REBECCA-2 Project.REBECCA2 Project.REBECCA2 REBECCA-2 REBECCA-2 Lorem ipsum REBECCA2_2025-10-22_1440.REDCap.xml 197 978 Background Randomization Event General Info Form End of Study Biological Samples And Measurements Clinical Exams Medication Information Currentassessment Ueq PROMs Qol Cervantes FSS Vasquestionnaire Hads Phq2 Gad7 Dietquestionnaire Eortcqlqc30 Mui Bergen Insomnia Scale Sfnsiq Chalder Fatigue Scale History Demographics TumorInformation Treatment Compliance Eortcqlqbr23 Factb K10 Sf36 Fact Gog Ntx Utah Early Neuropathy Scale Rebecca Intervention Form Early Warning System Wp6p Evaluation record 177 184 Profession: 180 Test 194 TestWhat is your current gross income (before tax)? 0 Less than 16.9003gross_income 1 16.900-33.9008gross_income 2 33.900-50.70020gross_income 3 50.700 or more52gross_income not_answer Do not want to answer47gross_income not_available Not available60gross_income 190 What is your current gross household income (before tax)? 0 Less than 33.90014gross_household_income 1 33.901-67.59936gross_household_income 2 67.600-101.29950gross_household_income 3 101.300 or more0gross_household_income not_answer Do not want to answer48gross_household_income not_available Not available42gross_household_income 190 Date of birth 181 Ethnicity european European14ethnicity_general african African49ethnicity_general asian Asian46ethnicity_general other Other44ethnicity_general not_available Not available34ethnicity_general 187 Country of residence. 0 Gender 0 Female65gender_general 1 Male25gender_general 2 Other36gender_general 3 Prefer not to say54gender_general 180 Highest completed education. primary Primary School,59highesteducationform_general upper High School72highesteducationform_general college College/University (3 years)5highesteducationform_general bachelor College/University (more than 3 years)23highesteducationform_general not_available Not available29highesteducationform_general 188 Family structure single single94familystructure_general coupled married/in relationship41familystructure_general not_available Not available/Non-applicable49familystructure_general 184 Number of pregnancies 18237.654.15 Number of children. 1978.073.20 Employment percentage of full time. 1 0%-25%12employmentpercentquantiles_general 2 26%-50%26employmentpercentquantiles_general 3 51%-75%66employmentpercentquantiles_general 4 75%-100%43employmentpercentquantiles_general not_available Not available/Non-applicable37employmentpercentquantiles_general 184 Do you have any acquaintances who have died of breast cancer? family Family13acquaintancebcdeath_general friends Close Friends2acquaintancebcdeath_general colleagues-acquaintances Colleagues / Acquaintances18acquaintancebcdeath_general family-friend Family and close friend15acquaintancebcdeath_general family-colleague Family and Colleagues / Acquaintances12acquaintancebcdeath_general friend-colleague Close friend and colleague53acquaintancebcdeath_general other Other48acquaintancebcdeath_general not_available Not available/Non-applicable17acquaintancebcdeath_general 178 Comments 189 Decision date for well-founded suspicion of cancer 197 Number of births 18514.826.27 Diagnosis date. 195 Age at diagnosis Calculated : rounddown(datediff([dob_general], [diagnosisdate_general], 'y')) 19540.544.66 Date 1st visit in specialized care 193 Detected in screening yes Yes131screendetected_general no No23screendetected_general not_available Not available24screendetected_general 178 Preoperatively determined malignancy yes Yes9malignacy_general no No52malignacy_general not_available Not available135malignacy_general 196 Diagnostic basis clinicalexam Clinical examination60 xray X-ray1 pad PAD-verified diagnosis49 cytologicalexam Cytological examination47 not_available Not available37 194 Menstrual status at diagnosis pre Premenopause (< 6 months after last menstruation)85menstrualstatus_general post >673menstrualstatus_general uncertain uncertain39menstrualstatus_general not_available Not available, Non-applicable0menstrualstatus_general 197 TNM classification is based on: cTNM presurgery pathology104 pTNM postsurgery pathology81 185 T-Classification based on pre-surgery pathology [tnm_general(cTNM)]='1' 1 T031tclass_pre_general 2 Tis11tclass_pre_general 3 T123tclass_pre_general 4 T221tclass_pre_general 5 T35tclass_pre_general 6 T4a26tclass_pre_general 7 T4b18tclass_pre_general 8 TX27tclass_pre_general not_available Not available, Non-applicable18tclass_pre_general 180 N-Classification based on pre-surgery pathology [tnm_general(cTNM)]='1' 1 N00nclass_pre_general 2 N10nclass_pre_general 3 N20nclass_pre_general 4 N30nclass_pre_general 5 NX0nclass_pre_general not_available Not available, Non-applicable0nclass_pre_general 0 M-Classification remote metastases based on pre-surgery pathology [tnm_general(cTNM)]='1' m0 M0: no known metastases14mclass_pre_general m1 M1:known44mclass_pre_general not_available Not available, Non-applicable119mclass_pre_general 177 T-Classification based on post-surgery pathology [tnm_general(pTNM)]='1' 1 T03tclass_post_general 2 Tis39tclass_post_general 3 T142tclass_post_general 4 T24tclass_post_general 5 T322tclass_post_general 6 T4a3tclass_post_general 7 T4b33tclass_post_general 8 TX33tclass_post_general not_available Not available, Non-applicable5tclass_post_general 184 N-Classification based on post-surgery pathology [tnm_general(pTNM)]='1' 1 N09nclass_post_general 2 N126nclass_post_general 3 N230nclass_post_general 4 N347nclass_post_general 5 NX45nclass_post_general not_available Not available, Non-applicable37nclass_post_general 194 M-Classification remote metastases based on post-surgery pathology [tnm_general(pTNM)]='1' m0 M0: no known metastases52mclass_post_general m1 M1:known86mclass_post_general not_available Not available, Non-applicable48mclass_post_general 186 Invasivity invasive Invasive16invasivity_general cis CIS29invasivity_general no_assessment No assessment43invasivity_general microinvasive Microinvasive tumor74invasivity_general not_available Not available, Non-applicable29invasivity_general 191 Type of invasive cancer [invasivity_general]="invasive" ductal Ductal cancer only75invasivecancertype_general ductal_lobular Both ductal and lobular cancer7invasivecancertype_general ductal_non_lobular Ductal and non-lobular cancer7invasivecancertype_general lobular Lobular cancer only3invasivecancertype_general other Other invasive cancers34invasivecancertype_general not_available Not available, Non-applicable53invasivecancertype_general 179 Reason for no surgery or remote metastasis at diagnosis. [invasivity_general]="invasive" locally_advanced Locally advanced disease23surgerymetastasisreason_general metastatic metastatic disease14surgerymetastasisreason_general other Another reason96surgerymetastasisreason_general not_available Not available, Non-applicable59surgerymetastasisreason_general 192 Number of lesions in the chest [invasivity_general]="invasive" 1 165chestlesions_general 2 216chestlesions_general 3 37chestlesions_general 4 434chestlesions_general 5 >433chestlesions_general not_available not available37chestlesions_general 192 Size for largest lesion (mm). [invasivity_general]="invasive" 19798.432.46 Type of CIS [invasivity_general]="cis" dcis DCIS85cistype_general lcis LCIS12cistype_general dcis_lcis DCIS and LCIS20cistype_general other Other cancer in situ56cistype_general not_available Not available, Non-applicable14cistype_general 187 Extent of cancer in situ [invasivity_general]="cis" present Present41cisextent_general absent Absent150cisextent_general 191 Histological degree (invasive) or nuclear type (cancer in situ) [invasivity_general]="invasive" or [invasivity_general]="cis" 1 Grade 114situcancerdegree_general 2 Grade 291situcancerdegree_general 3 Grade 375situcancerdegree_general not_performed Not performed2situcancerdegree_general not_available Not assessable / information missing12situcancerdegree_general 194 ER status immunohistochemistry based on pre-surgery pathology [tnm_general(cTNM)]='1' positive Positive(>10%)25erstatus_pre_general negative Negative(< 10%)70erstatus_pre_general not_performed Not performed31erstatus_pre_general not_assessable Not assessable / information missing58erstatus_pre_general 184 ER_Percentage based on pre-surgery pathology [tnm_general(cTNM)]='1' 1891.210.63 ER_Comment based on pre-surgery pathology [tnm_general(cTNM)]='1' 191 PgR_Percentage based on pre-surgery pathology [tnm_general(cTNM)]='1' 19466.5312.17 PgR_Comment based on pre-surgery pathology [tnm_general(cTNM)]='1' 183 PgR status immunohistochemistry based on pre-surgery pathology [tnm_general(cTNM)]='1' positive Positive(>10%)124prgstatus_pre_general negative Negative(< 10%)11prgstatus_pre_general not_performed Not performed52prgstatus_pre_general not_assessable Not assessable / information missing8prgstatus_pre_general 195 HER2_IHC based on pre-surgery pathology [tnm_general(cTNM)]='1' 1 0-1+16her2ihc_pre_general 2 2+94her2ihc_pre_general 3 3+7her2ihc_pre_general not_performed Not performed18her2ihc_pre_general not_available Not assessable / information missing58her2ihc_pre_general 193 HER2 ISH based on pre-surgery pathology [tnm_general(cTNM)]='1' 1 0-1+30her2ish_pre_general 2 2+69her2ish_pre_general 3 3+41her2ish_pre_general not_performed Not performed42her2ish_pre_general not_available Not assessable / information missing2her2ish_pre_general 184 HER2_FISH based on pre-surgery pathology [tnm_general(cTNM)]='1' positive Positive61her2fish_pre_general negative Negative34her2fish_pre_general not_performed Not performed28her2fish_pre_general not_available Not assessable / information missing72her2fish_pre_general 195 CK5_6 based on pre-surgery pathology [tnm_general(cTNM)]='1' negative Negative44ck56_pre_general positive Positive74ck56_pre_general highly_positive Highly Positive33ck56_pre_general not_available Not available/Non-applicable34ck56_pre_general 185 Ki67 status based on pre-surgery pathology [tnm_general(cTNM)]='1' low Low1ki67status_pre_general intermediate Intermediate61ki67status_pre_general high High56ki67status_pre_general not_performed Not performed9ki67status_pre_general not_available Not assessable / information missing52ki67status_pre_general 179 ki67 percentage score based on pre-surgery pathology [tnm_general(cTNM)]='1' 18193.3922.02 ER status immunohistochemistry based on post-surgery pathology [tnm_general(pTNM)]='1' positive Positive(>10%)35erstatus_post_general negative Negative(< 10%)52erstatus_post_general not_performed Not performed65erstatus_post_general not_available Not assessable / information missing36erstatus_post_general 188 ER_Percentage based on post-surgery pathology [tnm_general(pTNM)]='1' 19753.3716.70 ER_Comment based on post-surgery pathology [tnm_general(pTNM)]='1' 180 PgR status immunohistochemistry based on post-surgery pathology [tnm_general(pTNM)]='1' positive Positive(>10%)24prgstatus_post_general negative Negative(< 10%)79prgstatus_post_general not_performed Not performed65prgstatus_post_general not_available Not assessable / information missing13prgstatus_post_general 181 PgR_Percentage based on post-surgery pathology [tnm_general(pTNM)]='1' 18372.045.09 PgR_Comment based on post-surgery pathology [tnm_general(pTNM)]='1' 185 HER2_IHC based on post-surgery pathology [tnm_general(pTNM)]='1' 1 0-1+66her2ihc_post_general 2 2+62her2ihc_post_general 3 3+7her2ihc_post_general not_performed Not performed30her2ihc_post_general not_available Not assessable / information missing20her2ihc_post_general 185 HER2 ISH based on post-surgery pathology [tnm_general(pTNM)]='1' 1 0-1+0her2ish_post_general 2 2+0her2ish_post_general 3 3+0her2ish_post_general not_performed Not performed0her2ish_post_general not_available Not assessable / information missing0her2ish_post_general 0 HER2_FISH based on post-surgery pathology [tnm_general(pTNM)]='1' positive Positive85her2fish_post_general negative Negative14her2fish_post_general not_performed Not performed38her2fish_post_general not_available Not assessable / information missing60her2fish_post_general 197 CK5_6 based on post-surgery pathology [tnm_general(pTNM)]='1' negative Negative6ck56_post_general positive Positive67ck56_post_general highly_positive Highly Positive67ck56_post_general not_available Not available/Non-applicable40ck56_post_general 180 Ki67 status based on post-surgery pathology [tnm_general(pTNM)]='1' low Low47ki67status_post_general intermediate Intermediate37ki67status_post_general high High3ki67status_post_general not_performed Not performed30ki67status_post_general not_available Not assessable / information missing78ki67status_post_general 195 ki67 percentage score based on post-surgery pathology [tnm_general(pTNM)]='1' 17889.995.25 Number of SLNs removed 18036.0110.64 Metastasis in SLN yes Yes77slnmetastasis_general no No95slnmetastasis_general not_available Not available, non-applicable24slnmetastasis_general 196 Number of SLNs with macrometastases (> 2mm) [slnmetastasis_general]="yes" 18288.260.62 Number of SLNs with micrometastases [slnmetastasis_general]="yes" 18778.4610.29 Total number examined lymph nodes from all axillary engagement 18427.4111.58 Total number of lymph nodes with metastasis (> 0.2 mm) from all axillary procedures 17886.005.56 Date of first treatment 191 Participation in clinical studies yes Yes33clinicalstudiespart_general no No94clinicalstudiespart_general not_available Not Available57clinicalstudiespart_general 184 Details about clinical study [clinicalstudiespart_general] = 'yes' 179 Investigation of oncological treatment performed yes Yes43oncotreatment_general no No61oncotreatment_general not_available Not Available81oncotreatment_general 185 Planned action. primary-operation Primary Operation80plannedaction_general preoperative-onco-treat Preoperative oncological treatment or conservative treatment10plannedaction_general no_surgery No surgery or remote metastasis at diagnosis82plannedaction_general not_available Not available/Non-applicable15plannedaction_general 187 Reason for no oncological treatment [oncotreatment_general]="no" age Age3whynooncotreatment_general comorbidity Comorbodity35whynooncotreatment_general poor_condition Poor general condition20whynooncotreatment_general poor_tolerance Poor tolerance for initiated treatment45whynooncotreatment_general patient_wish Patient's wish25whynooncotreatment_general not_available Not available/Non-applicable57whynooncotreatment_general 185 Specify oncological treatment chemotherapy Chemotherapy19 radiation Radiation therapy5 endocrine Endocrine treatment43 antibody Antibody treatment50 not_available Not available/Non-applicable78 195 Investigation of surgical treatment performed yes Yes61surgicaltreatment_general no No12surgicaltreatment_general not_available Not Available110surgicaltreatment_general 183 Further follow-up? yes Yes74followup_general no No14followup_general not_available Not Available99followup_general 187 Reasons for no further follow-up [followup_general]="no" change_region Moving to another region36whynofollowup_general change_country Moving to another country75whynofollowup_general patient_wish Patient's wish59whynofollowup_general not_available Not available/Non-applicable20whynofollowup_general 190 Operating date 1st: the procedure 189 Type of operation (if any). primary_surgery Primary surgery77operationtype_general surgery_after_onco_treat Surgery after commenced / completed preoperative oncological treatment37operationtype_general not_available Not available/Non-applicable68operationtype_general 182 Breast_concervation_1 yes Yes0breastconcervation1_general no No0breastconcervation1_general not_available Not available, non-applicable0breastconcervation1_general 0 Mastectomy_1 yes Yes88mastectomy1_general no No67mastectomy1_general not_available Not available, non-applicable35mastectomy1_general 190 Axille_Dissection_1 yes Yes42dissection1_general no No64dissection1_general not_available Not available, non-applicable77dissection1_general 183 Reresection_1 yes Yes33reresection1_general no No76reresection1_general not_available Not available, non-applicable70reresection1_general 179 Breast_concervation_2 yes Yes113breastconcervation2_general