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Uniform Data Set version 4
UDSv4 - Template

United States
Reference ID
USDv4
Producer(s)
National Alzheimer’s Coordinating Center (NACC) and the NIA-funded ADRC network
Collections
Clinical Trial
Metadata
DDI/XML JSON
Created on
Jul 02, 2026
Last modified
Jul 07, 2026
Page views
14848
Variable Groups

Data file: UDSv4TemplateForXMLD_2026-04-14_0731.REDCap.xml

Cases: 60
Variables: 1686

Variables

mocacomp
1a. Was any part of the MoCA administered?
mocareas
1a1. Enter reason code
mocaloc
1b. MoCA was administered:
mocalan
(C2 Q1c/C2T Q1b) Language of MoCA administration:
mocalanx
(C2 Q1c1/C2T Q1b1) Specify language of MoCA administration:
mocavis
1d. Participant was unable to complete one or more sections due to visual impairment:
mocahear
(C2 Q1e/C2T Q1c) Participant was unable to complete one or more sections due to hearing impairment
mocatrai
1g. Visuospatial/executive -- Trails
mocacube
1h. Visuospatial/executive -- Cube
mocacloc
1i. Visuospatial/executive -- Clock contour
mocaclon
1j. Visuospatial/executive -- Clock numbers
mocacloh
1k. Visuospatial/executive -- Clock hands
mocanami
1l. Language -- Naming
mocaregi
1m. Memory -- Registration (two trials)
mocadigi
(C2 Q1n/C2T Q1e) Attention -- Digits
mocalett
(C2 Q1o/C2T Q1f) Attention -- Letter A
mocaser7
(C2 Q1p/C2T Q1g) Attention -- Serial 7s
mocarepe
(C2 Q1q/C2T Q1h) Language -- Repetition
mocaflue
(C2 Q1r/C2T Q1i) Language -- Fluency
mocaabst
(C2 Q1s/C2T Q1j) Abstraction
mocarecn
(C2 Q1t/C2T Q1k) Delayed recall -- No cue
mocarecc
(C2 Q1u/C2T Q1l) Delayed recall -- Category cue
mocarecr
(C2 Q1v/C2T Q1m) Delayed recall -- Recognition
mocaordt
(C2 Q1w/C2T Q1n) Orientation -- Date
mocaormo
(C2 Q1x/C2T Q1o) Orientation -- Month
mocaoryr
(C2 Q1y/C2T Q1p) Orientation -- Year
mocaordy
(C2 Q1z/C2T Q1q) Orientation -- Day
mocaorpl
(C2 Q1aa/C2T Q1r) Orientation -- Place
mocaorct
(C2 Q1bb/C2T Q1s) Orientation -- City
loc_sum_mocatots
Sum for mocatots
loc_sum_mocbtots
Sum for mocbtots
mocatots
1f. Total Raw Score -- Uncorrected
mocbtots
1d. Total Raw Score -- Uncorrected
npsycloc
2a. The tests following the MoCA were administered:
npsylan
Language of test administration: (C2 - Q2b; C2T - Q2a)
