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REBECCA-2
REBECCA-2

Reference ID
Project.REBECCA2
Collections
Clinical Trial
Metadata
DDI/XML JSON
Created on
Jul 07, 2026
Last modified
Jul 07, 2026
Page views
7650
Variable Groups

Data file: REBECCA2_2025-10-22_1440.REDCap.xml

Cases: 197
Variables: 978

Variables

record_id
record
lastmodified_general
profession_general
Profession:
test
Test
gross_income
TestWhat is your current gross income (before tax)?
gross_household_income
What is your current gross household income (before tax)?
dob_general
Date of birth
ethnicity_general
Ethnicity
country_general
Country of residence.
gender_general
Gender
highesteducationform_genera
l
Highest completed education.
familystructure_general
Family structure
nopregnancies_general
Number of pregnancies
numberchildren_general
Number of children.
employmentpercentquantiles_
general
Employment percentage of full time.
acquaintancebcdeath_general
Do you have any acquaintances who have died of breast cancer?
comments_general
Comments
suspiciondate_general
Decision date for well-founded suspicion of cancer
births_general
Number of births
diagnosisdate_general
Diagnosis date.
agediagnosed_general
Age at diagnosis
firstspecvisit_general
Date 1st visit in specialized care
screendetected_general
Detected in screening
malignacy_general
Preoperatively determined malignancy
diagnosticbasis_general
Diagnostic basis
menstrualstatus_general
Menstrual status at diagnosis
tnm_general
TNM classification is based on:
tclass_pre_general
T-Classification based on pre-surgery pathology
nclass_pre_general
N-Classification based on pre-surgery pathology
mclass_pre_general
M-Classification remote metastases based on pre-surgery pathology
tclass_post_general
T-Classification based on post-surgery pathology
nclass_post_general
N-Classification based on post-surgery pathology
mclass_post_general
M-Classification remote metastases based on post-surgery pathology
invasivity_general
Invasivity
invasivecancertype_general
Type of invasive cancer
surgerymetastasisreason_gen
eral
Reason for no surgery or remote metastasis at diagnosis.
chestlesions_general
Number of lesions in the chest
largestlesionsize_general
Size for largest lesion (mm).
cistype_general
Type of CIS
cisextent_general
Extent of cancer in situ
situcancerdegree_general
Histological degree (invasive) or nuclear type (cancer in situ)
erstatus_pre_general
ER status immunohistochemistry based on pre-surgery pathology
erpercent_pre_general
ER_Percentage based on pre-surgery pathology
ercomm_pre_general
ER_Comment based on pre-surgery pathology
pgrpercent_pre_general
PgR_Percentage based on pre-surgery pathology
pgrcomm_pre_general
PgR_Comment based on pre-surgery pathology
prgstatus_pre_general
PgR status immunohistochemistry based on pre-surgery pathology
her2ihc_pre_general
HER2_IHC based on pre-surgery pathology
her2ish_pre_general
HER2 ISH based on pre-surgery pathology
her2fish_pre_general
HER2_FISH based on pre-surgery pathology
ck56_pre_general
CK5_6 based on pre-surgery pathology
ki67status_pre_general
Ki67 status based on pre-surgery pathology
ki67_pre_general
ki67 percentage score based on pre-surgery pathology
erstatus_post_general
ER status immunohistochemistry based on post-surgery pathology
erpercent_post_general
ER_Percentage based on post-surgery pathology
ercomm_post_general
ER_Comment based on post-surgery pathology
prgstatus_post_general
PgR status immunohistochemistry based on post-surgery pathology
pgrpercent_post_general
PgR_Percentage based on post-surgery pathology
pgrcomm_post_general
PgR_Comment based on post-surgery pathology
her2ihc_post_general
HER2_IHC based on post-surgery pathology
her2ish_post_general
HER2 ISH based on post-surgery pathology
her2fish_post_general
HER2_FISH based on post-surgery pathology
ck56_post_general
CK5_6 based on post-surgery pathology
ki67status_post_general
Ki67 status based on post-surgery pathology
ki67perc_post_general
ki67 percentage score based on post-surgery pathology
removedsnls_general
Number of SLNs removed
slnmetastasis_general
Metastasis in SLN
slnmacrometastases_general
Number of SLNs with macrometastases (> 2mm)
slnmicrometastases_general
Number of SLNs with micrometastases
lymphnodes_general
Total number examined lymph nodes from all axillary engagement
lymphnodesnumber_general
Total number of lymph nodes with metastasis (> 0.2 mm) from all axillary procedures
firsttreatmentdate_general
Date of first treatment
clinicalstudiespart_general
Participation in clinical studies
clinicalstudydetails_genera
l
Details about clinical study
oncotreatment_general
Investigation of oncological treatment performed
plannedaction_general
Planned action.