no No38breastconcervation2_general not_available Not available, non-applicable33breastconcervation2_general 184 Mastectomy_2 yes Yes0masectomy2_general no No0masectomy2_general not_available Not available, non-applicable0masectomy2_general 0 Axille_Dissection_2 yes Yes64dissection2_general no No81dissection2_general not_available Not available, non-applicable47dissection2_general 192 Reresection_2 yes Yes28reresection2_general no No98reresection2_general not_available Not available, non-applicable69reresection2_general 195 End result of breast surgery. partial_mastectomy Partial mastectomy34breastsurgeryresult_general mastectomy2 Mastectomy43breastsurgeryresult_general nosurgery No breast surgery41breastsurgeryresult_general subcutaneous_mastectomy Subcutaneous mastectomy with preservation of areola / mammary gland42breastsurgeryresult_general not_available Not available/Non-applicable37breastsurgeryresult_general 197 Oncoplastic surgery yes Yes47oncoplasticsurgery_general no No55oncoplasticsurgery_general not_available Not available91oncoplasticsurgery_general 193 Corresponding code for the oncoplastic surgery: [oncoplasticsurgery_general]="yes" HAE00 HAE0024oncopl_code_general HAE05 HAE0520oncopl_code_general HAE10 HAE1029oncopl_code_general HAE20 HAE2018oncopl_code_general ZZR00 ZZR0028oncopl_code_general ZZR05 ZZR0525oncopl_code_general ZZR10 ZZR1017oncopl_code_general ZZS50 ZZS5020oncopl_code_general 181 Axillary engagement (SN and / or evacuation) yes Yes59axillaryengagement_general no No22axillaryengagement_general not_available Not available113axillaryengagement_general 194 End result axillary intervention sn SN (PJA10) only65axillaryinterventionresult_general evacuation Evacuation only (PJD42)22axillaryinterventionresult_general sn_evacuation SN and evacuation (PJA10 + PJD42)60axillaryinterventionresult_general not_available Data not available37axillaryinterventionresult_general 184 Complementary breast surgery performed in a second session yes Yes24surgerysecondsession_general no No86surgerysecondsession_general not_available Not available81surgerysecondsession_general 191 Complementary axillary procedure performed in a second session yes Yes26axillarysurgsecondsessiom_general no No48axillarysurgsecondsessiom_general not_available Not available120axillarysurgsecondsessiom_general 194 Number of complementary breast surgery and / or axill which are made due to tumor data. 1837.361.91 Date of oncology therapeutic recommendation. 190 Date of 1st postoperative PAD information to patient. 190 Planned postoperative oncological treatment. yes Yes100postoncoplanned_general no No2postoncoplanned_general not_available Not available93postoncoplanned_general 195 No postoperative oncological treatment. yes Yes2nopostonco_general no No60nopostonco_general not_available Not available130nopostonco_general 192 Chemotherapy yes Yes50chemotherapy_general no No67chemotherapy_general not_available Not available/Non-applicable73chemotherapy_general 190 Start date first cure 192 Chemotherapy end date 190 Treatment anthracycline Anthracycline based31 docetaxel Docetaxel63 paclitaxel Paclitaxel37 other Other15 not_available Not available/Non-applicable43 189 Treatment completed according to plan yes Yes52completedtreatment_general no No87completedtreatment_general not_available Not available, non-applicable57completedtreatment_general 196 Reason for interruption / change [completedtreatment_general]="no" side-effects Side effects93changereason_general other Other20changereason_general notavailable Data not available66changereason_general 179 Inpatient care due to treatment complications yes Yes56inpatientcare_general no No77inpatientcare_general not_available Not available56inpatientcare_general 189 Radiation therapy yes Yes76radiation_general no No84radiation_general not_available Not available, non-applicable25radiation_general 185 Start date, first dose [radiation_general]="yes" 177 End date of radiation therapy 178 Target [radiation_general]="yes" chest Chest / chest wall32 axill Axill10 supraclavicular Supraclavicular fossa137 parasternal Parasternal area5 not_available Not available/Non-applicable4 188 Total excluding boost 17762.515.96 Boost doses [boost_general]="yes" 18056.835.45 Total dose 18817.615.95 Dose fractionation (Gy/day) 18078.004.09 Endocrine treatment yes Yes5endocrine_general no No60endocrine_general not_available Not available, non-applicable130endocrine_general 195 Start date first cure [endocrine_general]="yes" 189 Treatment [endocrine_general]="yes" tamoxifen Tamoxifen10 gnrh_agonist GnRH agonist85 aromatase_inhibitor Aromatase inhibitor76 other Other12 183 What type of hormonal treatment did the patient receive after change? [endocrine_general]="yes" none None58changedtreatmenttype_general aromatase_inhibitor Aromatase inhibitor57changedtreatmenttype_general tamoxifen Tamoxifen41changedtreatmenttype_general other Other type2changedtreatmenttype_general not_available Not available38changedtreatmenttype_general 196 Specify the period the treament was received (in months). [endocrine_general]="yes" 17951.098.53 Antibody treatment yes Yes12antibody_general no No109antibody_general not_available Not available, non-applicable71antibody_general 192 Start date of antibody treatment [antibody_general]="yes" 181 End date of antibody treatment 193 Treatment [antibody_general]="yes" trastuzumab Trastuzumab42 pertuzumab Pertuzumab62 other Other51 not_available Not available/Non-applicable30 185 Bisphosphonates yes Yes27bisph_general no No85bisph_general not_available Not available83bisph_general 195 Did the patient receive bisphosphate/zoledronic acid? yes Yes36zometa_general no No67zometa_general not_available Not available88zometa_general 191 Did you contract Covid-19? yes Yes67covid_general no No44covid_general not_available Not available66covid_general 177 Have you been vaccinated for Covid-19? yes Yes33vaccinated_general no No85vaccinated_general not_available Not available67vaccinated_general 185 Relapse status. locoregional Locoregional25relapsestatus_general contralateral Contralateral9relapsestatus_general sceletal Sceletal12relapsestatus_general visceral Visceral19relapsestatus_general cerebral Cerebral26relapsestatus_general central_neck_nodes Central neck nodes11relapsestatus_general multiple multiple22relapsestatus_general norelapse No relapse33relapsestatus_general unknown unknown20relapsestatus_general not_available Not available/Non-applicable0relapsestatus_general 177 Date_death_or_last_FU 189 What other medicine does the patient take? 186 What co malignancy does the patient have 188 Date of submission 193 Are there any comorbidities? yes Yes50comorbidities_general no No104comorbidities_general not_available Not available, non-applicable40comorbidities_general 194 Have you or have you had Hypertension? [comorbidities_general]="yes" yes Yes73hypertension_general no No32hypertension_general not_available Not available, non-applicable75hypertension_general 180 Have you or have you had Kidney disease? [comorbidities_general]="yes" yes Yes29kidney_general no No112kidney_general not_available Not available, non-applicable41kidney_general 182 Have you or have you had Diabetes? [comorbidities_general]="yes" yes Yes48diabetes_general no No79diabetes_general not_available Not available, non-applicable66diabetes_general 193 Have you or have you had Rheumatic Diseases? [comorbidities_general]="yes" yes Yes47rheumatic_diseases_general no No4rheumatic_diseases_general not_available Not available, non-applicable137rheumatic_diseases_general 188 Do you take glycocorticoid therapy? [comorbidities_general]="yes" yes Yes72glycocorticoid_general no No90glycocorticoid_general not_available Not available, non-applicable16glycocorticoid_general 178 Have you been diagnosed with muscle and skeletal problems [comorbidities_general]="yes" yes Yes50muscleskeletalproblems_general no No6muscleskeletalproblems_general not_available Not available, non-applicable136muscleskeletalproblems_general 192 Have you or have you had Osteopenia? [comorbidities_general]="yes" yes Yes30osteopenia_general no No8osteopenia_general not_available Not available, non-applicable149osteopenia_general 187 Have you or have you had Osteoporosis? [comorbidities_general]="yes" yes Yes65osteoporosis_general no No12osteoporosis_general not_available Not available, non-applicable102osteoporosis_general 179 Has anyone in your family had Osteopenia or Osteoporosis? [comorbidities_general]="yes" yes Yes80familyosteoporosis_general no No93familyosteoporosis_general not_available Not available, non-applicable8familyosteoporosis_general 181 Did you have a fracture during the last year? [comorbidities_general]="yes" yes Yes69fracture_general no No55fracture_general not_available Not available, non-applicable70fracture_general 194 Do you have any bone health problem? [comorbidities_general]="yes" yes Yes47boneproblem_general no No110boneproblem_general not_available Not available, non-applicable36boneproblem_general 193 If yes (to the previous question) descibe it. [boneproblem_general]="yes" 190 Have you been diagnosed with thyroid disease [comorbidities_general]="yes" yes Yes11thyroiddisease_general no No168thyroiddisease_general not_available Not available, non-applicable17thyroiddisease_general 196 What type of thyroid disease? [thyroiddiseasetype_general]="yes" hyperparathyroidism Hyperparathyroidism25thyroiddiseasetype_general hyperthyroidism hyperthyroidism76thyroiddiseasetype_general hypoparathyroidism Hypoparathyroidism18thyroiddiseasetype_general hypophysitis Hypophysitis19thyroiddiseasetype_general hypopituitarism Hypopituitarism8thyroiddiseasetype_general hypothyroidism hypothyroidism0thyroiddiseasetype_general not_available Non-applicable/Not available51thyroiddiseasetype_general 197 Complete? 0 Incomplete117background_complete 1 Unverified8background_complete 2 Complete71background_complete 196 Date randomized 191 Patient randomized to INT Intervention group100patient_randomized CTR Control group84patient_randomized 184 Complete? 0 Incomplete74randomization_complete 1 Unverified99randomization_complete 2 Complete24randomization_complete 197 184 Age (years) Calculated : datediff([submission_date_event_form], [general_info_arm_1][dob_general], "y", "dmy") 18582.841.79 Date of submission 186 Highest completed education. [event-name] = "event_0_arm_1" primary Primary School,71highestedu_event_form upper High School34highestedu_event_form college College/University (3 years)37highestedu_event_form bachelor College/University (more than 3 years)23highestedu_event_form not_available Not available30highestedu_event_form 195 What is your current gross income (before tax)? 0 Less than 16.90060gross_income_event_form 1 16.900-33.90010gross_income_event_form 2 33.900-50.7005gross_income_event_form 3 50.700 or more51gross_income_event_form not_answer Do not want to answer38gross_income_event_form not_available Not available30gross_income_event_form 194 What is your current gross household income (before tax)? 0 Less than 33.90033household_income_event_form 1 33.901-67.5992household_income_event_form 2 67.600-101.29942household_income_event_form 3 101.300 or more45household_income_event_form not_answer Do not want to answer31household_income_event_form not_available Not available42household_income_event_form 195 Do you have any acquaintances who have died of breast cancer? family Family33 friends Close Friends46 colleagues_acquaintances Colleagues / Acquaintances9 family_friend Family and close friend29 family_colleague Family and Colleagues / Acquaintances31 friend_colleague Close friend and colleague24 other Other4 not_available Not available/Non-applicable17 193 Which description best suits your current situation? cohabitant I live with spouse / cohabitant / partner72currentsituation_event_form steady_relationship I am in a stable relationship but do not live together28currentsituation_event_form not_steady_relationship I am not in a steady relationship57currentsituation_event_form not_available Not available/Non-applicable23currentsituation_event_form 180 Do you live with children under 18 years? yes Yes19childrenunder18_event_form no No46childrenunder18_event_form not_available Not available/Non-applicable129childrenunder18_event_form 194 How much do you move weekly? Moving: Easy walking and cycling, work in the garden, snow removal 1 Does not exercise54weeklymove_event_form 2 0-1 hour per week51weeklymove_event_form 3 2-3 hours per week0weeklymove_event_form 4 4-5 hours per week53weeklymove_event_form 5 6+ hours per week28weeklymove_event_form not_available Not available/Non-applicable3weeklymove_event_form 189 How much do you exercise weekly? Exercise: Regular activities with high intensity of at least ½ hours duration every time, ex. aerobics / running / cycling. 1 Does not exercise39weeklyexercise_event_form 2 0-1 hour per. week33weeklyexercise_event_form 3 2-3 hours pr. week39weeklyexercise_event_form 4 4-5 hours per week10weeklyexercise_event_form 5 6+ hours per week28weeklyexercise_event_form not_available Not available/Non-applicable47weeklyexercise_event_form 196 Do you smoke? yes Yes14smokebackground_event_form no No110smokebackground_event_form not_available Not available/Non-applicable68smokebackground_event_form 192 Approximately how many cigarettes do you smoke in one week? [smokebackground_event_form]="yes" 18231.760.23 Have you smoked before? [smokebackground_event_form]="no" yes Yes78pastsmoker_event_form no No71pastsmoker_event_form not_available Not available/Non-applicable35pastsmoker_event_form 184 How many years have passed since you quit? [pastsmoker_event_form]="yes" 18150.3417.92 Do you drink alcohol? yes Yes57alcohol_event_form no No65alcohol_event_form not_available Not available/Non-applicable63alcohol_event_form 185 Αverage glasses of wine per month: [alcohol_event_form]="yes" 18138.9818.89 Αverage pints of beer per month: [alcohol_event_form]="yes" 18186.546.91 Average shots/glasses of liquor per month: [alcohol_event_form]="yes" 19034.6514.43 Do you use drugs? yes Yes43druguse_event_form no No46druguse_event_form not_available Not available, non-applicable88druguse_event_form 177 Which drugs? [druguse_event_form]="yes" 192 Do you use vitamin supplements? yes Yes72vitsups_event_form no No46vitsups_event_form not_available Not available, non-applicable73vitsups_event_form 191 Which ones? [vitsups_event_form]="yes" 191 Are you premenopausal? yes Yes112period_event_form no No28period_event_form not_available Not available, non-applicable43period_event_form 183 Are you postmenopausal? yes Yes6postmenopausal_event_form no No95postmenopausal_event_form not_available Not available, non-applicable89postmenopausal_event_form 190 Are you using hormone supplements now in connection with menopause? [period_event_form]="no" yes Yes77hormonesupsmenopause_event_form no No62hormonesupsmenopause_event_form not_available Not available, non-applicable50hormonesupsmenopause_event_form 189 Which ones? [hormonesupsmenopause_event_form]="yes" 178 Have you been hospitalized and treated for another illness in the past year? yes Yes51otherillnesspastyear_event_form no No16otherillnesspastyear_event_form not_available Not available, non-applicable128otherillnesspastyear_event_form 195 Please, specify. [otherillnesspastyear_event_form]="yes" 191 Have you attended a rehabilitation program for breast cancer patients, such as "Nærlandsheimen"? yes Yes0bcrehabprogram_event_form no No0bcrehabprogram_event_form not_available Not available/Non-applicable0bcrehabprogram_event_form 0 Which one? [bcrehabprogram_event_form]="yes" 197 Are you currently employed? Do not pay attention to whether you are on sick leave or on leave. yes Yes35currentlyemployed_event_form no No70currentlyemployed_event_form pension No, I have a pension24currentlyemployed_event_form not_available Not available/Non-applicable50currentlyemployed_event_form 179 What percentage of full-time do you work at your job? 1 1 to 25 %34workpositionpercentage_event_form 2 26 to 50 %34workpositionpercentage_event_form 3 51 to 75 %15workpositionpercentage_event_form 4 76 to 99 %12workpositionpercentage_event_form 5 100 %28workpositionpercentage_event_form 6 More than 100 %29workpositionpercentage_event_form dont_know Do not know34workpositionpercentage_event_form not_available Not available/Non-applicable1workpositionpercentage_event_form 187 Do you receive any of these benefits? sickness_money Sickness money (from employer or NAV) Work34 work_clearance_allowance Work clearance allowance15 disability_pension Disability pension12 unemployment_daily_support Unemployment daily support5 social_support Social support48 time_unrestricted_allowance Time unrestricted allowance (TULT)37 no I do not receive any of the above34 dont_know Do not know4 not_available Not available/Non-applicable8 197 Let's assume that your ability to work at its best in your working life would receive 10 points. How many points do you give to your work ability TODAY? 