npsylanx
(C2 Q2b1/C2T Q2a1) Language of test administration -- Other: Specify
craftvrs
3a. Total story units recalled, verbatim scoring
crafturs
3b. Total story units recalled, paraphrase scoring
udsbentc
4a. Total score for copy of Benson figure
digforct
(C2 Q5a/C2T Q4a) Number of correct trials
digforsl
(C2 Q5b/C2T Q4b) Longest span forward
digbacct
(C2 Q6a/C2T Q5a) Number of correct trials
digbacls
(C2 Q6b/C2T Q5b) Longest span backward
loc_verbaltest_c2t
6. Which verbal learning test was administered?
loc_rey1rec_c2t
6a. Trial 1 -- Total recall
loc_rey1int_c2t
6b. Trial 1 -- Intrusions
loc_rey2rec_c2t
6c. Trial 2 -- Total recall
loc_rey2int_c2t
6d.Trial 2 -- Intrusions
loc_rey3rec_c2t
6e. Trial 3 -- Total recall
loc_rey3int_c2t
6f. Trial 3 -- Intrusions
loc_rey4rec_c2t
6g Trial 4 -- Total recall
loc_rey4int_c2t
6h. Trial 4 -- Intrusions
loc_rey5rec_c2t
6i. Trial 5 -- Total recall
loc_rey5int_c2t
6j. Trial 5 -- Intrusions
loc_reybrec_c2t
6k. List B Total Recall
loc_reybint_c2t
6l. List B -- Intrusions
loc_rey6rec_c2t
6m. Trial 6 -- Total recall
loc_rey6int_c2t
6n. Trial 6 -- Intrusions
loc_cerad1rec_c2t
7a. Trial 1 -- Total recall
loc_cerad1int_c2t
7b. Trial 1 -- Intrusions
loc_cerad2rec_c2t
7c. Trial 2 -- Total recall
loc_cerad2int_c2t
7d. Trial 2 -- Intrusions
loc_cerad3rec_c2t
7e. Trial 3 -- Total recall
loc_cerad3int_c2t
7f. Trial 3 -- Intrusions
loc_animals_c2
7a. Animals: Total number of animals named in 60 seconds
loc_veg_c2
7b Vegetables: Total number of vegetables named in 60 seconds
loc_animals_c2t
8a. Animals: Total number of animals named in 60 seconds
loc_veg_c2t
8b. Vegetables: Total number of vegetables named in 60 seconds
animals
(C2 Q7a/C2T Q8a) Animals: Total number of animals named in 60 seconds
veg
(C2 Q7b/C2T Q8b) Vegetables: Total number of vegetables named in 60 seconds
loc_ceraddti_c2t
9a. Delay time (minutes)
loc_ceradj6rec_c2t
9b. J6 Word List Recall: Total number of words correctly recalled
loc_ceradj6int_c2t
9c. J6 Word List Recall: Total number of intrusions
loc_ceradj7yes_c2t
9d. J7 Word List Recognition: Total YES correct
loc_ceradj7no_c2t
9e. J7 Word List Recognition: Total NO correct
otraila
10a. Part A: Total number of seconds to complete (if not finished by 100 seconds, enter 100) (If test not completed, enter reason code, 995-998. If test was skipped because optional, enter 888)
otrlarr
10a1. Part A - Number of commission errors
otrlali
10a2. Part A - Number of correct lines
otrailb
10b. Part B: Total number of seconds to complete (if not finished by 300 seconds, enter 300) (If test not completed, enter reason code, 995-998. If test was skipped because optional, enter 888)
otrlbrr
10b1. Part B - Number of commission errors
otrlbli
10b2. Number of correct lines
traila
8a. Part A: Total number of seconds to complete (if not finished by 150 seconds, enter 150)
trailarr
8a1. Number of commission errors
trailali
8a2. Number of correct lines
trailb
8b. Part B: Total number of seconds to complete (if not finished by 300 seconds, enter 300)
trailbrr
8b1. Number of commission errors
trailbli
8b2. Number of correct lines
udsbentd
9a. Total score for drawing of Benson figure following 10- to 15-minute delay
udsbenrs
9b. Recognized original stimulus from among four options?
craftdvr
(C2 Q10a/C2T Q11a) Total story units recalled, verbatim scoring
craftdre
(C2 Q10b/C2T Q11b) Total story units recalled, paraphrase scoring
craftdti
(C2 Q10c/C2T Q11c) Delay time (minutes)
craftcue
(C2 Q10d/C2T Q11d) Cue ("boy") needed
udsverfc
(C2 Q11a/C2T Q12a) Number of correct F-words generated in 1 minute
udsverfn
(C2 Q11b/C2T Q12b) Number of F-words repeated in 1 minute
udsvernf
(C2 Q11c/C2T Q12c) Number of non-F-words and rule violation errors in 1 minute
udsverlc
(C2 Q11d/C2T Q12d) Number of correct L-words generated in 1 minute
udsverlr
(C2 Q11e/C2T Q12e) Number of L-words repeated in one minute
udsverln
(C2 Q11f/C2T Q12f) Number of non-L-words and rule violation errors in 1 minute
udsvertn
(C2 Q11g/C2T Q12g) Total number of correct F-words and L-words
udsverte
(C2 Q11h/C2T Q12h) Total number of F-word and L-word repetition errors
udsverti
(C2 Q11i/C2T Q12i) Total number of non-F/L words and rule violation errors
loc_verbaltest_c2
12. Which verbal learning test was administered?
verbaltest
(C2 Q12/C2T Q6) Which verbal learning test was administered?
