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REBECCA-2
REBECCA-2

Reference ID
Project.REBECCA2
Collections
Clinical Trial
Metadata
DDI/XML JSON
Created on
Jul 07, 2026
Last modified
Jul 07, 2026
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8599
Variable Groups

Data file: REBECCA2_2025-10-22_1440.REDCap.xml

Cases: 197
Variables: 978

Variables

ueq24
Was the questionnaire ___ ?
ueq25
Was the questionnaire ___ ?
ueq26
Was the questionnaire ___ ?
ueq_complete
Complete?
lastmodified_proms
urinarycomplains
Urinary complains
socialnetwork
Do you have any social network?
socialmediahelp
Do you feel that your engagement with your social media helps you?
proms_complete
Complete?
lastmodified_qol
sweating
I suddenly find that I start sweating without having done anything strenuous.
hot_flushes
I have hot flushes.
headaches
I notice that my head aches more and more as the day progresses.
heartbeat
I notice that my heart beats rapidly and out of control.
sleep
Although I sleep, I don't feel rested.
tingling
I notice a tingling sensation in my hands and/or feet.
urine_leakages
I am afraid to do anything strenuous because I have urine leakages.
housework
I have difficulty doing the housework because of my health.
dry_skin
I have noticed that my skin is drier.
nerves
I can't take any more because of my nerves.
interest
I've lost interest in everything, even things I used to enjoy.
tired
I feel tired from the minute I get up.
sex_satisfaction
I am satisfied with my sex life.
sex_importance
Sex is an important part of my life.
relationship
I consider myself happy in my relationship.
partner
My role as a wife or partner is important.
qol_cervantes_complete
Complete?
lastmodified_fss
motivation_fss
My motivation is lower when I am fatigued.
exercise_fss
Exercise brings on my fatigue.
fatigued_fss
I am easily fatigued.
functioning_interference_fs
s
Fatigue interferes with my physical functioning.
problems_fss
Fatigue causes frequent problems for me.
functioning_interference_2_
fss
My fatigue prevents sustained physical functioning.
functioning_interference_3_
fss
Fatigue interferes with carrying out certain duties and responsibilities.
fatigue_is_disabling_fss
Fatigue is among my most disabling symptoms.
fatiguework_fss
Fatigue interferes with my work, family, or social life.
fss_complete
Complete?
lastmodified_vas
fatigue_global
Global fatigue indication.
vasquestionnaire_complete
Complete?
lastmodified_hads
wound_up
I feel tense or 'wound up'
enjoy
I still enjoy the things I used to enjoy
frightened_feeling
I get a sort of frightened feeling as if something awful is about to happen
laugh
I can laugh and see the funny side of things
worries
Worrying thoughts go through my mind
mood
I feel cheerful
relax
I can sit at ease and feel relaxed
slow_feeling
I feel as if I am slowed down
restless_feeling
I get a sort of frightened feeling like "butterflies" in the stomach.
appearance
I have lost interest in my appearance.
restless_feeling_ii
I feel restless as I have to be on the move
interest_ii
I look forward with enjoyment to things
panic_feeling
I get sudden feelings of panic
enjoy_ii
I can enjoy good books or radio or TV program
hads_complete
Complete?
lastmodified_phq2
pleasure
Little interest or pleasure in doing things
depression
Feeling down, depressed, or hopeless
phq2_complete
Complete?
lastmodified_gad7
nervous
Feeling nervous, anxious, or on edge
worried
Not being able to stop or control worrying
veryworried
Worrying too much about different things
notrelaxed
Trouble relaxing
restless
Being so restless that it's hard to sit still
irritable
Becoming easily annoyed or irritable
afraid
Feeling afraid as if something awful might happen
askpatient
Ask the patient: how difficult have these problems made it to do work, take care of things at home, or get along with other people?
gad7_complete
Complete?
lastmodified_diet
dietchanges
Have you made changes to your diet after you were diagnosed?
ended
Ended with:
started
Started with:
eatdrinkless
Eat/drink less:
eatdrinkmore
Eat/drink more
milk
Milk
dairyproducts
Dairy products
egg
Egg
cod
Cod
allfish
All species of fish
shellfish
Shellfish
wheat
Wheat
rye
Rye
oats
Oats
gluten
Gluten
soya
Soya
peanuts
Peanuts
nuts
Nuts
cabbagevegetables
Cabbage vegetables
onion
Onion
carrot
Carrot
paprika
Paprika
apple
Apple
orange
Orange
tomato
Tomato
banana
Banana
pear
Pear
kiwi
Kiwi
strawberry
Strawberry
spice
Spice
whatspices
If so, what spices
yeast
Yeast
sugar
Sugar
chocolate
chocolate
coffee
Coffee
additives
Additives
whichadditives
If so, which Additives
fattyfood
fatty food
smokedfood
smoked food
spicyfood
spicy food
highlysaltedfood
Highly salted food
sourfood
Sour food
bread
bread
milkperday
milk how many glasses per day
whitecheeseperday
white cheese slices of bread per day
browncheeseperday
brown cheese / prim bread slices per day