0 means that you are not able to work at all. Put a cross next to the number you think best corresponds to your current work ability. Let's assume that your ability to work at its best in your working life would receive 10 points. How many points do you give to your work ability TODAY? 0 means that you are not able to work at all. Put a cross next to the number you think best corresponds to your current work ability. : Not at all able to work | | Totally able to work 1775.553.01 Did you have pain in the upper back during last 30 days? 0 Not bothered42upperbackpain_event_form 1 Slightly bothered24upperbackpain_event_form 2 Some bothered40upperbackpain_event_form 3 Severely bothered65upperbackpain_event_form not_available Not available/ Non-applicable17upperbackpain_event_form 188 Did you have low back pain during last 30 days? 0 Not bothered62lowbackpain_event_form 1 Slightly bothered44lowbackpain_event_form 2 Some bothered16lowbackpain_event_form 3 Severely bothered64lowbackpain_event_form not_available Not available/ Non-applicable10lowbackpain_event_form 196 Did you have hot flashes during last 30 days? 0 Not bothered31hotflashes_event_form 1 Slightly bothered45hotflashes_event_form 2 Some bothered60hotflashes_event_form 3 Severely bothered30hotflashes_event_form not_available Not available/ Non-applicable19hotflashes_event_form 185 Did you have sleep problems during last 30 days? 0 Not bothered33sleepproblems_event_form 1 Slightly bothered26sleepproblems_event_form 2 Some bothered43sleepproblems_event_form 3 Severely bothered46sleepproblems_event_form not_available Not available/ Non-applicable31sleepproblems_event_form 179 Did you have fatigue during last 30 days? 0 Not bothered20fatigue_event_form 1 Slightly bothered39fatigue_event_form 2 Some bothered48fatigue_event_form 3 Severely bothered23fatigue_event_form not_available Not available/ Non-applicable56fatigue_event_form 186 Did you have anxiety during last 30 days? 0 Not bothered2anxiety_event_form 1 Slightly bothered73anxiety_event_form 2 Some bothered35anxiety_event_form 3 Severely bothered1anxiety_event_form not_available Not available/ Non-applicable75anxiety_event_form 186 Did you feel depressed during last 30 days? 0 Not bothered39depression_event_form 1 Slightly bothered32depression_event_form 2 Some bothered36depression_event_form 3 Severely bothered38depression_event_form not_available Not available/ Non-applicable33depression_event_form 178 Do you sometimes forget to take your breast cancer medication? yes Yes63forgetme_event_form no No54forgetme_event_form not_available Not available/Non-applicable71forgetme_event_form 188 How often do you have trouble remembering to take all your medicines? 0 Never33notremembermed_event_form 1 Occasionally47notremembermed_event_form 2 Sometimes34notremembermed_event_form 3 Usually16notremembermed_event_form 4 Always22notremembermed_event_form not_available Not available/Non-applicable29notremembermed_event_form 181 Complete? 0 Incomplete15event_general_info_form_complete 1 Unverified47event_general_info_form_complete 2 Complete119event_general_info_form_complete 181 Reasons of end of study. remove_consent Remove consent71reasons_end cancer_progression Cancer progression78reasons_end other Other32reasons_end 181 What is the reason? [reasons_end]="other" 185 Date that the study was ended. 185 Complete? 0 Incomplete88end_of_study_complete 1 Unverified26end_of_study_complete 2 Complete78end_of_study_complete 192 191 Resting pulse (beats per minute) 18175.665.64 Date that hematological examination was performed. 189 Hematocrit 19437.2115.50 Hemoglobin 0 Cholesterol (Total) 19137.4914.79 HDL Cholesterol 18982.4223.51 LDL Cholesterol 18447.6815.39 Triglycerides 18791.615.53 Calcium 19191.037.55 Erythrocytes 1815.490.14 Leukocytes 18010.625.60 Thrombocytes 19137.7318.86 Date measured 194 Systolic 18188.6616.37 Diastolic 19641.4020.65 Complete? 0 Incomplete91biological_samples_and_measurements_complete 1 Unverified29biological_samples_and_measurements_complete 2 Complete58biological_samples_and_measurements_complete 178 188 Planned visit date 188 Weight (kg) 19736.517.67 Height (cm) 18094.9520.60 Body Mass Index (BMI) Calculated : [weight_event_form] / (([height_event_form]/100)^2) 18364.5314.93 Was a gynecological exam performed? [event-name]!="event_1_arm_1" AND [event-name]!="event_3_arm_1" yes Yes0gynexamperformed no No0gynexamperformed not_available Not available/Non-applicable0gynexamperformed 0 Gynaecological examination [gynexamperformed]="yes" normal Normal92gynexam abnormal Abnormal73gynexam not_available Not available/Non-applicable19gynexam 184 Gynaecological examination findings. [gynexam]="abnormal" 194 Vulvovaginal trophism [gynexamperformed]= "Yes" atrophic atrophic82vulvovaginal_trophism trophic trophic24vulvovaginal_trophism non_available Non-applicable/Not available77vulvovaginal_trophism 183 Endometrial thickness (mm). [gynexamperformed]= "Yes" 1961.281.41 Breast exploration. normal Normal68breastexploration abnormal Abnormal100breastexploration not_available Not available/Non-applicable13breastexploration 181 Breast exploration findings. [breastexploration]="abnormal" 181 Complete? 0 Incomplete37clinical_exams_complete 1 Unverified80clinical_exams_complete 2 Complete60clinical_exams_complete 177 0 Medication name. 1 Anthracycline based0cmtrt 2 Docetaxel0cmtrt 3 Paclitaxel0cmtrt 4 Taxotere23cmtrt 5 TDM-10cmtrt 6 Tamoxifen0cmtrt 7 GnRH agonist0cmtrt 8 Aromatase inhibitor0cmtrt 9 Trastuzumab (Herceptin)0cmtrt 10 Pertuzumab0cmtrt 11 Trastuzumab-Deruxtecan0cmtrt 12 Bisphosphonates(Zometa)0cmtrt 13 antidepressants0cmtrt 14 blood pressure medication157cmtrt 15 statin0cmtrt 16 fibrates0cmtrt 17 proton pump inhibitors (PPIs)1cmtrt 18 benzodiazepines0cmtrt 19 antipsychotics0cmtrt 20 antibiotics0cmtrt 21 diuretics0cmtrt 22 painkillers0cmtrt 23 sleeping pills0cmtrt 24 CD4/CD6 inhibitors0cmtrt 25 Capecitabine0cmtrt 26 Cyclophosphamide0cmtrt 27 Immunetherapy0cmtrt 28 Fulvestrant0cmtrt 29 other0cmtrt 181 For what indication was the medication taken? 179 Individual dose of medication. 1817.501.31 Dose unit gram gram37cmdosu milligram milligram20cmdosu microgram microgram31cmdosu liter liter15cmdosu milliliter milliliter25cmdosu mg_m mg/m221cmdosu other other40cmdosu not_available not available5cmdosu 194 Please specify. [cmdosu]="other" 194 Frequency of medication. 1 once daily15cmdosfrq 2 twice daily30cmdosfrq 3 three times daily14cmdosfrq 4 four times daily28cmdosfrq 5 monthly13cmdosfrq 6 every other month24cmdosfrq 7 every hour10cmdosfrq 8 weekly10cmdosfrq 9 as needed8cmdosfrq other other31cmdosfrq 183 Please specify. [cmdosfrq] = "other" 192 Route of administration. oral oral5cmroute topical topical5cmroute subcutaneous subcutaneous34cmroute intradermal intradermal38cmroute inhalation inhalation26cmroute nasal nasal26cmroute vaginal vaginal25cmroute other other15cmroute not_available not applicable5cmroute 179 Please specify. [cmroute] = "other" 190 Medication start date (if full date unknown, please estimate year/month). 178 Is the medication ongoing? 1 Yes148cmongo 0 No48cmongo 196 Medication end date. [cmongo]="0" 181 Complete? 0 Incomplete37medication_information_complete 1 Unverified18medication_information_complete 2 Complete137medication_information_complete 192 185 Low white blood cell count (Leukopenia) no No61leukopenia yes Yes71leukopenia dont_know do not know58leukopenia 190 Other blood diseases no No61otherblooddiseases yes Yes65otherblooddiseases dont_know do not know71otherblooddiseases 197 Diarrhea no No27diarrhea yes Yes105diarrhea dont_know do not know45diarrhea 177 Constipation no No33constipation yes Yes26constipation dont_know do not know118constipation 177 Heart related chest pain (Angina pectoris or heart attack) no No121heartchestpain yes Yes11heartchestpain dont_know do not know65heartchestpain 197 Heavy breathing no No46heavybreathing yes Yes49heavybreathing dont_know do not know96heavybreathing 191 Swelling ("water") in the legs (peripheral edema) no No72peripheraledema yes Yes105peripheraledema dont_know do not know18peripheraledema 195 Cough no No75cough yes Yes30cough dont_know do not know73cough 178 Stroke no No70stroke yes Yes36stroke dont_know do not know85stroke 191 Blood clot to the lungs (Pulmonary embolism) no No36pulmonaryembolism yes Yes84pulmonaryembolism dont_know do not know60pulmonaryembolism 180 Sleepiness no No32sleepiness yes Yes139sleepiness dont_know do not know7sleepiness 178 Insomnia no No78insomnia yes Yes76insomnia dont_know do not know29insomnia 183 Impaired memory no No111impairedmemory yes Yes25impairedmemory dont_know do not know56impairedmemory 192 Taste disorders no No69tastedisorder yes Yes81tastedisorder dont_know do not know43tastedisorder 193 Cataracts no No80cataracts yes Yes84cataracts dont_know do not know14cataracts 178 Dry mucous membranes of the eyes, mouth, abdomen no No65muncousmembranes yes Yes79muncousmembranes dont_know do not know46muncousmembranes 190 Nodules in the uterine wall (uterine fibroids / myomas) no No82myoma yes Yes15myoma dont_know do not know80myoma 177 Increased blood fats (cholesterol or triglycerides) no No15bloodfat yes Yes135bloodfat dont_know do not know38bloodfat 188 Inflammation of the pancreas (pancreatitis) no No9pancreatits yes Yes100pancreatits dont_know do not know84pancreatits 193 Anemia no No12anemia yes Yes93anemia dont_know do not know77anemia 182 Acute swelling of the skin / mucous membranes of the lips / tongue / respiratory tract (Angioedema)/Fainting, low blood pressure, hospitalized, got adrenaline etc./Acute Anaphylactic reaction/Itchy skin no No34acuteswelling yes Yes92acuteswelling dont_know do not know62acuteswelling 188 Treated for Bone Fractures no No28bonefractures yes Yes38bonefractures dont_know do not know114bonefractures 180 Osteoporosis no No9osteoporosisca yes Yes114osteoporosisca dont_know do not know74osteoporosisca 197 Increased appetite no No70appetite yes Yes41appetite dont_know do not know84appetite 195 Increased thirst no No86thirst yes Yes28thirst dont_know do not know83thirst 197 Increased carbon cholesterol level (Hypercholesterolemia) no No17carboncholesterol yes Yes103carboncholesterol dont_know do not know71carboncholesterol 191 Complete? 0 Incomplete108currentassessment_complete 1 Unverified64currentassessment_complete 2 Complete13currentassessment_complete 185 178 Was the questionnaire ___ ? Was the questionnaire ___ ? : annoying | | enjoyable 1868.604.58 Was the questionnaire ___ ? Was the questionnaire ___ ? : not understandable | | understandable 19659.819.61 Was the questionnaire ___ ? Was the questionnaire ___ ? : creative | | dull 17845.5219.24 Was the questionnaire ___ ? Was the questionnaire ___ ? : easy to learn | | difficult to learn 18760.9012.53 Was the questionnaire ___ ? Was the questionnaire ___ ? : valuable | | inferior 19111.255.96 Was the questionnaire ___ ? Was the questionnaire ___ ? : boring | | exciting 17950.954.31 Was the questionnaire ___ ? Was the questionnaire ___ ? : not interesting | | interesting 19199.1113.10 Was the questionnaire ___ ? Was the questionnaire ___ ? : unpredictable | | predictable 18837.915.65 Was the questionnaire ___ ? Was the questionnaire ___ ? : fast | | slow 18768.211.31 Was the questionnaire ___ ? Was the questionnaire ___ ? : inventive | | conventional 1877.530.45 Was the questionnaire ___ ? Was the questionnaire ___ ? : obstructive | | supportive 18625.9511.90 Was the questionnaire ___ ? Was the questionnaire ___ ? : good | | bad 19687.458.33 Was the questionnaire ___ ? Was the questionnaire ___ ? : complicated | | easy 18191.767.76 Was the questionnaire ___ ? Was the questionnaire ___ ? : unlikable | | pleasing 18913.775.59 Was the questionnaire ___ ? Was the questionnaire ___ ? : usual | | leading edge 19438.2915.95 Was the questionnaire ___ ? Was the questionnaire ___ ? : unpleasant | | pleasant 19310.254.11 Was the questionnaire ___ ? Was the questionnaire ___ ? : secure | | not secure 17736.903.51 Was the questionnaire ___ ? Was the questionnaire ___ ? : motivating | | demotivating 19220.0111.00 Was the questionnaire ___ ? Was the questionnaire ___ ? : meets expectations | | does not meet expectations 18684.602.53 Was the questionnaire ___ ? Was the questionnaire ___ ? : inefficient | | efficient 1934.741.13 Was the questionnaire ___ ? Was the questionnaire ___ ? : clear | | confusing 18160.133.86 Was the questionnaire ___ ? Was the questionnaire ___ ? : impractical | | practical 19681.104.14 Was the questionnaire ___ ? Was the questionnaire ___ ? : organized | | cluttered 19037.0714.06 Was the questionnaire ___ ? Was the questionnaire ___ ? : attractive | | unattractive 19629.2111.68 Was the questionnaire ___ ? Was the questionnaire ___ ? : friendly | | unfriendly 19424.6812.88 Was the questionnaire ___ ? Was the questionnaire ___ ? : conservative | | innovative 18337.4218.67 Complete? 0 Incomplete79ueq_complete 1 Unverified48ueq_complete 2 Complete64ueq_complete 191 182 Urinary complains 1 Yes70urinarycomplains 0 No126urinarycomplains 196 Do you have any social network? 1 Yes159socialnetwork 0 No29socialnetwork 188 Do you feel that your engagement with your social media helps you? 1 Yes49socialmediahelp 0 No131socialmediahelp 180 Complete? 0 Incomplete47proms_complete 1 Unverified53proms_complete 2 Complete85proms_complete 185 184 I suddenly find that I start sweating without having done anything strenuous. I suddenly find that I start sweating without having done anything strenuous. : Never | | Completely 18893.1210.37 I have hot flushes. I have hot flushes. : Never | | All the time 18824.3413.10 I notice that my head aches more and more as the day progresses. I notice that my head aches more and more as the day progresses. : Never | | Every day 17732.551.71 I notice that my heart beats rapidly and out of control. I notice that my heart beats rapidly and out of control. : Not at all | | A lot 18779.353.44 Although I sleep, I don't feel rested. Although I sleep, I don't feel rested. : Never | | Completely 19269.913.47 I notice a tingling sensation in my hands and/or feet. I notice a tingling sensation in my hands and/or feet. : Not at all | | Unbearable 19161.9222.65 I am afraid to do anything strenuous because I have urine leakages. I am afraid to do anything strenuous because I have urine leakages. : Not at all | | A lot 0 I have difficulty doing the housework because of my health. I have difficulty doing the housework because of my health. : Not at all | | Completely 18155.3318.18 I have noticed that my skin is drier. I have noticed that my skin is drier. : No, it?s the same as usual | | Yes, much drier 18077.845.94 I can't take any more because of my nerves. I can't take any more because of my nerves. : Never | | Constantly 18442.5617.69 I've lost interest in everything, even things I used to enjoy. I've lost interest in everything, even things I used to enjoy. : Not true | | True 18083.8312.50 I feel tired from the minute I get up. I feel tired from the minute I get up. : Not at all | | A lot 19752.026.05 I am satisfied with my sex life. I am satisfied with my sex life. : Not at all | | Completely 1901.150.56 Sex is an important part of my life. Sex is an important part of my life. : Not at all important | | Extremely important 18266.772.14 I consider myself happy in my relationship. I consider myself happy in my relationship. : Not at all | | A lot 17995.3913.60 My role as a wife or partner is important. My role as a wife or partner is important. : Not at all important | | Very important 19355.869.76 Complete? 