loc_rey1rec_c2
12a. Trial 1 -- Total recall
loc_rey1int_c2
12b. Trial 1 -- Intrusions
loc_rey2rec_c2
12c. Trial 2 -- Total recall
loc_rey2int_c2
12d.Trial 2 -- Intrusions
loc_rey3rec_c2
12e. Trial 3 -- Total recall
loc_rey3int_c2
12f. Trial 3 -- Intrusions
loc_rey4rec_c2
12g. Trial 4 -- Total recall
loc_rey4int_c2
12h. Trial 4 -- Intrusions
loc_rey5rec_c2
12i. Trial 5 -- Total recall
loc_rey5int_c2
12j. Trial 5 -- Intrusions
loc_reybrec_c2
12k. List B Total Recall
loc_reybint_c2
12l. List B -- Intrusions
loc_rey6rec_c2
12m. Trial 6 -- Total recall
loc_rey6int_c2
12n. Trial 6 -- Intrusions
rey1rec
(C2 Q12a/C2T Q6a) Trial 1 -- Total recall
rey1int
(C2 Q12b/C2T Q6b) Trial 1 -- Intrusions
rey2rec
(C2 Q12c/C2T Q6c) Trial 2 -- Total recall
rey2int
(C2 Q12d/C2T Q6d) Trial 2 -- Intrusions
rey3rec
(C2 Q12e/C2T Q6e) Trial 3 -- Total recall
rey3int
(C2 Q12f/C2T Q6f) Trial 3 -- Intrusions
rey4rec
(C2 Q12g/C2T Q6g) Trial 4 -- Total recall
rey4int
(C2 Q12h/C2T Q6h) Trial 4 -- Intrusions
rey5rec
(C2 Q12i/C2T Q6i) Trial 5 -- Total recall
rey5int
(C2 Q12j/C2T Q6j) Trial 5 -- Intrusions
reybrec
(C2 Q12k/C2T Q6k) List B Total Recall
reybint
(C2 Q12l/C2T Q6l) List B -- Intrusions
rey6rec
(C2 Q12m/C2T Q6m) Trial 6 -- Total recall
rey6int
(C2 Q12n/C2T Q6n) Trial 6 -- Intrusions
reydrec
13a. Total delayed recall
reydint
13b. Intrusions
reydti
13c. Delay time (minutes)
reymethod
13d. Method of recognition test administration
reytcor
(C2 Q13e/C2T Q13d) Recognition -- Total correct
reyfpos
(C2 Q13f/C2T Q13e) . Recognition -- Total false positive
vnttotw
14a. Total correct without a cue (if test was not completed, response code; 95-98, if test was skipped because optional (enter 88).
vntpcnc
14b. Total correct with phonemic cue (if test was not completed, response code; 95-98, if test was skipped because optional (enter 88).