yogurtperweek
cup of yogurt per week
icecreamperweek
servings of ice cream per week
cerealperweek
portions of cereal per week
alcohol
Do you drink alcohol?
dessertperweek
servings of dessert per week
alcoholfrequency
If "yes", how often do you drink alcohol now?
beerperweek
Number of glasses of beer (0.25l) per week
wineperweek
Number of glasses of wine (0.25l) per week
liquorperweek
Number of glasses of liquor (0.25l) per week
alcoholtypefrequencyperweek
Specify another type of alcohol and amount per week
dietquestionnaire_complete
Complete?
lastmodified_eort30
strenuousactivities
Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or a suitcase?
longwalk
Do you have any trouble taking a long walk?
shortwalk
Do you have any trouble taking a short walk outside of the house?
daybed
Do you need to stay in bed or a chair during the day?
everydayactivitieshelp
Do you need help with eating, dressing, washing yourself or using the toilet?
workactivitieslimitations
Were you limited in doing either your work or other daily activities?
hobbylimitations
Were you limited in pursuing your hobbies or other leisure time activities?
shortbreath
Were you short of breath?
pain
Have you had pain?
restneed
Did you need to rest?
troublesleeping
Have you had trouble sleeping?
weakfeeling
Have you felt weak?
lackapetite
Have you lacked appetite?
nauseafeeling
Have you felt nauseated?
vomit
Have you vomited?
constipatedpastweek
Have you been constipated?
diarrheapastweek
Have you had diarrhea?
tiredpastweek
Were you tired?
paininterference
Did pain interfere with your daily activities?
difficultyconcentrating
Have you had difficulty in concentrating on things, like reading a newspaper or watching television?
tensefeeling
Did you feel tense?
worry
Did you worry?
irritablefeeling
Did you feel irritable?
depressedfeeling
Did you feel depressed?
difficultyremembering
Have you had difficulty remembering things?
familylifeint
Has your physical condition or medical treatment interfered with your family life?
socialactivitiesint
Has your physical condition or medical treatment interfered with your social activities?
financialdifficultiescaused
Has your physical condition or medical treatment caused you financial difficulties?
overallhealthrate
How would you rate your overall health during the past week?
qualityofliferate
How would you rate your overall quality of life during the past week?
eortcqlqc30_complete
Complete?
lastmodified_mui
unanswered
I have many unanswered questions
understand
I understand everything that is explained to me
doctortalk
The doctors say things to me that can have different meanings
occupationalgroup
There are so many different occupational groups, it is unclear who is responsible for what
treatmentpurpose
The purpose of each treatment is clear to me
illnessinfo
Was the information about your illness satisfactory?
diseasetreatment
Were you informed about the treatment for your disease?
sideeffects
Were you informed about any side effects of the treatment for your disease?
antiestrogen
Were you informed about how important it is that you follow the doctor's prescribed treatment - that you take the antiestrogen tablet every day?
breastcancerinfo
They gave me comprehensive information about the disease breast cancer
patientcomments
Indicate any comments from the patient
thinktime
I had enough time to think through what they told me
questions
They asked me to ask questions
care
I was well taken care of
mui_complete
Complete?
lastmodified_bergen
timetofallasleep
how many days a week has it taken you more than 30 minutes to fall asleep after the light was switched off?
awakebetweenperiods
How many days a week have you been awake for more than 30 minutes between periods of sleep?
awakenearlier
How many days a week have you awakened more than 30 minutes earlier than you wished without managing to fall asleep again?
feelingnotrested
How many days a week have you felt that you have not had enough rest after waking up?
tiredaffectslife
How many days a week have you been so sleep/tired that it has affected you at school/work or in your private life?
sleepdissatisfaction
How many days a week have you been dissatisfied with your sleep?
bergen_insomnia_scale_compl
ete
Complete?
lastmodified_sfn
sweatingchanges
I experience changes in sweating (decreased or increased sweating).
suddendiarrhea
I have sudden diarrhea.
constipationsfn
I have constipation.
urinationproblems
I have urination problems (incontinence or hesitancy).
dryeyes
I have dry eyes
drymouthsfn
I have a dry mouth.
dizzinesssfn
I experience dizziness when standing up from a sitting or lying position.
palpitationssfn
I have palpitations.
flushedsfn
I become flushed.
legskinsensitive
The skin on my legs is extremely sensitive.
burningsensationfeet
I have a burning sensation on my feet.