0 Incomplete11qol_cervantes_complete 1 Unverified92qol_cervantes_complete 2 Complete89qol_cervantes_complete 192 188 My motivation is lower when I am fatigued. My motivation is lower when I am fatigued. : Strongly Disagree | | Strongly Agree 18824.878.83 Exercise brings on my fatigue. Exercise brings on my fatigue. : Strongly Disagree | | Strongly Agree 19573.788.31 I am easily fatigued. I am easily fatigued. : Strongly Disagree | | Strongly Agree 0 Fatigue interferes with my physical functioning. Fatigue interferes with my physical functioning. : Strongly Disagree | | Strongly Agree 19718.337.92 Fatigue causes frequent problems for me. Fatigue causes frequent problems for me. : Strongly Disagree | | Strongly Agree 19263.5420.29 My fatigue prevents sustained physical functioning. My fatigue prevents sustained physical functioning. : Strongly Disagree | | Strongly Agree 1914.660.67 Fatigue interferes with carrying out certain duties and responsibilities. Fatigue interferes with carrying out certain duties and responsibilities. : Strongly Disagree | | Strongly Agree 17832.245.31 Fatigue is among my most disabling symptoms. Fatigue is among my most disabling symptoms. : Strongly Disagree | | Strongly Agree 19447.870.91 Fatigue interferes with my work, family, or social life. Fatigue interferes with my work, family, or social life. : Strongly Disagree | | Strongly Agree 18636.3414.97 Complete? 0 Incomplete80fss_complete 1 Unverified30fss_complete 2 Complete87fss_complete 197 191 Global fatigue indication. Global fatigue indication. : Worst | | Normal 18934.563.42 Complete? 0 Incomplete50vasquestionnaire_complete 1 Unverified107vasquestionnaire_complete 2 Complete35vasquestionnaire_complete 192 190 I feel tense or 'wound up' 0 Not at all125wound_up 1 From time to time23wound_up 2 Much of the time36wound_up 3 Most of the time12wound_up 196 I still enjoy the things I used to enjoy 0 Definitely as much29enjoy 1 Not quite so much55enjoy 2 Only a little39enjoy 3 Hardly at all63enjoy 186 I get a sort of frightened feeling as if something awful is about to happen 0 Not at all49frightened_feeling 1 A little, but it doesn't worry me61frightened_feeling 2 Yes, but not too badly40frightened_feeling 3 Very definitely and quite badly28frightened_feeling 178 I can laugh and see the funny side of things 0 As much as I always could8laugh 1 Not quite so much now61laugh 2 Definitely not so much now34laugh 3 Not at all75laugh 178 Worrying thoughts go through my mind 0 Only occasionally17worries 1 From time to time, but not too often69worries 2 A lot of the time88worries 3 A great deal of the time3worries 177 I feel cheerful 0 Most of the time38mood 1 Sometimes39mood 2 Not often58mood 3 Not at all62mood 197 I can sit at ease and feel relaxed 0 Definitely32relax 1 Usually64relax 2 Not often48relax 3 Not at all44relax 188 I feel as if I am slowed down 0 Not at all38slow_feeling 1 Sometimes131slow_feeling 2 Very often3slow_feeling 3 Nearly all the time25slow_feeling 197 I get a sort of frightened feeling like "butterflies" in the stomach. 0 Not at all13restless_feeling 1 Occasionally84restless_feeling 2 Quite often75restless_feeling 3 Very often22restless_feeling 194 I have lost interest in my appearance. 0 I take just as much care as ever66appearance 1 I may not take quite as much care45appearance 2 I don't take as much care as I should25appearance 3 Definitely56appearance 192 I feel restless as I have to be on the move 0 Not at all43restless_feeling_ii 1 Not very much51restless_feeling_ii 2 Quite a lot51restless_feeling_ii 3 Very much indeed34restless_feeling_ii 179 I look forward with enjoyment to things 0 As much as I ever did36interest_ii 1 Rather less than I used to57interest_ii 2 Definitely less than I used to55interest_ii 3 Almost not at all46interest_ii 194 I get sudden feelings of panic 0 Not at all20panic_feeling 1 Not very often41panic_feeling 2 Quite often25panic_feeling 3 Very often indeed111panic_feeling 197 I can enjoy good books or radio or TV program 0 Often84enjoy_ii 1 Sometimes3enjoy_ii 2 Not often58enjoy_ii 3 Very seldom39enjoy_ii 184 Complete? 0 Incomplete24hads_complete 1 Unverified159hads_complete 2 Complete11hads_complete 194 192 Little interest or pleasure in doing things 0 Not at all63pleasure 1 Several days6pleasure 2 More than half the days73pleasure 3 Nearly every day48pleasure 190 Feeling down, depressed, or hopeless 0 Not at all26depression 1 Several days65depression 2 More than half the days56depression 3 Nearly every day46depression 193 Complete? 0 Incomplete100phq2_complete 1 Unverified17phq2_complete 2 Complete65phq2_complete 182 180 Feeling nervous, anxious, or on edge 0 Not at all20nervous 1 Several days39nervous 2 More than half the days86nervous 3 Nearly every day41nervous 186 Not being able to stop or control worrying 0 Not at all69worried 1 Several days21worried 2 More than half the days52worried 3 Nearly every day44worried 186 Worrying too much about different things 0 Not at all59veryworried 1 Several days9veryworried 2 More than half the days62veryworried 3 Nearly every day56veryworried 186 Trouble relaxing 0 Not at all43notrelaxed 1 Several days47notrelaxed 2 More than half the days38notrelaxed 3 Nearly every day54notrelaxed 182 Being so restless that it's hard to sit still 0 Not at all7restless 1 Several days82restless 2 More than half the days66restless 3 Nearly every day22restless 177 Becoming easily annoyed or irritable 0 Not at all38irritable 1 Several days57irritable 2 More than half the days44irritable 3 Nearly every day56irritable 195 Feeling afraid as if something awful might happen 0 Not at all40afraid 1 Several days66afraid 2 More than half the days56afraid 3 Nearly every day24afraid 186 Ask the patient: how difficult have these problems made it to do work, take care of things at home, or get along with other people? 0 Not at all21askpatient 1 Somewhat difficult54askpatient 2 Very difficult60askpatient 3 Extremely difficult43askpatient 178 Complete? 0 Incomplete33gad7_complete 1 Unverified73gad7_complete 2 Complete75gad7_complete 181 189 Have you made changes to your diet after you were diagnosed? 1 Yes156dietchanges 0 No32dietchanges 188 Ended with: 180 Started with: 184 Eat/drink less: 178 Eat/drink more 189 Milk 0 Do not avoid38milk 1 Avoid129milk 2 Avoid Partially23milk 190 Dairy products 0 Do not avoid132dairyproducts 1 Avoid34dairyproducts 2 Avoid Partially29dairyproducts 195 Egg 0 Do not avoid115egg 1 Avoid71egg 2 Avoid Partially5egg 191 Cod 0 Do not avoid69cod 1 Avoid37cod 2 Avoid Partially87cod 193 All species of fish 0 Do not avoid0allfish 1 Avoid0allfish 2 Avoid Partially0allfish 0 Shellfish 0 Do not avoid87shellfish 1 Avoid64shellfish 2 Avoid Partially45shellfish 196 Wheat 0 Do not avoid39wheat 1 Avoid77wheat 2 Avoid Partially64wheat 180 Rye 0 Do not avoid13rye 1 Avoid15rye 2 Avoid Partially160rye 188 Oats 0 Do not avoid11oats 1 Avoid70oats 2 Avoid Partially105oats 186 Gluten 0 Do not avoid76gluten 1 Avoid13gluten 2 Avoid Partially107gluten 196 Soya 0 Do not avoid98soya 1 Avoid64soya 2 Avoid Partially25soya 187 Peanuts 0 Do not avoid139peanuts 1 Avoid13peanuts 2 Avoid Partially37peanuts 189 Nuts 0 Do not avoid64nuts 1 Avoid19nuts 2 Avoid Partially109nuts 192 Cabbage vegetables 0 Do not avoid48cabbagevegetables 1 Avoid58cabbagevegetables 2 Avoid Partially90cabbagevegetables 196 Onion 0 Do not avoid39onion 1 Avoid95onion 2 Avoid Partially61onion 195 Carrot 0 Do not avoid108carrot 1 Avoid4carrot 2 Avoid Partially74carrot 186 Paprika 0 Do not avoid53paprika 1 Avoid72paprika 2 Avoid Partially65paprika 190 Apple 0 Do not avoid70apple 1 Avoid31apple 2 Avoid Partially76apple 177 Orange 0 Do not avoid60orange 1 Avoid75orange 2 Avoid Partially60orange 195 Tomato 0 Do not avoid76tomato 1 Avoid82tomato 2 Avoid Partially39tomato 197 Banana 0 Do not avoid6banana 1 Avoid160banana 2 Avoid Partially18banana 184 Pear 0 Do not avoid0pear 1 Avoid0pear 2 Avoid Partially0pear 0 Kiwi 0 Do not avoid67kiwi 1 Avoid33kiwi 2 Avoid Partially81kiwi 181 Strawberry 0 Do not avoid101strawberry 1 Avoid84strawberry 2 Avoid Partially7strawberry 192 Spice 0 Do not avoid51spice 1 Avoid90spice 2 Avoid Partially42spice 183 If so, what spices [spice]!=1 182 Yeast 0 Do not avoid46yeast 1 Avoid47yeast 2 Avoid Partially101yeast 194 Sugar 0 Do not avoid102sugar 1 Avoid34sugar 2 Avoid Partially61sugar 197 chocolate 0 Do not avoid59chocolate 1 Avoid24chocolate 2 Avoid Partially102chocolate 185 Coffee 0 Do not avoid70coffee 1 Avoid68coffee 2 Avoid Partially48coffee 186 Additives 0 Do not avoid91additives 1 Avoid77additives 2 Avoid Partially26additives 194 If so, which Additives [additives]!=1 194 fatty food 0 Do not avoid61fattyfood 1 Avoid70fattyfood 2 Avoid Partially58fattyfood 189 smoked food 0 Do not avoid91smokedfood 1 Avoid8smokedfood 2 Avoid Partially87smokedfood 186 spicy food 0 Do not avoid32spicyfood 1 Avoid121spicyfood 2 Avoid Partially39spicyfood 192 Highly salted food 0 Do not avoid19highlysaltedfood 1 Avoid85highlysaltedfood 2 Avoid Partially81highlysaltedfood 185 Sour food 0 Do not avoid78sourfood 1 Avoid81sourfood 2 Avoid Partially34sourfood 193 bread 0 Do not avoid23bread 1 Avoid168bread 2 Avoid Partially1bread 192 milk how many glasses per day 18241.2820.23 white cheese slices of bread per day 19265.4018.90 brown cheese / prim bread slices per day 18664.9422.70 cup of yogurt per week 19523.999.60 servings of ice cream per week 17891.414.38 portions of cereal per week 18293.460.91 Do you drink alcohol? 1 Yes39alcohol 0 No153alcohol 192 servings of dessert per week 18687.800.23 If "yes", how often do you drink alcohol now? [alcohol]=1 daily Daily45alcoholfrequency other_day Every other day16alcoholfrequency twice_week 2 x week22alcoholfrequency once_week 1 x week30alcoholfrequency once_month 1 x month25alcoholfrequency less_often less often42alcoholfrequency 180 Number of glasses of beer (0.25l) per week 19347.334.76 Number of glasses of wine (0.25l) per week 18273.3816.21 Number of glasses of liquor (0.25l) per week 17773.9319.77 Specify another type of alcohol and amount per week 183 Complete? 0 Incomplete68dietquestionnaire_complete 1 Unverified70dietquestionnaire_complete 2 Complete44dietquestionnaire_complete 182 187 Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or a suitcase? 1 Not at all38strenuousactivities 2 A little29strenuousactivities 3 Quite a bit64strenuousactivities 4 Very much49strenuousactivities 180 Do you have any trouble taking a long walk? 1 Not at all51longwalk 2 A little31longwalk 3 Quite a bit37longwalk 4 Very much65longwalk 184 Do you have any trouble taking a short walk outside of the house? 1 Not at all80shortwalk 2 A little84shortwalk 3 Quite a bit7shortwalk 4 Very much14shortwalk 185 Do you need to stay in bed or a chair during the day? 1 Not at all40daybed 2 A little54daybed 3 Quite a bit51daybed 4 Very much44daybed 189 Do you need help with eating, dressing, washing yourself or using the toilet? 1 Not at all89everydayactivitieshelp 2 A little28everydayactivitieshelp 3 Quite a bit59everydayactivitieshelp 4 Very much21everydayactivitieshelp 197 Were you limited in doing either your work or other daily activities? 1 Not at all33workactivitieslimitations 2 A little72workactivitieslimitations 3 Quite a bit26workactivitieslimitations 4 Very much50workactivitieslimitations 181 Were you limited in pursuing your hobbies or other leisure time activities? 1 Not at all51hobbylimitations 2 A little53hobbylimitations 3 Quite a bit48hobbylimitations 4 Very much42hobbylimitations 194 Were you short of breath? 1 Not at all41shortbreath 2 A little41shortbreath 3 Quite a bit27shortbreath 4 Very much70shortbreath 179 Have you had pain? 1 Not at all97pain 2 A little22pain 3 Quite a bit58pain 4 Very much17pain 194 Did you need to rest? 1 Not at all23restneed 2 A little40restneed 3 Quite a bit111restneed 4 Very much17restneed 191 Have you had trouble sleeping? 1 Not at all55troublesleeping 2 A little62troublesleeping 3 Quite a bit55troublesleeping 4 Very much6troublesleeping 178 Have you felt weak? 1 Not at all51weakfeeling 2 A little28weakfeeling 3 Quite a bit56weakfeeling 4 Very much51weakfeeling 186 Have you lacked appetite? 1 Not at all44lackapetite 2 A little73lackapetite 3 Quite a bit55lackapetite 4 Very much6lackapetite 178 Have you felt nauseated? 1 Not at all4nauseafeeling 2 A little40nauseafeeling 3 Quite a bit74nauseafeeling 4 Very much74nauseafeeling 192 Have you vomited? 1 Not at all71vomit 2 A little28vomit 3 Quite a bit66vomit 4 Very much32vomit 197 Have you been constipated? 1 Not at all32constipatedpastweek 2 A little57constipatedpastweek 3 Quite a bit55constipatedpastweek 4 Very much45constipatedpastweek 189 Have you had diarrhea? 1 Not at all14diarrheapastweek 2 A little115diarrheapastweek 3 Quite a bit45diarrheapastweek 4 Very much14diarrheapastweek 188 Were you tired? 1 Not at all46tiredpastweek 2 A little60tiredpastweek 3 Quite a bit28tiredpastweek 4 Very much43tiredpastweek 177 Did pain interfere with your daily activities? 1 Not at all92paininterference 2 A little28paininterference 3 Quite a bit39paininterference 4 Very much30paininterference 189 Have you had difficulty in concentrating on things, like reading a newspaper or watching television? 1 Not at all3difficultyconcentrating 2 A little53difficultyconcentrating 3 Quite a bit49difficultyconcentrating 4 Very much75difficultyconcentrating 180 Did you feel tense? 1 Not at all41tensefeeling 2 A little20tensefeeling 3 Quite a bit6tensefeeling 4 Very much117tensefeeling 184 Did you worry? 1 Not at all35worry 2 A little7worry 3 Quite a bit61worry 4 Very much75worry 178 Did you feel irritable? 1 Not at all11irritablefeeling 2 A little78irritablefeeling 3 Quite a bit18irritablefeeling 4 Very much71irritablefeeling 178 Did you feel depressed? 1 Not at all62depressedfeeling 2 A little69depressedfeeling 3 Quite a bit33depressedfeeling 4 Very much31depressedfeeling 195 Have you had difficulty remembering things? 1 Not at all28difficultyremembering 2 A little38difficultyremembering 3 Quite a bit8difficultyremembering 4 Very much119difficultyremembering 193 Has your physical condition or medical treatment interfered with your family life? 1 Not at all46familylifeint 2 A little31familylifeint 3 Quite a bit35familylifeint 4 Very much70familylifeint 182 Has your physical condition or medical treatment interfered with your social activities? 1 Not at all89socialactivitiesint 2 A little37socialactivitiesint 3 Quite a bit47socialactivitiesint 4 Very much16socialactivitiesint 189 Has your physical condition or medical treatment caused you financial difficulties? 1 Not at all40financialdifficultiescaused 2 A little71financialdifficultiescaused 3 Quite a bit25financialdifficultiescaused 4 Very much58financialdifficultiescaused 194 How would you rate your overall health during the past week? How would you rate your overall health during the past week? : Very poor | | Excellent 17856.6824.19 How would you rate your overall quality of life during the past week? How would you rate your overall quality of life during the past week? : Very poor | | Excellent 18139.455.28 Complete? 0 Incomplete51eortcqlqc30_complete 1 Unverified71eortcqlqc30_complete 2 Complete65eortcqlqc30_complete 187 183 I have many unanswered questions I have many unanswered questions : Strongly Disagree | | Strongly Agree 18967.6915.07 I understand everything that is explained to me I understand everything that is explained to me : Strongly Disagree | | Strongly Agree 18380.6614.69 The doctors say things to me that can have different meanings The doctors say things to me that can have different meanings : Strongly Disagree | | Strongly Agree 18348.4621.74 There are so many different occupational groups, it is unclear who is responsible for what There are so many different occupational groups, it is unclear who is responsible for what : Strongly Disagree | | Strongly Agree 17721.972.28 The purpose of each treatment is clear to me The purpose of each treatment is clear to me : Strongly Disagree | | Strongly Agree 19291.5317.39 Was the information about your illness satisfactory? 