whynooncotreatment_general
Reason for no oncological treatment
oncotreatmenttype_general
Specify oncological treatment
surgicaltreatment_general
Investigation of surgical treatment performed
followup_general
Further follow-up?
whynofollowup_general
Reasons for no further follow-up
operatedate_general
Operating date 1st: the procedure
operationtype_general
Type of operation (if any).
breastconcervation1_general
Breast_concervation_1
mastectomy1_general
Mastectomy_1
dissection1_general
Axille_Dissection_1
reresection1_general
Reresection_1
breastconcervation2_general
Breast_concervation_2
masectomy2_general
Mastectomy_2
dissection2_general
Axille_Dissection_2
reresection2_general
Reresection_2
breastsurgeryresult_general
End result of breast surgery.
oncoplasticsurgery_general
Oncoplastic surgery
oncopl_code_general
Corresponding code for the oncoplastic surgery:
axillaryengagement_general
Axillary engagement (SN and / or evacuation)
axillaryinterventionresult_
general
End result axillary intervention
surgerysecondsession_genera
l
Complementary breast surgery performed in a second session
axillarysurgsecondsessiom_g
eneral
Complementary axillary procedure performed in a second session
complsurgery_general
Number of complementary breast surgery and / or axill which are made due to tumor data.
oncologydate_general
Date of oncology therapeutic recommendation.
paddate_general
Date of 1st postoperative PAD information to patient.
postoncoplanned_general
Planned postoperative oncological treatment.
nopostonco_general
No postoperative oncological treatment.
chemotherapy_general
Chemotherapy
curestart_general
Start date first cure
chemo_end_general
Chemotherapy end date
ecthreatmenttype_general
Treatment
completedtreatment_general
Treatment completed according to plan
changereason_general
Reason for interruption / change
inpatientcare_general
Inpatient care due to treatment complications
radiation_general
Radiation therapy
firstdosedate_general
Start date, first dose
radiation_end_general
End date of radiation therapy
dosetarget_general
Target
boost_general
Total excluding boost
boostdoses_general
Boost doses
dose_general
Total dose
dose_fract_general
Dose fractionation (Gy/day)
endocrine_general
Endocrine treatment
curedate_general
Start date first cure
endocrinetreatmenttype_gene
ral
Treatment
changedtreatmenttype_genera
l
What type of hormonal treatment did the patient receive after change?
changedtreatmentperiod_gene
ral
Specify the period the treament was received (in months).
antibody_general
Antibody treatment
antibodystartdate_general
Start date of antibody treatment
antibody_enddate_general
End date of antibody treatment
antibodytreattype_general
Treatment
bisph_general
Bisphosphonates
zometa_general
Did the patient receive bisphosphate/zoledronic acid?
covid_general
Did you contract Covid-19?
vaccinated_general
Have you been vaccinated for Covid-19?
relapsestatus_general
Relapse status.
deathdate_general
Date_death_or_last_FU
othermeds_general
What other medicine does the patient take?
comalignancy_general
What co malignancy does the patient have
submissiondate_general
Date of submission
comorbidities_general
Are there any comorbidities?
hypertension_general
Have you or have you had Hypertension?
kidney_general
Have you or have you had Kidney disease?
diabetes_general
Have you or have you had Diabetes?
rheumatic_diseases_general
Have you or have you had Rheumatic Diseases?
glycocorticoid_general
Do you take glycocorticoid therapy?