loc_cerad1rec_c2
14a. Trial 1 -- Total recall
cerad1read
14b. Trial 1 -- Can't read
loc_cerad1int_c2
14c. Trial 1 -- Intrusions
loc_cerad2rec_c2
14d. Trial 2 -- Total recall
cerad2read
14e. Trial 2 -- Can't read
loc_cerad2int_c2
14f. Trial 2 -- Intrusions
loc_cerad3rec_c2
14g. Trial 3 -- Total recall
cerad3read
14h. Trial 3 -- Can't read
loc_cerad3int_c2
14i. Trial 3 -- Intrusions
cerad1rec
(C2 Q14a/C2T Q7a) Trial 1 -- Total recall
cerad1int
(C2 Q14c/C2T Q7b) Trial 1 -- Intrusions
cerad2rec
(C2 Q14d/C2T Q7c) Trial 2 -- Total recall
cerad2int
(C2 Q14f/C2T Q7d) 14f. Trial 2 -- Intrusions
cerad3rec
(C2 Q14g/C2T Q7e) Trial 3 -- Total recall
cerad3int
(C2 Q14i/C2T Q7f) Trial 3 -- Intrusions
loc_ceraddti_c2
15a. Delay time (minutes)
loc_ceradj6rec_c2
15b. J6 Word List Recall: Total number of words correctly recalled
loc_ceradj6int_c2
15c. J6 Word List Recall: Total number of intrusions
loc_ceradj7yes_c2
15d. J7 Word List Recognition: Total YES correct
loc_ceradj7no_c2
15e. J7 Word List Recognition: Total NO correct
ceraddti
(C2 Q15a/C2T Q9a) Delay time (minutes)
ceradj6rec
(C2 Q15b/C2T Q9b) J6 Word List Recall: Total number of words correctly recalled
ceradj6int
(C2 Q15c/C2T Q9c) J6 Word List Recall: Total number of intrusions
ceradj7yes
(C2 Q15d/C2T Q9d) J7 Word List Recognition: Total YES correct
ceradj7no
(C2 Q15e/C2T Q9e) J7 Word List Recognition: Total NO correct
minttots
16a. Total score
minttotw
16b. Total correct without semantic cue
mintscng
16c. Semantic cues: Number given
mintscnc
16d. Semantic cues: Number correct with cue
mintpcng
16e. Phonemic cues: Number given
mintpcnc
16f. Phonemic cues: Number correct with cue
cogstat
(C2 Q17a/C2T Q15a.) Per the clinician (e.g., neuropsychologist, behavioral neurologist, or other suitably qualified clinician), based on the UDS neuropsychological examination, the participant's cognitive status is deemed:
respval
(C2 Q18a/C2T Q16a) How valid do you think the participant's responses are?
loc_res
(C2 Q18b/C2T Q16b) What makes this participant's responses less valid? (Select all that apply)
resphear
(C2 Q18b1/C2T Q16b1) Validity of participant's responses - Hearing impairment
respdist
(C2 Q18b2/C2T Q16b2) Validity of participant's responses - Distractions
respintr
(C2 Q18b3/C2T Q16b3) Validity of participant's responses - Interruptions
respdisn
(C2 Q18b4/C2T Q16b4) Validity of participant's responses - Lack of effort or disinterest
respfatg
(C2 Q18b5/C2T Q16b5) Validity of participant's responses - Fatigue
respemot
(C2 Q1861/C2T Q16b6) Validity of participant's responses - Emotional issues
respasst
(C2 Q18b7/C2T Q16b7) Validity of participant's responses - Unapproved assistance
respoth
(C2 Q18b8/C2T Q16b8) Validity of participant's responses - Other
respothx
(C2 Q18b8a/C2T Q16b8a) Validity of participant's responses - Other, specify
c2c2t_neuropsychological_ba
ttery_scores_complete
Complete?
frmdated1a
0a. D1a Clinical Diagnosis - Form date
initialsd1a
0b. D1a Clinical Diagnosis - Examiner's Initials
langd1a
0c. D1a Clinical Diagnosis - Language
dxmethod
1. Diagnosis method-responses in this form are based on diagnosis by a:
normcog
2. Does the participant have unimpaired cognition & behavior
scd
2a. Does the participant report 1) significant concerns about changes in cognition AND 2) no neuropsychological evidence of decline AND 3) no functional decline?
scddxconf
2b. As a clinician, are you confident that the subjective cognitive decline is clinically meaningful?
demented
3. Does the participant meet the criteria for dementia?
loc_mcicrit
4. MCI core clinical criteria
mcicritcln
4a1. MCI criteria - Clinical concern about decline in cognition compared to participant's prior level of lifelong or usual cognitive function
mcicritimp
4a2. MCI criteria - Impairment in one or more cognitive domains, compared to participant's estimated prior level of lifelong or usual cognitive function, or supported by objective longitudinal neuropsychological evidence of decline
mcicritfun
4a3. MCI criteria - Largely preserved functional independence OR functional dependence that is not related to cognitive decline
loc_mcicrit_sum
D1a Sum of questions 4a1 - 4a3
mci
4b. Does the participant meet criteria for MCI (amnestic or non-amnestic)?