1 No66illnessinfo 2 too little40illnessinfo 3 partly56illnessinfo 4 Yes27illnessinfo 189 Were you informed about the treatment for your disease? 1 No29diseasetreatment 2 too little34diseasetreatment 3 partly82diseasetreatment 4 Yes43diseasetreatment 188 Were you informed about any side effects of the treatment for your disease? 1 No92sideeffects 2 too little39sideeffects 3 partly24sideeffects 4 Yes37sideeffects 192 Were you informed about how important it is that you follow the doctor's prescribed treatment - that you take the antiestrogen tablet every day? 1 No0antiestrogen 2 too little0antiestrogen 3 partly0antiestrogen 4 Yes0antiestrogen 0 They gave me comprehensive information about the disease breast cancer They gave me comprehensive information about the disease breast cancer : Strongly Disagree | | Strongly Agree 1812.611.28 Indicate any comments from the patient 190 I had enough time to think through what they told me I had enough time to think through what they told me : Strongly Disagree | | Strongly Agree 18333.666.77 They asked me to ask questions They asked me to ask questions : Strongly Disagree | | Strongly Agree 19255.5123.59 I was well taken care of I was well taken care of : Strongly Disagree | | Strongly Agree 19296.6816.04 Complete? 0 Incomplete58mui_complete 1 Unverified91mui_complete 2 Complete43mui_complete 192 194 how many days a week has it taken you more than 30 minutes to fall asleep after the light was switched off? how many days a week has it taken you more than 30 minutes to fall asleep after the light was switched off? : 19499.0423.93 How many days a week have you been awake for more than 30 minutes between periods of sleep? How many days a week have you been awake for more than 30 minutes between periods of sleep? : 17994.5716.71 How many days a week have you awakened more than 30 minutes earlier than you wished without managing to fall asleep again? How many days a week have you awakened more than 30 minutes earlier than you wished without managing to fall asleep again? : 19014.615.24 How many days a week have you felt that you have not had enough rest after waking up? How many days a week have you felt that you have not had enough rest after waking up? : 1811.910.99 How many days a week have you been so sleep/tired that it has affected you at school/work or in your private life? How many days a week have you been so sleep/tired that it has affected you at school/work or in your private life? : 19664.1423.35 How many days a week have you been dissatisfied with your sleep? How many days a week have you been dissatisfied with your sleep? : 1922.561.21 Complete? 0 Incomplete3bergen_insomnia_scale_complete 1 Unverified124bergen_insomnia_scale_complete 2 Complete63bergen_insomnia_scale_complete 190 177 I experience changes in sweating (decreased or increased sweating). 0 never80sweatingchanges 1 sometimes91sweatingchanges 2 often10sweatingchanges 3 always9sweatingchanges 190 I have sudden diarrhea. 0 never57suddendiarrhea 1 sometimes23suddendiarrhea 2 often32suddendiarrhea 3 always71suddendiarrhea 183 I have constipation. 0 never52constipationsfn 1 sometimes27constipationsfn 2 often77constipationsfn 3 always33constipationsfn 189 I have urination problems (incontinence or hesitancy). 0 never50urinationproblems 1 sometimes65urinationproblems 2 often57urinationproblems 3 always7urinationproblems 179 I have dry eyes 0 never49dryeyes 1 sometimes66dryeyes 2 often71dryeyes 3 always8dryeyes 194 I have a dry mouth. 0 never68drymouthsfn 1 sometimes48drymouthsfn 2 often73drymouthsfn 3 always8drymouthsfn 197 I experience dizziness when standing up from a sitting or lying position. 0 never18dizzinesssfn 1 sometimes67dizzinesssfn 2 often51dizzinesssfn 3 always42dizzinesssfn 178 I have palpitations. 0 never57palpitationssfn 1 sometimes24palpitationssfn 2 often44palpitationssfn 3 always54palpitationssfn 179 I become flushed. 0 never3flushedsfn 1 sometimes33flushedsfn 2 often22flushedsfn 3 always129flushedsfn 187 The skin on my legs is extremely sensitive. 0 never24legskinsensitive 1 sometimes45legskinsensitive 2 often44legskinsensitive 3 always66legskinsensitive 179 I have a burning sensation on my feet. 0 never30burningsensationfeet 1 sometimes66burningsensationfeet 2 often12burningsensationfeet 3 always86burningsensationfeet 194 I cannot stand the sheets on my legs. 0 never102legsheets 1 sometimes47legsheets 2 often13legsheets 3 always31legsheets 193 My legs are restless during the night. 0 never53nightrestlesslegs 1 sometimes65nightrestlesslegs 2 often26nightrestlesslegs 3 always52nightrestlesslegs 196 Complete? 0 Incomplete61sfnsiq_complete 1 Unverified74sfnsiq_complete 2 Complete42sfnsiq_complete 177 194 If you have felt tired, approximately how long has it lasted? 1 less than one week19tired_last 2 less than three months58tired_last 3 between three and six months37tired_last 4 six months or more76tired_last 190 If you feel tired currently, approximately how much of the time do you feel tired? 1 25% of the time79time_tired 2 50% of the time10time_tired 3 75% of the time17time_tired 4 all the time78time_tired 184 Do you have problems with tiredness? 0 Less than usual82tirednessproblems 1 No more than usual27tirednessproblems 2 More than usual1tirednessproblems 3 Much more than usual79tirednessproblems 189 Do you need to rest more? 0 Less than usual17needmorerest 1 No more than usual14needmorerest 2 More than usual67needmorerest 3 Much more than usual87needmorerest 185 Do you feel sleepy or drowsy? 0 Less than usual5sleepyfeeling 1 No more than usual60sleepyfeeling 2 More than usual15sleepyfeeling 3 Much more than usual100sleepyfeeling 180 Do you have problems starting things? 0 Less than usual2problemstartingthings 1 No more than usual41problemstartingthings 2 More than usual76problemstartingthings 3 Much more than usual70problemstartingthings 189 Do you lack energy? 0 Less than usual84energylackchalderfatigue 1 No more than usual25energylackchalderfatigue 2 More than usual55energylackchalderfatigue 3 Much more than usual20energylackchalderfatigue 184 Do you have less strength in your muscles? 0 Less than usual32lessstrongmuscles 1 No more than usual37lessstrongmuscles 2 More than usual59lessstrongmuscles 3 Much more than usual64lessstrongmuscles 192 Do you feel weak? 0 Less than usual28weakfeelingchalderfatigue 1 No more than usual27weakfeelingchalderfatigue 2 More than usual68weakfeelingchalderfatigue 3 Much more than usual65weakfeelingchalderfatigue 188 Do you have difficulties concentrating? 0 Less than usual18difficultiesconcentrating 1 No more than usual1difficultiesconcentrating 2 More than usual52difficultiesconcentrating 3 Much more than usual109difficultiesconcentrating 180 Do you make slips of the tongue when speaking? 0 Less than usual36tongueslips 1 No more than usual35tongueslips 2 More than usual65tongueslips 3 Much more than usual51tongueslips 187 Do you find it more difficult to find the right word? 0 Less than usual34difficultyfindrightword 1 No more than usual99difficultyfindrightword 2 More than usual21difficultyfindrightword 3 Much more than usual32difficultyfindrightword 186 How is your memory? 0 Better than usual27memorycurrentsituation 1 No worse than usual64memorycurrentsituation 2 Worse than usual44memorycurrentsituation 3 Much worse than usual52memorycurrentsituation 187 Complete? 0 Incomplete44chalder_fatigue_scale_complete 1 Unverified37chalder_fatigue_scale_complete 2 Complete103chalder_fatigue_scale_complete 184 195 Date of submission 194 Age (years) 1943.662.06 Height (cm) 18344.416.76 Weight (kg) 19067.623.48 Are there any comorbidities? yes Yes57comorbidities no No61comorbidities not_available Not available, non-applicable67comorbidities 185 Have you or have you had Hypertension? [comorbidities_general]="yes" yes Yes68hypertension_19bcb6 no No57hypertension_19bcb6 not_available Not available, non-applicable71hypertension_19bcb6 196 Have you or have you had Kidney disease? [comorbidities_general]="yes" yes Yes61kidney_4be0b7 no No89kidney_4be0b7 not_available Not available, non-applicable40kidney_4be0b7 190 Have you or have you had Diabetes? [comorbidities_general]="yes" yes Yes72diabetes_efb36a no No109diabetes_efb36a not_available Not available, non-applicable13diabetes_efb36a 194 Have you or have you had Rheumatic Diseases? [comorbidities_general]="yes" yes Yes24rheumatic_diseases_e0a7db no No86rheumatic_diseases_e0a7db not_available Not available, non-applicable78rheumatic_diseases_e0a7db 188 Do you take glycocorticoid therapy? [comorbidities_general]="yes" yes Yes38glycocorticoid no No70glycocorticoid not_available Not available, non-applicable89glycocorticoid 197 Have you been diagnosed with muscle and skeletal problems [comorbidities_general]="yes" yes Yes17muscleskeletalproblems no No37muscleskeletalproblems not_available Not available, non-applicable123muscleskeletalproblems 177 Have you or have you had Osteopenia? [comorbidities_general]="yes" yes Yes41osteopenia_48896c no No69osteopenia_48896c not_available Not available, non-applicable85osteopenia_48896c 195 Have you or have you had Osteoporosis? [comorbidities_general]="yes" yes Yes18osteoporosis_b47590 no No118osteoporosis_b47590 not_available Not available, non-applicable57osteoporosis_b47590 193 Has anyone in your family had Osteopenia or Osteoporosis? [comorbidities_general]="yes" yes Yes18familyosteoporosis_307245 no No140familyosteoporosis_307245 not_available Not available, non-applicable21familyosteoporosis_307245 179 Did you have a fracture during the last year? [comorbidities_general]="yes" yes Yes91fracture_745d66 no No60fracture_745d66 not_available Not available, non-applicable40fracture_745d66 191 Do you have any bone health problem? [comorbidities_general]="yes" yes Yes43boneproblem no No40boneproblem not_available Not available, non-applicable108boneproblem 191 If yes (to the previous question) descibe it. [boneproblem]=1 187 Have you been diagnosed with thyroid disease yes Yes78thyroiddisease no No62thyroiddisease not_available Not available, non-applicable42thyroiddisease 182 What type of thyroid disease? hyperparathyroidism Hyperparathyroidism31thyroiddiseasetype hyperthyroidism hyperthyroidism53thyroiddiseasetype hypoparathyroidism Hypoparathyroidism13thyroiddiseasetype hypophysitis Hypophysitis22thyroiddiseasetype hypopituitarism Hypopituitarism10thyroiddiseasetype hypothyroidism hypothyroidism35thyroiddiseasetype not_available Non-applicable/Not available23thyroiddiseasetype 187 Do you drink alcohol? yes Yes0alcoholhistory no No0alcoholhistory not_available Not available, non-applicable0alcoholhistory 0 Units per week [alcoholhistory]=1 18345.5110.20 Do you smoke? yes Yes0smoke no No0smoke not_available Not available, non-applicable0smoke 0 Number daily [smoke]=1 18575.4820.22 Do you use drugs? yes Yes85druguse no No57druguse not_available Not available, non-applicable38druguse 180 Which drugs? [druguse]=1 180 Do you use vitamin supplements? yes Yes58vitsups no No70vitsups not_available Not available, non-applicable64vitsups 192 Which ones? [vitsups]=1 195 Are you premenopausal? yes Yes70period no No51period not_available Not available, non-applicable67period 188 Are you postmenopausal? yes Yes79postmenopausal no No50postmenopausal not_available Not available, non-applicable57postmenopausal 186 Number of pregnancies 18431.233.04 Number of births 19339.4612.36 Do you use IUDs? [numberbirths]>1 yes Yes24useiuds no No80useiuds not_available Not available, non-applicable86useiuds 190 Other hormonal prevention? [numberbirths]>2 yes Yes86otherhormonalprevention no No75otherhormonalprevention not_available Not available, non-applicable21otherhormonalprevention 182 Are you using hormone supplements now in connection with menopause? [period_general]="no" yes Yes49hormonesupsmenopause no No68hormonesupsmenopause not_available Not available, non-applicable74hormonesupsmenopause 191 Which ones? [hormonesupsmenopause]=1 183 Have you used hormone supplements in connection with menopause? [period_general]="no" yes Yes59hormonesupsmenopausepast no No57hormonesupsmenopausepast not_available Not available, non-applicable78hormonesupsmenopausepast 194 Which ones? [hormonesupsmenopausepast_general]="yes" 191 How many years? [hormonesupsmenopausepast_general]="yes" 17956.9719.90 Have you been hospitalized and treated for another illness in the past year? yes Yes50otherillnesspastyear no No98otherillnesspastyear not_available Not available, non-applicable30otherillnesspastyear 178 Please, specify. [otherillnesspastyear]=1 192 Did you have pain in the upper back during last 30 days? 0 Not bothered36upperbackpainlastmonth 1 Slightly bothered17upperbackpainlastmonth 2 Some bothered33upperbackpainlastmonth 3 Severely bothered61upperbackpainlastmonth 4 Not available/ Non-applicable33upperbackpainlastmonth 180 Did you have low back pain during last 30 days? 0 Not bothered33lowbackpainlastmonth 1 Slightly bothered59lowbackpainlastmonth 2 Some bothered6lowbackpainlastmonth 3 Severely bothered49lowbackpainlastmonth 4 Not available/ Non-applicable44lowbackpainlastmonth 191 Did you have hot flashes during last 30 days? 0 Not bothered27hotflasheslastmonth 1 Slightly bothered21hotflasheslastmonth 2 Some bothered47hotflasheslastmonth 3 Severely bothered25hotflasheslastmonth 4 Not available/ Non-applicable58hotflasheslastmonth 178 Did you have sleep problems during last 30 days? 0 Not bothered13sleepproblemslastmonth 1 Slightly bothered44sleepproblemslastmonth 2 Some bothered41sleepproblemslastmonth 3 Severely bothered50sleepproblemslastmonth 4 Not available/ Non-applicable36sleepproblemslastmonth 184 Did you have fatigue during last 30 days? 0 Not bothered29fatiguelastmonth 1 Slightly bothered42fatiguelastmonth 2 Some bothered42fatiguelastmonth 3 Severely bothered12fatiguelastmonth 4 Not available/ Non-applicable71fatiguelastmonth 196 Did you have anxiety during last 30 days? 0 Not bothered12anxietylastmonth 1 Slightly bothered64anxietylastmonth 2 Some bothered19anxietylastmonth 3 Severely bothered37anxietylastmonth 4 Not available/ Non-applicable62anxietylastmonth 194 Did you feel depressed during last 30 days? 0 Not bothered15depressionlastmonth 1 Slightly bothered83depressionlastmonth 2 Some bothered46depressionlastmonth 3 Severely bothered6depressionlastmonth 4 Not available/ Non-applicable30depressionlastmonth 180 Did you contract Covid-19? yes Yes26covid19infected no No72covid19infected not_available Not available, non-applicable83covid19infected 181 Have you been vaccinated? yes Yes70covid19vaccinated no No81covid19vaccinated not_available Not available, non-applicable38covid19vaccinated 189 Do you take any medication? yes Yes9anymedication no No93anymedication not_available Not available, non-applicable89anymedication 191 Specify the medication category. [anymedication] = 1 antidepressants antidepressants20 bloodpressure blood pressure medications25 statins-fibrates statins and fibrates13 protonpumpinhibitors proton pump inhibitors14 benzodiazepines benzodiazepines17 antipsychotics antipsychotics25 antibiotics antibiotics24 diuretics diuretics2 other other27 not_available Non-applicable/Not available18 185 Specify the medication. [anymedication]=1 179 Complete? 0 Incomplete36history_complete 1 Unverified85history_complete 2 Complete73history_complete 194 187 Profession 187 E-mail 181 Date of birth 192 Ethnicity 1 European6ethnicity 2 African74ethnicity 3 Asian97ethnicity 4 Other1ethnicity 178 Country of residence. 182 Gender 0 Female53gender 1 Male23gender 2 Other53gender 3 Prefer not to say48gender 177 Highest completed education. primary Primary School,14highesteducationform_general_2 upper High School77highesteducationform_general_2 college College/University (3 years)22highesteducationform_general_2 bachelor College/University (more than 3 years)53highesteducationform_general_2 not_available Not available20highesteducationform_general_2 186 What is your current gross income (before tax)? 