muscleskeletalproblems_gene
ral
Have you been diagnosed with muscle and skeletal problems
osteopenia_general
Have you or have you had Osteopenia?
osteoporosis_general
Have you or have you had Osteoporosis?
familyosteoporosis_general
Has anyone in your family had Osteopenia or Osteoporosis?
fracture_general
Did you have a fracture during the last year?
boneproblem_general
Do you have any bone health problem?
describeboneproblem_general
If yes (to the previous question) descibe it.
thyroiddisease_general
Have you been diagnosed with thyroid disease
thyroiddiseasetype_general
What type of thyroid disease?
background_complete
Complete?
date_randomized
Date randomized
patient_randomized
Patient randomized to
randomization_complete
Complete?
lastmodified_event_form
age_event_form
Age (years)
submission_date_event_form
Date of submission
highestedu_event_form
Highest completed education.
gross_income_event_form
What is your current gross income (before tax)?
household_income_event_form
What is your current gross household income (before tax)?
acquaintancebcdeath_event_f
orm
Do you have any acquaintances who have died of breast cancer?
currentsituation_event_form
Which description best suits your current situation?
childrenunder18_event_form
Do you live with children under 18 years?
weeklymove_event_form
How much do you move weekly? Moving: Easy walking and cycling, work in the garden, snow removal
weeklyexercise_event_form
How much do you exercise weekly? Exercise: Regular activities with high intensity of at least ½ hours duration every time, ex. aerobics / running / cycling.
smokebackground_event_form
Do you smoke?
weeklycigarettes_event_form
Approximately how many cigarettes do you smoke in one week?
pastsmoker_event_form
Have you smoked before?
yearsquitsmoking_event_form
How many years have passed since you quit?
alcohol_event_form
Do you drink alcohol?
montlhywineconsumption_even
t_form
Αverage glasses of wine per month:
monthlybeer_event_form
Αverage pints of beer per month:
monthlyliquorconsumption_ev
ent_form
Average shots/glasses of liquor per month:
druguse_event_form
Do you use drugs?
whichdruguse_event_form
Which drugs?
vitsups_event_form
Do you use vitamin supplements?
whichvitsups_event_form
Which ones?
period_event_form
Are you premenopausal?
postmenopausal_event_form
Are you postmenopausal?
hormonesupsmenopause_event_
form
Are you using hormone supplements now in connection with menopause?
whichhormonalsups_event_for
m
Which ones?
otherillnesspastyear_event_
form
Have you been hospitalized and treated for another illness in the past year?
whichillnesspastyear_event_
form
Please, specify.
bcrehabprogram_event_form
Have you attended a rehabilitation program for breast cancer patients, such as "Nærlandsheimen"?
bcrehabname_event_form
Which one?
currentlyemployed_event_for
m
Are you currently employed? Do not pay attention to whether you are on sick leave or on leave.
workpositionpercentage_even
t_form
What percentage of full-time do you work at your job?
workbenefits_event_form
Do you receive any of these benefits?
workability_event_form
Let's assume that your ability to work at its best in your working life would receive 10 points. How many points do you give to your work ability TODAY? 0 means that you are not able to work at all. Put a cross next to the number you think best correspon
upperbackpain_event_form
Did you have pain in the upper back during last 30 days?
lowbackpain_event_form
Did you have low back pain during last 30 days?
hotflashes_event_form
Did you have hot flashes during last 30 days?
sleepproblems_event_form
Did you have sleep problems during last 30 days?
fatigue_event_form
Did you have fatigue during last 30 days?
anxiety_event_form
Did you have anxiety during last 30 days?
depression_event_form
Did you feel depressed during last 30 days?
forgetme_event_form
Do you sometimes forget to take your breast cancer medication?
notremembermed_event_form
How often do you have trouble remembering to take all your medicines?
event_general_info_form_com
plete
Complete?
reasons_end
Reasons of end of study.
other_reason_end
What is the reason?
date_end
Date that the study was ended.
end_of_study_complete
Complete?
lastmodified_bio
resting_pulse
Resting pulse (beats per minute)
hematological_date
Date that hematological examination was performed.