loc_impnomci
5. Cognitively impaired, not MCI reason
impnomcifu
5a1. Cognitively impaired, not MCI reason - Evidence of functional impairment (e.g., CDR SB>0 and/or FAS>0), but available cognitive testing is judged to be normal
impnomcicg
5a2. Cognitively impaired, not MCI reason - Cognitive testing is abnormal but no clinical concern or functional decline (e.g., CDR SB=0 and FAS=0)
impnomclcd
5a3. Cognitively impaired, not MCI reason - Longstanding cognitive difficulties, not representing a change from their usual function
impnomcio
5a4. Cognitively impaired, not MCI reason - Other
impnomciox
5a4a. Cognitively impaired, not MCI reason - Other (specify)
loc_impnomci_sum
D1a Sum of questions 5a1 - 5a4
impnomci
5b. Does the participant meet any criteria for cognitively impaired, not MCI/dementia?
loc_cdommem
6a. Dementia and MCI affected domains - Memory
cdommem
6a. Dementia and MCI affected domains - Memory
loc_cdomlang
6b. Dementia and MCI affected domains - Language
cdomlang
6b. Dementia and MCI affected domains - Language
loc_cdomattn
6c. Dementia and MCI affected domains - Attention
cdomattn
6c. Dementia and MCI affected domains - Attention
loc_cdomexec
6d. Dementia and MCI affected domains - Executive
cdomexec
6d. Dementia and MCI affected domains - Executive
loc_cdomvisu
6e. Dementia and MCI affected domains - Visuospatial
cdomvisu
6e. Dementia and MCI affected domains - Visuospatial
loc_cdombeh
6f. Dementia and MCI affected domains - Behavioral
cdombeh
6f. Dementia and MCI affected domains - Behavioral
loc_cdomaprax
6g. Dementia and MCI affected domains - Apraxia
cdomaprax
6g. Dementia and MCI affected domains - Apraxia
mbi
7. Does the participant meet criteria for MBI
bdommot
7a. MBI affected domains - Motivation
bdomafreg
7b. MBI affected domains - Affective regulation
bdomimp
7c. MBI affected domains - Impulse control
bdomsocial
7d. MBI affected domains - Social appropriateness
bdomthts
7e. MBI affected domains - Thought content/perception
predomsyn
8. Is there a predominant clinical syndrome?
loc_predomsynpres
8a-l. Select the predominant syndrome as present; all others will default to Absent in the NACC database.
amndem
8a. Amnestic predominant syndrome
dyexecsyn
8b. Dysexecutive predominant syndrome
pca
8c. Primary visual presentation (such as posterior cortical atrophy (PCA) syndrome)
ppasyn
8d. Primary progressive aphasia (PPA) syndrome
ppasynt
8d1. If present, select one:
ftdsyn
8e. Behavioral variant frontotemporal (bvFTD) syndrome
lbdsyn
8f. Lewy body syndrome
lbdsynt
8f1. If present, select one:
namndem
8g. Non-amnestic multidomain syndrome, not PCA, PPA, bvFTD, or DLB syndrome
pspsyn
8h. Primary supranuclear palsy (PSP) syndrome
pspsynt
8h1. If present, select one:
ctesyn
8i. Traumatic encephalopathy syndrome
cbssyn
8j. Corticobasal syndrome (CBS) syndrome
msasyn
8k. Multiple system atrophy (MSA) syndrome
msasynt
8k1. If present, select one:
othsyn
8l. Other
othsynx
8l1. Other (SPECIFY):
loc_syninfclin
9a. Clinical information (history, CDR)
syninfclin
9a. Clinical information (history, CDR)
loc_syninfctst
9b. Cognitive testing
syninfctst
9b. Cognitive testing
loc_syninfbiom
9c. Biomarkers (MRI, PET, CSF, plasma)
syninfbiom
9c. Biomarkers (MRI, PET, CSF, plasma)
loc_majdepdx
10. Major depressive disorder (DSM-5-TR criteria*)
majdepdx
10. Major depressive disorder (DSM-5-TR criteria*)
majdepdif
10a. Major depressive disorder (primary/contributing/non-contributing)
loc_majdepdif
majdepdif primary?