0 Less than 200,00011gross_income_2 1 200,000-399,99925gross_income_2 2 400,000-599,99920gross_income_2 3 600,000-799,99944gross_income_2 4 800,000 or more14gross_income_2 5 Do not want to answer40gross_income_2 6 Not available43gross_income_2 197 Can you provide us this information for your country? 0 What is your current gross household income (before tax)? 0 Less than 400,00038gross_household_income_2 1 400,000-799,99933gross_household_income_2 2 800,000-1,199,99928gross_household_income_2 3 1,200,000-1,599,9991gross_household_income_2 4 1,600,000 or more21gross_household_income_2 5 Do not want to answer7gross_household_income_2 6 Not available53gross_household_income_2 181 Can you provide us this information for your country? 192 Family structure single single19familystructure coupled married/in relationship170familystructure 189 Number of children. 18888.223.43 Employment percentage of full time. 1 0%-25%60employmentpercentquantiles 2 26%-50%63employmentpercentquantiles 3 51%-75%6employmentpercentquantiles 4 75%-100%52employmentpercentquantiles 181 Do you have any acquaintances who have died of breast cancer? family Family21acquaintancebcdeath friends Close Friends34acquaintancebcdeath colleagues-acquaintances Colleagues / Acquaintances29acquaintancebcdeath family-friend Family and close friend7acquaintancebcdeath family-colleague Family and Colleagues / Acquaintances19acquaintancebcdeath friend-colleague Close friend and colleague32acquaintancebcdeath other Other40acquaintancebcdeath 182 Income. 180 Comments 180 Complete? 0 Incomplete95demographics_complete 1 Unverified45demographics_complete 2 Complete55demographics_complete 195 184 Decision date for well-founded suspicion of cancer 179 Diagnosis date. 196 Age at diagnosis 19629.2114.69 Date 1st visit in specialized care 0 Detected in screening no No39screendetected yes Yes112screendetected notavailable Not available35screendetected 186 Preoperatively determined malignancy no No6malignacy yes Yes93malignacy notavailable Not available98malignacy 197 Diagnostic basis clinicalexam Clinical examination24diagnosticbasis xray X-ray63diagnosticbasis pad PAD-verified diagnosis6diagnosticbasis cytologicalexam Cytological examination86diagnosticbasis not_available Not available, Non-applicable1diagnosticbasis 180 Menstrual status at diagnosis pre Premenopause (< 6 months after last menstruation)10menstrualstatus post >662menstrualstatus uncertain uncertain41menstrualstatus missing missing(for men)26menstrualstatus not_available Not available, Non-applicable48menstrualstatus 187 T-Classification 1 T02tclass 2 Tis5tclass 3 T117tclass 4 T22tclass 5 T33tclass 6 T4a49tclass 7 T4b31tclass 8 TX39tclass 9 Not available, Non-applicable31tclass 179 N-Classification 1 N07nclass 2 N144nclass 3 N250nclass 4 N322nclass 5 NX25nclass 6 Not available, Non-applicable41nclass 189 M-Classification Remote metastases m0 M0: no known metastases63mclass m1 M1:known45mclass not_available Not available, Non-applicable73mclass 181 Invasivity 1 Invasive6invasivity 2 CIS58invasivity 3 No assessment60invasivity 4 Microinvasive tumor69invasivity not_available Not available, Non-applicable4invasivity 197 Type of invasive cancer [tnm_general(cTNM)]='1' ductal Ductal cancer only10invasivecancertype ductal_lobular Both ductal and lobular cancer51invasivecancertype ductal_non_lobular Ductal and non-lobular cancer5invasivecancertype lobular Lobular cancer only56invasivecancertype other Other invasive cancers54invasivecancertype not_available Not available, Non-applicable14invasivecancertype 190 What other invasive cancer. [invasivecancertype]=5 mucinous Mucinous carcinoma0otherinvasivecancer tubulary tubulary carcinoma0otherinvasivecancer papillary papillary carcinoma0otherinvasivecancer adenoid adenoid cystic carcinoma0otherinvasivecancer micropapillary micropapillary carcinoma0otherinvasivecancer secretory secretory carcinoma0otherinvasivecancer apocrine apocrine carcinoma0otherinvasivecancer mbpaget Mb Paget0otherinvasivecancer not_available Not available, Non-applicable0otherinvasivecancer 0 ER status immunohistochemistry [tnm_general(cTNM)]='1' positive Positive(>10%)12erstatus negative Negative(< 10%)70erstatus notperformed Not performed38erstatus notassessable Not assessable / information missing57erstatus 177 ER_Percentage [tnm_general(cTNM)]='1' 18237.8214.93 ER_Comment [tnm_general(cTNM)]='1' 180 PgR status immunohistochemistry [tnm_general(cTNM)]='1' positive Positive(>10%)39prgstatus negative Negative(< 10%)49prgstatus notperformed Not performed59prgstatus notassessable Not assessable / information missing30prgstatus 177 PgR_Percentage [tnm_general(cTNM)]='1' 1978.632.42 HER2 [tnm_general(cTNM)]='1' 1 0-1+58her2invasive 2 2+12her2invasive 3 3+10her2invasive 4 Not performed52her2invasive 5 Not assessable / information missing60her2invasive 192 PgR_Comment [tnm_general(cTNM)]='1' 180 HER2 ISH analysis [tnm_general(cTNM)]='1' notamplified Not amplified1her2ishanalysisinv notperformed Not performed190her2ishanalysisinv notassessable Not assessable / information missing2her2ishanalysisinv 193 HER2_IHC [tnm_general(cTNM)]='1' 1 0-1+0her2ihc 2 2+0her2ihc 3 3+0her2ihc 4 Not performed0her2ihc 5 Not assessable / information missing0her2ihc 0 HER2_FISH [tnm_general(cTNM)]='1' positive Positive17her2fish negative Negative88her2fish notperformed Not performed3her2fish notassessable Not assessable / information missing73her2fish 181 MAI [tnm_general(cTNM)]='1' 19742.527.16 PPH3 [tnm_general(cTNM)]='1' 18727.851.16 CK5_6 [tnm_general(cTNM)]='1' negative Negative89ck56 positive Positive7ck56 highly_positive Highly Positive30ck56 not_available Not available, Non-applicable67ck56 193 Reason for no surgery or remote metastasis at diagnosis. [tnm_general(cTNM)]='1' locallyadvanced Locally advanced disease0surgerymetastasisreason metastatic metastatic disease0surgerymetastasisreason other Another reason0surgerymetastasisreason not_available Not available, Non-applicable0surgerymetastasisreason 0 Number of lesions in the chest [tnm_general(cTNM)]='1' 1 158chestlesions 2 252chestlesions 3 321chestlesions 4 46chestlesions 5 >430chestlesions 6 not available24chestlesions 191 Size for largest lesion (mm). [tnm_general(cTNM)]='1' 18674.226.06 Type of CIS [invasivity]=2 dcis DCIS50cistype lcis LCIS39cistype dcis_lcis DCIS and LCIS37cistype other Other cancer in situ27cistype not_available Not available, Non-applicable39cistype 192 Other type of CIS [cistype]=4 190 Extent of cancer in situ [invasivity]=2 0 Histological degree (invasive) or nuclear type (cancer in situ) [invasivity]=1 or [invasivity]=2 1 Grade 150situcancerdegree 2 Grade 252situcancerdegree 3 Grade 357situcancerdegree 4 Not performed0situcancerdegree 5 Not assessable / information missing38situcancerdegree 197 ER status immunohistochemistry [invasivity]=2 positive Positive(>10%)15erstatus_2 negative Negative(< 10%)72erstatus_2 notperformed Not performed32erstatus_2 notassessable Not assessable / information missing67erstatus_2 186 PgR status immunohistochemistry [invasivity]=2 positive Positive(>10%)50prgstatus_2 negative Negative(< 10%)7prgstatus_2 notperformed Not performed63prgstatus_2 notassessable Not assessable / information missing61prgstatus_2 181 HER2 immunohistochemistry. [invasivity]=2 1 0-1+30her2cis 2 2+48her2cis 3 3+38her2cis 4 Not performed32her2cis 5 Not assessable / information missing40her2cis 188 HER2 ISH analysis. [invasivity]=2 notamplified Not amplified57her2ishanalysiscis notperformed Not performed43her2ishanalysiscis notassessable Not assessable / information missing95her2ishanalysiscis 195 Ki67 status [invasivity]=2 low Low48ki67status intermediate Intermediate52ki67status high High21ki67status notperformed Not performed46ki67status notassessable Not assessable / information missing18ki67status 185 Number of SLNs removed 1848.391.05 Metastasis in SLN no No32slnmetastasis yes Yes32slnmetastasis not_available Not available, non-applicable131slnmetastasis 195 Number of SLNs with macrometastases (> 2mm) [slnmetastasis]=2 18054.0624.12 Number of SLNs with micrometastases [slnmetastasis]=2 18646.8720.83 Total number examined lymph nodes from all axillary engagement 18682.8117.42 Total number of lymph nodes with metastasis (> 0.2 mm) from all axillary procedures 0 Remote metastasis detection within three months from sampling date (diagnosis date). 187 Side right Right105side left Left42side both Both breasts5side not_available Not available, non-applicable32side 184 Is there postoperative loco-regional recurrence / distant metastases no No7distantmetastases yes Yes83distantmetastases notavailable Data not available92distantmetastases 182 Loco-regional recurrence none None15locoregionalrecurrence chest Chest/chest wall16locoregionalrecurrence shoulder Shoulder125locoregionalrecurrence parasternal Parasternal / supraclavicular / infraclavicular on the operated side19locoregionalrecurrence not_available Not available, non-applicable9locoregionalrecurrence 184 Side for which recurrence was detected [locoregionalrecurrence] != 1 right Right19recurrentside left Left114recurrentside not_available Not available, non-applicable51recurrentside 184 Date of 1st discovery (Chest / chest wall) 197 Recurrence on axillary lymph nodes on the operated side no No47lympnodesoperated yes Yes145lympnodesoperated not_available Not available, non-applicable3lympnodesoperated 195 Date of 1st discovery (for axillary lymph nodes) 197 Recurrence in lymph nodes in parasternal / supraclavicular / infraclavicular region on the operated side. no No10lympnodesoperatedparasternal yes Yes88lympnodesoperatedparasternal not_available Not available, non-applicable83lympnodesoperatedparasternal 181 Discovery of remote metastasis? no No7remotemetastasis yes Yes126remotemetastasis not_available Not available, non-applicable58remotemetastasis 191 Date of discovery of the 1st remote metastasis [remotemetastasis]=1 192 Localization of the 1st remote metastasis. brain Brain0firstmetastasislocation lung Lung / lung sac0firstmetastasislocation abdomen Abdomen / abdominal wall0firstmetastasislocation liver Liver0firstmetastasislocation skeleton Skeleton0firstmetastasislocation other Other location0firstmetastasislocation not_available Not available, non-applicable0firstmetastasislocation 0 Diagnosis for metastasis inf-medullary Infiltrating Medullary Carcinoma11metastasisdiagnosis ductal-cis Ductal Carcinoma in situ29metastasisdiagnosis inf-ductal Infiltrating Ductal Carcinoma9metastasisdiagnosis inf-lobular Infiltrating Lobular Carcinoma14metastasisdiagnosis inf-mucinous Infiltrating Mucinous Carcinoma5metastasisdiagnosis inf-papillary Infiltrating Papillary Carcinoma19metastasisdiagnosis lobular-cis Lobular Carcinoma in situ19metastasisdiagnosis lobular-ductal Lobular ductal carcinoma20metastasisdiagnosis inf-carcinoma Infiltrating Carcinoma15metastasisdiagnosis other Other27metastasisdiagnosis not_available Not available, non-applicable14metastasisdiagnosis 182 Diagnosis_comment 189 Comment_patient 183 pT noevidence No evidence of primary tumor8pt pta pTa (>0.1cm ≤ 0,5cm)31pt pt1b pT1b (>0.5cm ≤ 1.0cm)17pt pt1c pT1c (>1.0cm ≤ 2.0cm)1pt pt2 pT2 (>2.0cm ≤ 5.0cm)12pt pt3 pT3 (>5.0cm)22pt pt4a pT4a (Extension to chest wall, not including only pectoralis muscle adherence/invasion)15pt pt4b pT4b (Ulceration and/or ipsilateral satellite nodules and/or edema of the skin)24pt pt4c pT4c (Both T4a and T4b)11pt pt4d pT4d (Inflammatory carcinoma)17pt pt1mi pT1mi (≤0.1cm (microinvasion)9pt ptis pTis (Ductal Carcinoma in situ)8pt missinginfo Missing information0pt not_available Not available, non-applicable18pt 193 Complete? 0 Incomplete92tumorinformation_complete 1 Unverified80tumorinformation_complete 2 Complete5tumorinformation_complete 177 193 Date of first treatment 195 Participation in clinical studies yes Yes18clinicalstudiespart no No117clinicalstudiespart notavailable Not Available47clinicalstudiespart 182 Details about clinical study 178 Planned action. primary-operation Primary Operation55plannedaction preoperative-onco-treat Preoperative oncological treatment or conservative treatment93plannedaction nosurgery No surgery or remote metastasis at diagnosis36plannedaction 184 Investigation of oncological treatment yes Yes21oncotreatment no No68oncotreatment notavailable Not Available93oncotreatment 182 Reason for no oncological treatment [oncotreatment]=1 age Age2whynooncotreatment comorbidity Comorbodity49whynooncotreatment poor-condition Poor general condition66whynooncotreatment poor-tolerance Poor tolerance for initiated treatment39whynooncotreatment patient-wish Patient's wish39whynooncotreatment 195 No investigation of surgical treatment yes Yes138nosurgicaltreatment no No45nosurgicaltreatment notavailable Not Available9nosurgicaltreatment 192 No further follow-up yes Yes58nofollowup no No138nofollowup notavailable Not Available0nofollowup 196 Reasons for no further follow-up [nofollowup]=1 change-region Moving to another region112whynofollowup change-country Moving to another country47whynofollowup patient-wish Patient's wish24whynofollowup 183 Specify oncological treatment chemotherapy Chemotherapy11oncotreatmenttype radiation Radiation therapy26oncotreatmenttype endocrine Endocrine treatment125oncotreatmenttype antibody Antibody treatment25oncotreatmenttype 187 Type of operation (if any). primary-surgery Primary surgery92operationtype surgery-after-onco-treat Surgery after commenced / completed preoperative oncological treatment101operationtype 193 Operating date 1st: the procedure 189 Breast_concervation_1 1 Yes129breastconcervation 0 No58breastconcervation 187 Mastectomy_1 1 Yes86mastectomy1 0 No104mastectomy1 190 Axille_Dissection_1 1 Yes102dissection1 0 No80dissection1 182 Reresection_1 1 Yes153reresection1 0 No43reresection1 196 Breast_concervation_2 1 Yes62breastconcervation2 0 No120breastconcervation2 182 Mastectomy_2 1 Yes80masectomy2 0 No102masectomy2 182 Axille_Dissection_2 1 Yes100dissection2 0 No89dissection2 189 Reresection_2 1 Yes72reresection2 0 No110reresection2 182 End result of breast surgery. partial-mastectomy Partial mastectomy75breastsurgeryresult mastectomy2 Mastectomy13breastsurgeryresult nosurgery No breast surgery58breastsurgeryresult subcutaneous-mastectomy Subcutaneous mastectomy with preservation of areola / mammary gland38breastsurgeryresult 184 Oncoplastic surgery no No91oncoplasticsurgery yes Yes16oncoplasticsurgery notavailable Data not available81oncoplasticsurgery 188 Axillary engagement (SN and / or evacuation) no No134axillaryengagement yes Yes61axillaryengagement notavailable Data not available2axillaryengagement 197 End result axillary intervention sn SN (PJA10) only33axillaryinterventionresult evacuation Evacuation only (PJD42)74axillaryinterventionresult sn-evacuation SN and evacuation (PJA10 + PJD42)68axillaryinterventionresult notavailable Data not available4axillaryinterventionresult 179 Complementary breast surgery performed in a second session no No79surgerysecondsession yes Yes72surgerysecondsession notavailable Data not available39surgerysecondsession 190 Complementary axillary procedure performed in a second session no No37axillarysurgsecondsessiom yes Yes81axillarysurgsecondsessiom notavailable Data not available76axillarysurgsecondsessiom 194 Number of complementary breast surgery and / or axill which are made due to tumor data. 18417.100.70 Date of oncology therapeutic recommendation. 186 Date of 1st postoperative PAD information to patient. 0 Planned postoperative oncological treatment. no No22postoncoplanned yes Yes49postoncoplanned notavailable Data not available109postoncoplanned 180 No postoperative oncological treatment. no No81nopostonco yes Yes84nopostonco notavailable Data not available29nopostonco 194 Start date first cure 192 FEC 1 Yes162fec 0 No28fec 190 EC 1 Yes26ec 0 No156ec 182 When did the FEC or EC treatment Start? 190 When did the FEC or EC treatment End? 194 Treatment anthracycline Anthracycline based42ecthreatmenttype docetaxel Docetaxel14ecthreatmenttype paclitaxel Paclitaxel54ecthreatmenttype other Other76ecthreatmenttype 186 Did the patient receive Taxotere treatment? 1 Yes82taxotere 0 No96taxotere 178 Did the patient receive Herceptin treatment? 