hematocrit
Hematocrit
hemoglobin_gl
Hemoglobin
cholesterol_mgdl
Cholesterol (Total)
hdlcholesterol_mgdl
HDL Cholesterol
ldlcholesterol_mgdl
LDL Cholesterol
triglycerides_mgdl
Triglycerides
calcium_mgdl
Calcium
erythrocytes
Erythrocytes
leukocytes
Leukocytes
thrombocytes
Thrombocytes
bpdatemeasured
Date measured
bpsystolic
Systolic
bpdiastolic
Diastolic
biological_samples_and_meas
urements_complete
Complete?
lastmodified_clinical
planned_visit_date
Planned visit date
weight
Weight (kg)
height
Height (cm)
bmi
Body Mass Index (BMI)
gynexamperformed
Was a gynecological exam performed?
gynexam
Gynaecological examination
gynexamfindings
Gynaecological examination findings.
vulvovaginal_trophism
Vulvovaginal trophism
endometrial_thickness
Endometrial thickness (mm).
breastexploration
Breast exploration.
breastexplfindings
Breast exploration findings.
clinical_exams_complete
Complete?
timestamp_med_inf
cmtrt
Medication name.
cmind
For what indication was the medication taken?
cmdose
Individual dose of medication.
cmdosu
Dose unit
cmdosuo
Please specify.
cmdosfrq
Frequency of medication.
cmdosfro
Please specify.
cmroute
Route of administration.
cmrouteo
Please specify.
cmstdat
Medication start date (if full date unknown, please estimate year/month).
cmongo
Is the medication ongoing?
cmendat
Medication end date.
medication_information_comp
lete
Complete?
lastmodified_currentassess
leukopenia
Low white blood cell count (Leukopenia)
otherblooddiseases
Other blood diseases
diarrhea
Diarrhea
constipation
Constipation
heartchestpain
Heart related chest pain (Angina pectoris or heart attack)
heavybreathing
Heavy breathing
peripheraledema
Swelling ("water") in the legs (peripheral edema)
cough
Cough
stroke
Stroke
pulmonaryembolism
Blood clot to the lungs (Pulmonary embolism)
sleepiness
Sleepiness
insomnia
Insomnia
impairedmemory
Impaired memory
tastedisorder
Taste disorders
cataracts
Cataracts
muncousmembranes
Dry mucous membranes of the eyes, mouth, abdomen
myoma
Nodules in the uterine wall (uterine fibroids / myomas)
bloodfat
Increased blood fats (cholesterol or triglycerides)
pancreatits
Inflammation of the pancreas (pancreatitis)
anemia
Anemia
acuteswelling
Acute swelling of the skin / mucous membranes of the lips / tongue / respiratory tract (Angioedema)/Fainting, low blood pressure, hospitalized, got adrenaline etc./Acute Anaphylactic reaction/Itchy skin
bonefractures
Treated for Bone Fractures
osteoporosisca
Osteoporosis
appetite
Increased appetite
thirst
Increased thirst
carboncholesterol
Increased carbon cholesterol level (Hypercholesterolemia)
currentassessment_complete
Complete?
lastmodified_ueq
ueq1
Was the questionnaire ___ ?
ueq2
Was the questionnaire ___ ?
ueq3
Was the questionnaire ___ ?
ueq4
Was the questionnaire ___ ?
ueq5
Was the questionnaire ___ ?
ueq6
Was the questionnaire ___ ?
ueq7
Was the questionnaire ___ ?
ueq8
Was the questionnaire ___ ?
ueq9
Was the questionnaire ___ ?
ueq10
Was the questionnaire ___ ?
ueq11
Was the questionnaire ___ ?
ueq12
Was the questionnaire ___ ?
ueq13
Was the questionnaire ___ ?
ueq14
Was the questionnaire ___ ?
ueq15
Was the questionnaire ___ ?
ueq16
Was the questionnaire ___ ?
ueq17
Was the questionnaire ___ ?
ueq18
Was the questionnaire ___ ?
ueq19
Was the questionnaire ___ ?
ueq20
Was the questionnaire ___ ?
ueq21
Was the questionnaire ___ ?
ueq22
Was the questionnaire ___ ?
ueq23
Was the questionnaire ___ ?
Total: 978
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