loc_othdepdx
11. Other specified depressive disorder (DSM-5-TR criteria*)
othdepdx
11. Other specified depressive disorder (DSM-5-TR criteria*)
othdepdif
11a. Other specified depressive disorder (primary/contributing/non-contributing)
loc_othdepdif
othdepdif primary?
loc_bipoldx
12. Bipolar disorder (DSM-5-TR criteria*)
bipoldx
12. Bipolar disorder (DSM-5-TR criteria*)
bipoldif
12a. Bipolar disorder (primary/contributing/non-contributing)
loc_bipoldif
bipoldif primary?
loc_schizop
13. Schizophrenia or other psychotic disorder (DSM-5-TR criteria*)
schizop
13. Schizophrenia or other psychotic disorder (DSM-5-TR criteria*)
schizoif
13a. Schizophrenia or other psychotic disorder (primary/contributing/non-contributing)
loc_schizoif
schizoif primary?
loc_anxiet
14. Anxiety disorder (DSM-5-TR criteria*)
anxiet
14. Anxiety disorder (DSM-5-TR criteria*)
anxietif
14a. Anxiety disorder (primary/contributing/non-contributing)
loc_anxietif
anxietif primary?
loc_d1a_condset1
Sum of D1a Conditions 10-14 marked as primary
loc_genanx
14b. Generalized anxiety disorder
genanx
14b. Generalized anxiety disorder
loc_panicdisdx
14c. Panic Disorder
panicdisdx
14c. Panic Disorder
loc_ocddx
14d. Obsessive-compulsive disorder (OCD)
ocddx
14d. Obsessive-compulsive disorder (OCD)
loc_othanxd
14e. Other anxiety disorder
othanxd
14e. Other anxiety disorder
othanxdx
14e1. Other anxiety disorder (specify)
loc_ptsddx
15. Post-traumatic stress disorder (PTSD)(DSM-5-TR criteria*)
ptsddx
15. Post-traumatic stress disorder (PTSD)(DSM-5-TR criteria*)
ptsddxif
15a. Post-traumatic stress disorder (PTSD) (primary/contributing/non-contributing)
loc_ptsddxif
ptsddxif primary?
loc_ndevdis
16. Developmental neuropsychiatric disorders (e.g., autism spectrum disorder (ASD), attention-deficit hyperactivity disorder (ADHD), dyslexia)
ndevdis
16. Developmental neuropsychiatric disorders (e.g., autism spectrum disorder (ASD), attention-deficit hyperactivity disorder (ADHD), dyslexia)
ndevdisif
16a. Developmental neuropsychiatric disorders (e.g., autism spectrum disorder (ASD), attention-deficit hyperactivity disorder (primary/contributing/non-contributing)
loc_ndevdisif
ndevdisif primary?
loc_delir
17. Delirium (DSM-5-TR criteria*)
delir
17. Delirium (DSM-5-TR criteria*)
delirif
17a. Delirium (primary/contributing/non-contributing)
loc_delirif
delirif primary?
loc_othpsy
18. Other psychiatric disorder (DSM-5-TR criteria*)
othpsy
18. Other psychiatric disorder (DSM-5-TR criteria*)
othpsyif
18a. Other psychiatric disorder (primary/contributing/non-contributing)
loc_othpsyif
othpsyif primary?
othpsyx
18b. Other psychiatric disorder (specify)
loc_d1a_condset2
Sum of D1a Conditions 15-18 marked as primary
loc_tbidx
19. Traumatic brain injury (Distinct from TES and CTE, which are documented as a Clinical Syndrome and Etiologic Diagnosis, respectively)
Total: 1686
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