legsheets
I cannot stand the sheets on my legs.
nightrestlesslegs
My legs are restless during the night.
sfnsiq_complete
Complete?
lastmodified_chalder
tired_last
If you have felt tired, approximately how long has it lasted?
time_tired
If you feel tired currently, approximately how much of the time do you feel tired?
tirednessproblems
Do you have problems with tiredness?
needmorerest
Do you need to rest more?
sleepyfeeling
Do you feel sleepy or drowsy?
problemstartingthings
Do you have problems starting things?
energylackchalderfatigue
Do you lack energy?
lessstrongmuscles
Do you have less strength in your muscles?
weakfeelingchalderfatigue
Do you feel weak?
difficultiesconcentrating
Do you have difficulties concentrating?
tongueslips
Do you make slips of the tongue when speaking?
difficultyfindrightword
Do you find it more difficult to find the right word?
memorycurrentsituation
How is your memory?
chalder_fatigue_scale_compl
ete
Complete?
timestamp_his
submissiondate
Date of submission
agehistory
Age (years)
heighthistory
Height (cm)
weighthistory
Weight (kg)
comorbidities
Are there any comorbidities?
hypertension_19bcb6
Have you or have you had Hypertension?
kidney_4be0b7
Have you or have you had Kidney disease?
diabetes_efb36a
Have you or have you had Diabetes?
rheumatic_diseases_e0a7db
Have you or have you had Rheumatic Diseases?
glycocorticoid
Do you take glycocorticoid therapy?
muscleskeletalproblems
Have you been diagnosed with muscle and skeletal problems
osteopenia_48896c
Have you or have you had Osteopenia?
osteoporosis_b47590
Have you or have you had Osteoporosis?
familyosteoporosis_307245
Has anyone in your family had Osteopenia or Osteoporosis?
fracture_745d66
Did you have a fracture during the last year?
boneproblem
Do you have any bone health problem?
describeboneproblem
If yes (to the previous question) descibe it.
thyroiddisease
Have you been diagnosed with thyroid disease
thyroiddiseasetype
What type of thyroid disease?
alcoholhistory
Do you drink alcohol?
alcoholquantity
Units per week
smoke
Do you smoke?
smokequantity
Number daily
druguse
Do you use drugs?
whichdruguse
Which drugs?
vitsups
Do you use vitamin supplements?
whichvitsups
Which ones?
period
Are you premenopausal?
postmenopausal
Are you postmenopausal?
nopregnancies
Number of pregnancies
numberbirths
Number of births
useiuds
Do you use IUDs?
otherhormonalprevention
Other hormonal prevention?
hormonesupsmenopause
Are you using hormone supplements now in connection with menopause?
whichhormonalsups
Which ones?
hormonesupsmenopausepast
Have you used hormone supplements in connection with menopause?
whichhormonalsupspast
Which ones?
hormonalsupsyears
How many years?
otherillnesspastyear
Have you been hospitalized and treated for another illness in the past year?
whichillnesspastyear
Please, specify.
upperbackpainlastmonth
Did you have pain in the upper back during last 30 days?
lowbackpainlastmonth
Did you have low back pain during last 30 days?
hotflasheslastmonth
Did you have hot flashes during last 30 days?
sleepproblemslastmonth
Did you have sleep problems during last 30 days?
fatiguelastmonth
Did you have fatigue during last 30 days?
anxietylastmonth
Did you have anxiety during last 30 days?
depressionlastmonth
Did you feel depressed during last 30 days?
covid19infected
Did you contract Covid-19?
covid19vaccinated
Have you been vaccinated?
anymedication
Do you take any medication?
medicationcategory
Specify the medication category.
medicationname
Specify the medication.
history_complete
Complete?
lastmodified_demographics
profession
Profession
email
E-mail
dob
Date of birth
ethnicity
Ethnicity
country
Country of residence.
gender
Gender
highesteducationform_genera
l_2
Highest completed education.
gross_income_2
What is your current gross income (before tax)?
gross_income_country_2
Can you provide us this information for your country?
gross_household_income_2
What is your current gross household income (before tax)?
gross_household_income_coun
try_2
Can you provide us this information for your country?
familystructure
Family structure
numberchildren
Number of children.
employmentpercentquantiles
Employment percentage of full time.
acquaintancebcdeath
Do you have any acquaintances who have died of breast cancer?
income
Income.
comments
Comments
demographics_complete
Complete?
lastmodified_tumor
suspiciondate
Decision date for well-founded suspicion of cancer
diagnosisdate
Diagnosis date.
agediagnosed
Age at diagnosis
firstspecvisit
Date 1st visit in specialized care
screendetected
Detected in screening
malignacy
Preoperatively determined malignancy
diagnosticbasis
Diagnostic basis
menstrualstatus
Menstrual status at diagnosis
tclass
T-Classification
nclass
N-Classification
mclass
M-Classification Remote metastases
Total: 978
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