Drug Target - Inflammation (2)

targetsyn2

2b1d. Primary Drug Target - Synaptic plasticity/neuroprotection (2)

targetoth2

2b1e. Primary Drug Target - Other target(s) (2)

targetotx2

2b1e1. Primary Drug Target - Other target(s), specify (2)

trttrial2

2b2. Specific treatment and/or trial (2)

nctnum2

2b2b. Specific treatment and/or trial - NCT identifier (2)

startmo2

2b3a. Start date (month) (2)

startyear2

2b3b. Start date (year) (2)

endmo2

2b4a. End date (month) (2)

endyear2

2b4b. End date (year) (2)

caretrial2

2b5. How was the treatment provided? (2)

trialgrp2

2b6. If clinical trial, in which group was the participant? (2)

loc_tgt3

2c1a-2c1e Primary Drug Target (3)

targetab3

2c1a. Primary Drug Target - Amyloid Beta (3)

targettau3

2c1b. Primary Drug Target - Tau (3)

targetinf3

2c1c. Primary Drug Target - Inflammation (3)

targetsyn3

2c1d. Primary Drug Target - Synaptic plasticity/neuroprotection (3)

targetoth3

2c1e. Primary Drug Target - Other target(s) (3)

targetotx3

2c1e1. Primary Drug Target - Other target(s), specify (3)

trttrial3

2c2. Specific treatment and/or trial (3)

nctnum3

2c2b. Specific treatment and/or trial - NCT identifier (3)

startmo3

2c3a. Start date (month) (3)

startyear3

2c3b. Start date (year) (3)

endmo3

2c4a. End date (month) (3)

endyear3

2c4b. End date (year) (3)

caretrial3

2c5. How was the treatment provided? (3)

trialgrp3

2c6. If clinical trial, in which group was the participant? (3)

loc_tgt4

2d1a-2d1e Primary Drug Target

targetab4

2d1a. Primary Drug Target - Amyloid Beta (4)

targettau4

2d1b. Primary Drug Target - Tau (4)

targetinf4

2d1c. Primary Drug Target - Inflammation (4)

targetsyn4

2d1d. Primary Drug Target - Synaptic plasticity/neuroprotection (4)

targetoth4

2d1e. Primary Drug Target - Other target(s) (4)

targetotx4

2d1e1. Primary Drug Target - Other target(s), specify (4)

trttrial4

2d2. Specific treatment and/or trial (4)

nctnum4

2d2b. Specific treatment and/or trial - NCT identifier (4)

startmo4

2d3a. Start date (month) (4)

startyear4

2d3b. Start date (year) (4)

endmo4

2d4a. End date (month) (4)

endyear4

2d4b. End date (year) (4)

caretrial4

2d5. How was the treatment provided? (4)

trialgrp4

2d6. If clinical trial, in which group was the participant? (4)

loc_tgt5

2e1a-2e1e Primary Drug Target

targetab5

2e1a. Primary Drug Target - Amyloid Beta (5)

targettau5

2e1b. Primary Drug Target - Tau (5)

targetinf5

2e1c. Primary Drug Target - Inflammation (5)

targetsyn5

2e1d. Primary Drug Target - Synaptic plasticity/neuroprotection (5)

targetoth5

2e1e. Primary Drug Target - Other target(s) (5)

targetotx5

2e1e1. Primary Drug Target - Other target(s), specify (5)

trttrial5

2e2. Specific treatment and/or trial (5)

nctnum5

2e2b. Specific treatment and/or trial - NCT identifier (5)

startmo5

2e3a. Start date (month) (5)

Total: 1686

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