1 Yes148herceptin 0 No49herceptin 197 When did the Herceptin treatment Start? [herceptin_general]="yes" 0 When did the Herceptin treatment End? [herceptin_general]="yes" 186 Treatment completed according to plan no No105completedtreatment yes Yes38completedtreatment notavailable Data not available49completedtreatment 192 Reason for interruption / change [completedtreatment]=1 side-effects Side effects21changereason other Other123changereason notavailable Data not available41changereason 185 Inpatient care due to treatment complications no No53inpatientcare yes Yes12inpatientcare notavailable Data not available123inpatientcare 188 Radiation therapy 1 Yes146radiation 0 No39radiation 185 Start date, first dose [radiation_general]="yes" 180 Target [radiation_general]="yes" chest Chest / chest wall69dosetarget axill Axill36dosetarget supraclavicular Supraclavicular fossa64dosetarget parasternal Parasternal area19dosetarget 188 Total excl. Boost 1 Yes126boost 0 No63boost 189 Boost doses [boost]=1 192 Endocrine treatment 1 Yes158endocrine 0 No26endocrine 184 Start date first cure [endocrine_general]="yes" 178 Treatment [endocrine_general]="yes" tamoxifen Tamoxifen70endocrinetreatmenttype gnrh-agonist GnRH agonist59endocrinetreatmenttype aromatase-inhibitor Aromatase inhibitor54endocrinetreatmenttype other Other10endocrinetreatmenttype 193 What type of hormonal treatment did the patient receive after change? [endocrine_general]="yes" none None114changedtreatmenttype aromatase-inhibitor Aromatase inhibitor20changedtreatmenttype tamoxifen Tamoxifen25changedtreatmenttype other Other type23changedtreatmenttype 182 Specify the period the treament was received (in months). [endocrine_general]="yes" 0 Antibody treatment 1 Yes38antibody 0 No152antibody 190 Start date of antibody treatment [antibody_general]="yes" 196 Treatment [antibody_general]="yes" trastuzumab Trastuzumab14antibodytreattype pertuzumab Pertuzumab83antibodytreattype other Other82antibodytreattype 179 Bisphosphonates 1 Yes67bisph 0 No126bisph 193 Did the patient receive bisphosphate/zoledronic acid? 1 Yes85zometa 0 No111zometa 196 Relapse status. locoregional Locoregional6relapsestatus contralateral Contralateral22relapsestatus sceletal Sceletal29relapsestatus visceral Visceral36relapsestatus cerebral Cerebral34relapsestatus central-neck-nodes Central neck nodes21relapsestatus multiple multiple3relapsestatus norelapse No relapse10relapsestatus unknown unknown20relapsestatus 181 Date_death_or_last_FU 190 What other medicine does the patient take? 197 What co malignancy does the patient have 196 Complete? 0 Incomplete16treatment_complete 1 Unverified116treatment_complete 2 Complete60treatment_complete 192 189 Do you sometimes forget to take your breast cancer medication? 1 Yes0forgetmed 0 No0forgetmed 0 How often do you have trouble remembering to take all your medicines? 0 Never70troubleremtakemed 1 Occasionally5troubleremtakemed 2 Sometimes48troubleremtakemed 3 Usually27troubleremtakemed 4 Always37troubleremtakemed 187 Complete? 0 Incomplete110compliance_complete 1 Unverified40compliance_complete 2 Complete37compliance_complete 187 180 Did you have a dry mouth? 1 Not at all11drymouth 2 A little76drymouth 3 Quite a bit34drymouth 4 Very much63drymouth 184 Did food and drink taste different than usual? 1 Not at all57taste 2 A little9taste 3 Quite a bit40taste 4 Very much84taste 190 Were your eyes painful, irritated or watery? 1 Not at all50eyes 2 A little56eyes 3 Quite a bit53eyes 4 Very much33eyes 192 Have you lost any hair? 1 Not at all55hairloss 2 A little31hairloss 3 Quite a bit60hairloss 4 Very much40hairloss 186 [Answer this question only if you had any hair loss:] During the past week, were you upset by the loss of your hair? [hairloss]!=1 1 Not at all17upsethairloss 2 A little72upsethairloss 3 Quite a bit72upsethairloss 4 Very much21upsethairloss 182 Did you feel ill or unwell? 1 Not at all58ill 2 A little22ill 3 Quite a bit67ill 4 Very much41ill 188 Did you have hot flushes? 1 Not at all66hotflushes 2 A little24hotflushes 3 Quite a bit47hotflushes 4 Very much43hotflushes 180 Did you have headaches? 1 Not at all57headaches_927277 2 A little34headaches_927277 3 Quite a bit15headaches_927277 4 Very much86headaches_927277 192 Have you felt physically less attractive as a result of your disease or treatment? 1 Not at all37feellessattractive 2 A little50feellessattractive 3 Quite a bit20feellessattractive 4 Very much72feellessattractive 179 Have you been feeling less feminine as a result of your disease or treatment? 1 Not at all60feellessfeminine 2 A little63feellessfeminine 3 Quite a bit24feellessfeminine 4 Very much37feellessfeminine 184 Did you find it difficult to look at yourself naked? 1 Not at all0seenakedself 2 A little0seenakedself 3 Quite a bit0seenakedself 4 Very much0seenakedself 0 Have you been dissatisfied with your body? 1 Not at all54bodydissatisfaction 2 A little15bodydissatisfaction 3 Quite a bit19bodydissatisfaction 4 Very much89bodydissatisfaction 177 Were you worried about your health in the future? 1 Not at all59futurehealthworry 2 A little22futurehealthworry 3 Quite a bit69futurehealthworry 4 Very much46futurehealthworry 196 To what extent were you interested in sex? 1 Not at all88sexinterest 2 A little48sexinterest 3 Quite a bit22sexinterest 4 Very much31sexinterest 189 To what extent were you sexually active? (with or without intercourse) 1 Not at all47sexuallyactive 2 A little12sexuallyactive 3 Quite a bit60sexuallyactive 4 Very much77sexuallyactive 196 [Answer this question only if you have been sexually active:] To what extent was sex enjoyable for you? [sexuallyactive]!=1 1 Not at all50enjoysex 2 A little53enjoysex 3 Quite a bit25enjoysex 4 Very much60enjoysex 188 Did you have any pain in your arm or shoulder? 1 Not at all68armpain 2 A little44armpain 3 Quite a bit58armpain 4 Very much17armpain 187 Did you have a swollen arm or hand? 1 Not at all28swollenarm 2 A little14swollenarm 3 Quite a bit72swollenarm 4 Very much83swollenarm 197 Was it difficult to raise your arm or to move it sideways? 1 Not at all90raisearm 2 A little71raisearm 3 Quite a bit30raisearm 4 Very much5raisearm 196 Have you had any pain in the area of your affected breast? 1 Not at all44breastpain 2 A little71breastpain 3 Quite a bit66breastpain 4 Very much5breastpain 186 Was the area of your affected breast swollen? 1 Not at all63breastswollen 2 A little26breastswollen 3 Quite a bit54breastswollen 4 Very much52breastswollen 195 Was the area of your affected breast oversensitive? 1 Not at all60breastoversensitive 2 A little44breastoversensitive 3 Quite a bit33breastoversensitive 4 Very much55breastoversensitive 192 Have you had skin problems on or in the area of your affected breast (e.g., itchy, dry, flaky)? 1 Not at all53breastskinproblems 2 A little29breastskinproblems 3 Quite a bit37breastskinproblems 4 Very much75breastskinproblems 194 Complete? 0 Incomplete92eortcqlqbr23_complete 1 Unverified21eortcqlqbr23_complete 2 Complete81eortcqlqbr23_complete 194 179 I have a lack of energy. 0 Not at all57energylack 1 A little bit24energylack 2 Somewhat59energylack 3 Quite a bit25energylack 4 Very much19energylack 184 I have nausea. 0 Not at all29nausea 1 A little bit54nausea 2 Somewhat36nausea 3 Quite a bit57nausea 4 Very much4nausea 180 Because of my physical condition, I have trouble meeting the needs of my family. 0 Not at all9familyneeds 1 A little bit51familyneeds 2 Somewhat39familyneeds 3 Quite a bit30familyneeds 4 Very much64familyneeds 193 I have pain. 0 Not at all19painfactb 1 A little bit54painfactb 2 Somewhat49painfactb 3 Quite a bit54painfactb 4 Very much7painfactb 183 I am bothered by side effects of treatment. 0 Not at all53treatmentsideeffects 1 A little bit33treatmentsideeffects 2 Somewhat43treatmentsideeffects 3 Quite a bit11treatmentsideeffects 4 Very much42treatmentsideeffects 182 I feel ill. 0 Not at all0illfactb 1 A little bit0illfactb 2 Somewhat0illfactb 3 Quite a bit0illfactb 4 Very much0illfactb 0 I am forced to spend time in bed. 0 Not at all44bedtime 1 A little bit12bedtime 2 Somewhat59bedtime 3 Quite a bit58bedtime 4 Very much9bedtime 182 I feel close to my friends. 0 Not at all39closefriends 1 A little bit93closefriends 2 Somewhat36closefriends 3 Quite a bit3closefriends 4 Very much19closefriends 190 I get emotional support from my family. 0 Not at all72supportivefamily 1 A little bit61supportivefamily 2 Somewhat43supportivefamily 3 Quite a bit1supportivefamily 4 Very much0supportivefamily 177 I get support from my friends. 0 Not at all60supportivefriends 1 A little bit30supportivefriends 2 Somewhat12supportivefriends 3 Quite a bit32supportivefriends 4 Very much50supportivefriends 184 My family has accepted my illness. 0 Not at all24familyacceptance 1 A little bit23familyacceptance 2 Somewhat58familyacceptance 3 Quite a bit47familyacceptance 4 Very much26familyacceptance 178 I am satisfied with family communication about my illness. 0 Not at all23familycommunication 1 A little bit60familycommunication 2 Somewhat24familycommunication 3 Quite a bit12familycommunication 4 Very much62familycommunication 181 I feel close to my partner (or the person who is my main support). 0 Not at all3closepartner 1 A little bit30closepartner 2 Somewhat127closepartner 3 Quite a bit27closepartner 4 Very much2closepartner 189 Regardless of your current level of sexual activity, please answer the following question. If you prefer not to answer it, please mark this box and go to the next section. 0 Prefer not to answer the next question180answeronsexlife 180 I am satisfied with my sex life. 0 Not at all49sexlifesatisfaction 1 A little bit24sexlifesatisfaction 2 Somewhat39sexlifesatisfaction 3 Quite a bit47sexlifesatisfaction 4 Very much38sexlifesatisfaction 197 I feel sad. 0 Not at all49sadfeeling 1 A little bit48sadfeeling 2 Somewhat1sadfeeling 3 Quite a bit50sadfeeling 4 Very much30sadfeeling 178 I am satisfied with how I am coping with my illness. 0 Not at all27illnesscopying 1 A little bit74illnesscopying 2 Somewhat22illnesscopying 3 Quite a bit71illnesscopying 4 Very much0illnesscopying 194 I am losing hope in the fight against my illness. 0 Not at all48losinghope 1 A little bit20losinghope 2 Somewhat44losinghope 3 Quite a bit9losinghope 4 Very much59losinghope 180 I feel nervous. 0 Not at all32nervousfactb 1 A little bit31nervousfactb 2 Somewhat28nervousfactb 3 Quite a bit52nervousfactb 4 Very much53nervousfactb 196 I worry about dying. 0 Not at all77worrydying 1 A little bit29worrydying 2 Somewhat32worrydying 3 Quite a bit12worrydying 4 Very much43worrydying 193 I worry that my condition will get worse. 0 Not at all24worrycondition 1 A little bit1worrycondition 2 Somewhat46worrycondition 3 Quite a bit63worrycondition 4 Very much58worrycondition 192 I am able to work (include work at home). 0 Not at all51workingability 1 A little bit42workingability 2 Somewhat3workingability 3 Quite a bit38workingability 4 Very much47workingability 181 My work (include work at home) is fulfilling. 0 Not at all94fulfillingwork 1 A little bit28fulfillingwork 2 Somewhat44fulfillingwork 3 Quite a bit9fulfillingwork 4 Very much16fulfillingwork 191 I am able to enjoy life. 0 Not at all0enjoylifeability 1 A little bit0enjoylifeability 2 Somewhat0enjoylifeability 3 Quite a bit0enjoylifeability 4 Very much0enjoylifeability 0 I have accepted my illness. 0 Not at all35illnessacceptance 1 A little bit10illnessacceptance 2 Somewhat70illnessacceptance 3 Quite a bit72illnessacceptance 4 Very much0illnessacceptance 187 I am sleeping well. 0 Not at all14sleepingwell 1 A little bit29sleepingwell 2 Somewhat35sleepingwell 3 Quite a bit49sleepingwell 4 Very much70sleepingwell 197 I am enjoying the things I usually do for fun. 0 Not at all16enjoyingfunthings 1 A little bit35enjoyingfunthings 2 Somewhat81enjoyingfunthings 3 Quite a bit23enjoyingfunthings 4 Very much32enjoyingfunthings 187 I am content with the quality of my life right now. 0 Not at all54contentlifequality 1 A little bit66contentlifequality 2 Somewhat9contentlifequality 3 Quite a bit57contentlifequality 4 Very much4contentlifequality 190 I have been short of breath. 0 Not at all8breathshortness 1 A little bit67breathshortness 2 Somewhat35breathshortness 3 Quite a bit41breathshortness 4 Very much31breathshortness 182 I am self-conscious about the way I dress. 0 Not at all29wayofdress 1 A little bit41wayofdress 2 Somewhat42wayofdress 3 Quite a bit34wayofdress 4 Very much42wayofdress 188 One or both of my arms are swollen or tender. 0 Not at all19swollenarms 1 A little bit69swollenarms 2 Somewhat8swollenarms 3 Quite a bit44swollenarms 4 Very much52swollenarms 192 I feel sexually attractive. 0 Not at all42sexuallyattractive 1 A little bit32sexuallyattractive 2 Somewhat30sexuallyattractive 3 Quite a bit53sexuallyattractive 4 Very much36sexuallyattractive 193 I am bothered by hair loss. 0 Not at all46hairlossfactb 1 A little bit41hairlossfactb 2 Somewhat28hairlossfactb 3 Quite a bit47hairlossfactb 4 Very much31hairlossfactb 193 I worry that other members of my family might someday get the same illness I have. 0 Not at all27worryaboutfamilyillness 1 A little bit59worryaboutfamilyillness 2 Somewhat39worryaboutfamilyillness 3 Quite a bit69worryaboutfamilyillness 4 Very much3worryaboutfamilyillness 197 I worry about the effect of stress on my illness. 0 Not at all39stressimpactillness 1 A little bit36stressimpactillness 2 Somewhat38stressimpactillness 3 Quite a bit12stressimpactillness 4 Very much57stressimpactillness 182 I am bothered by a change in weight. 0 Not at all80weightchange 1 A little bit5weightchange 2 Somewhat18weightchange 3 Quite a bit52weightchange 4 Very much32weightchange 187 I am able to feel like a woman. 0 Not at all45feelwoman 1 A little bit58feelwoman 2 Somewhat8feelwoman 3 Quite a bit49feelwoman 4 Very much31feelwoman 191 I have certain parts of my body where I experience pain. 0 Not at all2bodypain 1 A little bit44bodypain 2 Somewhat4bodypain 3 Quite a bit59bodypain 4 Very much88bodypain 197 Complete? 0 Incomplete76factb_complete 1 Unverified50factb_complete 2 Complete70factb_complete 196 197 About how often did you feel tired out for no good reason? 1 None of the time42tiredk10 2 A little of the time6tiredk10 3 Some of the time25tiredk10 4 Most of the time51tiredk10 5 All of the time63tiredk10 187 About how often did you feel nervous? 1 None of the time61nervouslastmonth 2 A little of the time31nervouslastmonth 3 Some of the time37nervouslastmonth 4 Most of the time8nervouslastmonth 5 All of the time55nervouslastmonth 192 About how often did you feel so nervous that nothing could calm you down? 1 None of the time0verynervous 2 A little of the time0verynervous 3 Some of the time0verynervous 4 Most of the time0verynervous 5 All of the time0verynervous 0 About how often did you feel hopeless? 1 None of the time76hopelesslastmonth 2 A little of the time23hopelesslastmonth 3 Some of the time41hopelesslastmonth 4 Most of the time54hopelesslastmonth 5 All of the time3hopelesslastmonth 197 About how often did you feel restless or fidgety? 1 None of the time62restlesslastmonth 2 A little of the time56restlesslastmonth 3 Some of the time31restlesslastmonth 4 Most of the time18restlesslastmonth 5 All of the time14restlesslastmonth 181 About how often did you feel so restless you could not sit still? 1 None of the time18veryrestless 2 A little of the time68veryrestless 3 Some of the time15veryrestless 4 Most of the time27veryrestless 5 All of the time61veryrestless 189 About how often did you feel depressed? 1 None of the time0depressed 2 A little of the time0depressed 3 Some of the time0depressed 4 Most of the time0depressed 5 All of the time0depressed 0 About how often did you feel that everything was an effort? 1 None of the time10effort 2 A little of the time68effort 3 Some of the time35effort 4 Most of the time44effort 5 All of the time38effort 195 About how often did you feel so sad that nothing could cheer you up? 1 None of the time34sad 2 A little of the time3sad 3 Some of the time58sad 4 Most of the time52sad 5 All of the time30sad 177 About how often did you feel worthless? 1 None of the time52worthless 2 A little of the time13worthless 3 Some of the time61worthless 4 Most of the time7worthless 5 All of the time49worthless 182 Complete? 0 Incomplete98k10_complete 1 Unverified56k10_complete 2 Complete42k10_complete 196 184 In general, would you say your health is: 1 Excellent68generalhealth_sf 2 Very Good32generalhealth_sf 3 Good10generalhealth_sf 4 Fair28generalhealth_sf 5 Poor49generalhealth_sf 187 Compared to one year ago, how would you rate your health in general now? 1 Much better now than one year ago,53generalyearcompared_sf 2 Somewhat better now than one year ago35generalyearcompared_sf 3 About the same19generalyearcompared_sf 4 Somewhat worse now than one year ago45generalyearcompared_sf 5 Much worse than one year ago34generalyearcompared_sf 186 Vigorous activities, such as running, lifting heavy objects, participating in strenuous sports. 1 Yes, Limited a lot91vigorousactivities_sf 2 Yes, Limited a Little42vigorousactivities_sf 3 No, Not Limited at all50vigorousactivities_sf 183 Moderate activities, such as moving a table, pushing a vacuum cleaner, bowling, or playing golf. 1 Yes, Limited a lot114moderateactivities_sf 2 Yes, Limited a Little20moderateactivities_sf 3 No, Not Limited at all63moderateactivities_sf 197 Lifting or carrying groceries. 1 Yes, Limited a lot72liftinggroceries_sf 2 Yes, Limited a Little53liftinggroceries_sf 3 No, Not Limited at all55liftinggroceries_sf 180 Climbing several flights of stairs. 1 Yes, Limited a lot61climbingstairs_sf 2 Yes, Limited a Little81climbingstairs_sf 3 No, Not Limited at all48climbingstairs_sf 190 Climbing one flight of stairs 1 Yes, Limited a lot114climbingstair_sf 2 Yes, Limited a Little73climbingstair_sf 3 No, Not Limited at all3climbingstair_sf 190 Bending, kneeling, or stooping. 1 Yes, Limited a lot33bending_sf 2 Yes, Limited a Little120bending_sf 3 No, Not Limited at all25bending_sf 178 Walking more than a mile. 1 Yes, Limited a lot28walkingmiles_sf 2 Yes, Limited a Little11walkingmiles_sf 3 No, Not Limited at all146walkingmiles_sf 185 Walking several blocks. 1 Yes, Limited a lot7walkingblocks_sf 2 Yes, Limited a Little167walkingblocks_sf 3 No, Not Limited at all20walkingblocks_sf 194 Walking one block. 1 Yes, Limited a lot78walkingoneblock_sf 2 Yes, Limited a Little66walkingoneblock_sf 3 No, Not Limited at all50walkingoneblock_sf 194 Bathing or dressing yourself. 1 Yes, Limited a lot115bathingordressing_sf 2 Yes, Limited a Little8bathingordressing_sf 3 No, Not Limited at all63bathingordressing_sf 186 Cut down the amount of time you spent on work or other activities. 1 Yes178lesstimework_sf 2 No9lesstimework_sf 187 Accomplished less than you would like. 1 Yes82accomplishless_sf 2 No101accomplishless_sf 183 Were limited in the kind of work or other activities. 1 Yes104limitedinwork_sf 2 No80limitedinwork_sf 184 Had difficulty performing the work or other activities (for example, it took extra effort). 1 Yes93difficultywork_sf 2 No102difficultywork_sf 195 Cut down the amount of time you spent on work or other activities. 1 Yes115lesstimeworkemotional_sf 2 No68lesstimeworkemotional_sf 183 Accomplished less than you would like. 1 Yes104accomplishlessemotional_sf 2 No78accomplishlessemotional_sf 182 Didn't do work or other activities as carefully as usual. 1 Yes78notcarefullwork_sf 2 No100notcarefullwork_sf 178 To what extend emotional problems interfered with your normal social activities with family, friends, neighbours, or groups? 1 Not at all72socialactivityimpact_sf 2 Slightly1socialactivityimpact_sf 3 Moderately40socialactivityimpact_sf 4 Severe79socialactivityimpact_sf 5 Very Severe3socialactivityimpact_sf 195 How much bodily pain have you had during this period? 1 None3bodypain_sf 2 Very Mild55bodypain_sf 3 Mild37bodypain_sf 4 Moderate40bodypain_sf 5 Severe28bodypain_sf 6 Very Severe33bodypain_sf 196 How much did pain interfere with your normal work (including both work outside the home and housework)? 1 Not at all34paininterferencework_sf 2 A little bit61paininterferencework_sf 3 Moderately33paininterferencework_sf 4 Quite a bit49paininterferencework_sf 5 Extremely10paininterferencework_sf 187 Did you feel full of pep? 1 All of the time13fullpep_sf 2 Most of the time30fullpep_sf 3 A good bit of the time28fullpep_sf 4 Some of the time43fullpep_sf 5 A little bit of the time47fullpep_sf 6 None of the time28fullpep_sf 189 Have you been a very nervous person? 1 All of the time32verynervousperson_sf 2 Most of the time38verynervousperson_sf 3 A good bit of the time50verynervousperson_sf 4 Some of the time43verynervousperson_sf 5 A little bit of the time7verynervousperson_sf 6 None of the time23verynervousperson_sf 193 Have you felt so down in the dumps that nothing could cheer you up? 1 All of the time30feelverydown_sf 2 Most of the time30feelverydown_sf 3 A good bit of the time46feelverydown_sf 4 Some of the time33feelverydown_sf 5 A little bit of the time15feelverydown_sf 6 None of the time43feelverydown_sf 197 Have you felt calm and peaceful? 1 All of the time18feelcalm_sf 2 Most of the time49feelcalm_sf 3 A good bit of the time2feelcalm_sf 4 Some of the time35feelcalm_sf 5 A little bit of the time51feelcalm_sf 6 None of the time34feelcalm_sf 189 Did you have a lot of energy? 1 All of the time4lotofenergy_sf 2 Most of the time63lotofenergy_sf 3 A good bit of the time14lotofenergy_sf 4 Some of the time35lotofenergy_sf 5 A little bit of the time65lotofenergy_sf 6 None of the time11lotofenergy_sf 192 Have you felt downhearted and blue? 1 All of the time36feeldownhearted_sf 2 Most of the time42feeldownhearted_sf 3 A good bit of the time15feeldownhearted_sf 4 Some of the time42feeldownhearted_sf 5 A little bit of the time14feeldownhearted_sf 6 None of the time45feeldownhearted_sf 194 Did you feel worn out? 1 All of the time22feelwornout_sf 2 Most of the time29feelwornout_sf 3 A good bit of the time40feelwornout_sf 4 Some of the time30feelwornout_sf 5 A little bit of the time25feelwornout_sf 6 None of the time37feelwornout_sf 183 Have you been a happy person? 1 All of the time4happyperson_sf 2 Most of the time102happyperson_sf 3 A good bit of the time5happyperson_sf 4 Some of the time10happyperson_sf 5 A little bit of the time25happyperson_sf 6 None of the time35happyperson_sf 181 Did you feel tired? 1 All of the time59feeltired_sf 2 Most of the time27feeltired_sf 3 A good bit of the time29feeltired_sf 4 Some of the time25feeltired_sf 5 A little bit of the time20feeltired_sf 6 None of the time24feeltired_sf 184 How much of the time has your physical health or emotional problems interfered with your social activities (like visiting with friends, relatives, etc.)? 1 All of the time34socialactivityinterference_sf 2 Most of the time33socialactivityinterference_sf 3 A good bit of the time40socialactivityinterference_sf 4 Some of the time31socialactivityinterference_sf 5 A little bit of the time36socialactivityinterference_sf 6 None of the time3socialactivityinterference_sf 177 I seem to get sick a little easier than other people. 1 Definitely true19getsickeasy_sf 2 Mostly true45getsickeasy_sf 3 Don't know39getsickeasy_sf 4 Mostly false18getsickeasy_sf 5 Definitely false59getsickeasy_sf 180 I am as healthy as anybody I know. 1 Definitely true36ashealthyasanybody_sf 2 Mostly true41ashealthyasanybody_sf 3 Don't know11ashealthyasanybody_sf 4 Mostly false29ashealthyasanybody_sf 5 Definitely false60ashealthyasanybody_sf 177 I expect my health to get worse. 1 Definitely true9getworseexpectation_sf 2 Mostly true41getworseexpectation_sf 3 Don't know55getworseexpectation_sf 4 Mostly false48getworseexpectation_sf 5 Definitely false44getworseexpectation_sf 197 My health is excellent. 1 Definitely true54excellenthealth_sf 2 Mostly true54excellenthealth_sf 3 Don't know12excellenthealth_sf 4 Mostly false0excellenthealth_sf 5 Definitely false57excellenthealth_sf 177 Complete? 0 Incomplete127sf36_complete 1 Unverified19sf36_complete 2 Complete48sf36_complete 194 188 I have a lack of energy. 0 Not at all82energylack_goc 1 A little bit14energylack_goc 2 Somewhat18energylack_goc 3 Quite a bit59energylack_goc 4 Very much24energylack_goc 197 I have nausea. 0 Not at all41nausea_goc 1 A little bit41nausea_goc 2 Somewhat45nausea_goc 3 Quite a bit47nausea_goc 4 Very much21nausea_goc 195 Because of my physical condition, I have trouble meeting the needs of my family. 0 Not at all48familyneeds_goc 1 A little bit18familyneeds_goc 2 Somewhat14familyneeds_goc 3 Quite a bit40familyneeds_goc 4 Very much66familyneeds_goc 186 I have pain. 0 Not at all37painfactb_goc 1 A little bit45painfactb_goc 2 Somewhat10painfactb_goc 3 Quite a bit30painfactb_goc 4 Very much75painfactb_goc 197 I am bothered by side effects of treatment. 0 Not at all41treatmentsideeffects_goc 1 A little bit9treatmentsideeffects_goc 2 Somewhat33treatmentsideeffects_goc 3 Quite a bit47treatmentsideeffects_goc 4 Very much56treatmentsideeffects_goc 186 I feel ill. 0 Not at all19illfactb_goc 1 A little bit17illfactb_goc 2 Somewhat56illfactb_goc 3 Quite a bit32illfactb_goc 4 Very much63illfactb_goc 187 I am forced to spend time in bed. 0 Not at all65bedtime_goc 1 A little bit34bedtime_goc 2 Somewhat26bedtime_goc 3 Quite a bit22bedtime_goc 4 Very much40bedtime_goc 187 I feel close to my friends. 0 Not at all8closefriends_goc 1 A little bit25closefriends_goc 2 Somewhat71closefriends_goc 3 Quite a bit76closefriends_goc 4 Very much16closefriends_goc 196 I get emotional support from my family. 0 Not at all22supportivefamily_goc 1 A little bit21supportivefamily_goc 2 Somewhat6supportivefamily_goc 3 Quite a bit140supportivefamily_goc 4 Very much8supportivefamily_goc 197 I get support from my friends. 0 Not at all67supportivefriends_goc 1 A little bit19supportivefriends_goc 2 Somewhat4supportivefriends_goc 3 Quite a bit22supportivefriends_goc 4 Very much77supportivefriends_goc 189 My family has accepted my illness. 0 Not at all54familyacceptance_goc 1 A little bit25familyacceptance_goc 2 Somewhat15familyacceptance_goc 3 Quite a bit53familyacceptance_goc 4 Very much50familyacceptance_goc 197 I am satisfied with family communication about my illness. 0 Not at all80familycommunication_goc 1 A little bit15familycommunication_goc 2 Somewhat58familycommunication_goc 3 Quite a bit1familycommunication_goc 4 Very much37familycommunication_goc 191 I feel close to my partner (or the person who is my main support). 0 Not at all59closepartner_goc 1 A little bit65closepartner_goc 2 Somewhat11closepartner_goc 3 Quite a bit13closepartner_goc 4 Very much48closepartner_goc 196 Regardless of your current level of sexual activity, please answer the following question. If you prefer not to answer it, please mark this box and go to the next section. 0 I prefer not to answer181 181 I am satisfied with my sex life. [answeronsexlife_goc]!=0 0 Not at all81sexsatisfaction_goc 1 A little bit4sexsatisfaction_goc 2 Somewhat66sexsatisfaction_goc 3 Quite a bit19sexsatisfaction_goc 4 Very much22sexsatisfaction_goc 192 I feel sad. 0 Not at all28sadfeeling_goc 1 A little bit41sadfeeling_goc 2 Somewhat20sadfeeling_goc 3 Quite a bit48sadfeeling_goc 4 Very much46sadfeeling_goc 183 I am satisfied with how I am coping with my illness. 0 Not at all0illnesscopying_goc 1 A little bit0illnesscopying_goc 2 Somewhat0illnesscopying_goc 3 Quite a bit0illnesscopying_goc 4 Very much0illnesscopying_goc 0 I am losing hope in the fight against my illness. 0 Not at all41losinghope_goc 1 A little bit30losinghope_goc 2 Somewhat47losinghope_goc 3 Quite a bit47losinghope_goc 4 Very much15losinghope_goc 180 I feel nervous. 0 Not at all30nervousfactb_goc 1 A little bit30nervousfactb_goc 2 Somewhat46nervousfactb_goc 3 Quite a bit70nervousfactb_goc 4 Very much6nervousfactb_goc 182 I worry about dying. 0 Not at all36worrydying_goc 1 A little bit24worrydying_goc 2 Somewhat59worrydying_goc 3 Quite a bit33worrydying_goc 4 Very much32worrydying_goc 184 I worry that my condition will get worse. 0 Not at all73worrycondition_goc 1 A little bit37worrycondition_goc 2 Somewhat18worrycondition_goc 3 Quite a bit42worrycondition_goc 4 Very much23worrycondition_goc 193 I am able to work (include work at home). 0 Not at all30workingability_goc 1 A little bit59workingability_goc 2 Somewhat10workingability_goc 3 Quite a bit18workingability_goc 4 Very much65workingability_goc 182 My work (include work at home) is fulfilling. 0 Not at all47fulfillingwork_goc 1 A little bit33fulfillingwork_goc 2 Somewhat40fulfillingwork_goc 3 Quite a bit44fulfillingwork_goc 4 Very much28fulfillingwork_goc 192 I am able to enjoy life. 0 Not at all53enjoylifeability_goc 1 A little bit15enjoylifeability_goc 2 Somewhat58enjoylifeability_goc 3 Quite a bit3enjoylifeability_goc 4 Very much52enjoylifeability_goc 181 I have accepted my illness. 0 Not at all50illnessacceptance_goc 1 A little bit28illnessacceptance_goc 2 Somewhat22illnessacceptance_goc 3 Quite a bit51illnessacceptance_goc 4 Very much34illnessacceptance_goc 185 I am sleeping well. 0 Not at all65sleepingwell_goc 1 A little bit15sleepingwell_goc 2 Somewhat42sleepingwell_goc 3 Quite a bit32sleepingwell_goc 4 Very much32sleepingwell_goc 186 I am enjoying the things I usually do for fun. 0 Not at all38enjoyingfunthings_goc 1 A little bit50enjoyingfunthings_goc 2 Somewhat51enjoyingfunthings_goc 3 Quite a bit11enjoyingfunthings_goc 4 Very much40enjoyingfunthings_goc 190 I am content with the quality of my life right now. 0 Not at all83contentlifequality_goc 1 A little bit54contentlifequality_goc 2 Somewhat6contentlifequality_goc 3 Quite a bit33contentlifequality_goc 4 Very much11contentlifequality_goc 187 I have numbness or tingling in my hands. 0 Not at all0handnumbness_goc 1 A little bit0handnumbness_goc 2 Somewhat0handnumbness_goc 3 Quite a bit0handnumbness_goc 4 Very much0handnumbness_goc 0 I have numbness or tingling in my feet. 0 Not at all42feetnumbness_goc 1 A little bit50feetnumbness_goc 2 Somewhat37feetnumbness_goc 3 Quite a bit10feetnumbness_goc 4 Very much54feetnumbness_goc 193 I feel discomfort in my hands. 0 Not at all54handsdiscomfort_goc 1 A little bit13handsdiscomfort_goc 2 Somewhat51handsdiscomfort_goc 3 Quite a bit13handsdiscomfort_goc 4 Very much63handsdiscomfort_goc 194 I feel discomfort in my feet. 0 Not at all30feetdiscomfort_goc 1 A little bit30feetdiscomfort_goc 2 Somewhat60feetdiscomfort_goc 3 Quite a bit48feetdiscomfort_goc 4 Very much29feetdiscomfort_goc 197 I have joint pain or muscle cramps. 0 Not at all47jointpain_goc 1 A little bit23jointpain_goc 2 Somewhat35jointpain_goc 3 Quite a bit43jointpain_goc 4 Very much44jointpain_goc 192 I feel weak all over. 0 Not at all32weakallover_goc 1 A little bit19weakallover_goc 2 Somewhat56weakallover_goc 3 Quite a bit67weakallover_goc 4 Very much6weakallover_goc 180 I have trouble hearing. 0 Not at all30troublehearing_goc 1 A little bit14troublehearing_goc 2 Somewhat52troublehearing_goc 3 Quite a bit57troublehearing_goc 4 Very much41troublehearing_goc 194 I get a ringing or buzzing in my ears. 0 Not at all35buzzinginears_goc 1 A little bit20buzzinginears_goc 2 Somewhat75buzzinginears_goc 3 Quite a bit38buzzinginears_goc 4 Very much9buzzinginears_goc 177 I have trouble buttoning buttons. 0 Not at all23troublebuttons_goc 1 A little bit77troublebuttons_goc 2 Somewhat39troublebuttons_goc 3 Quite a bit32troublebuttons_goc 4 Very much24troublebuttons_goc 195 I have trouble walking. 0 Not at all30troublewalking_goc 1 A little bit56troublewalking_goc 2 Somewhat33troublewalking_goc 3 Quite a bit26troublewalking_goc 4 Very much38troublewalking_goc 183 I have trouble feeling the shape of small objects when they are in my hand. 0 Not at all40troublefeelingshape_goc 1 A little bit53troublefeelingshape_goc 2 Somewhat26troublefeelingshape_goc 3 Quite a bit9troublefeelingshape_goc 4 Very much58troublefeelingshape_goc 186 Physical well-being sum Calculated : sum([energylack_goc], [nausea_goc], [familyneeds_goc], [painfactb_goc], [treatmentsideeffects_goc], [illfactb_goc], [bedtime_goc]) 18445.2116.51 Social/family well-being sum Calculated : sum([closefriends_goc], [supportivefamily_goc], [supportivefriends_goc], [familyacceptance_goc], [familycommunication_goc], [closepartner_goc], [sexsatisfaction_goc]) 18351.3319.65 Emotional well-being sum Calculated : sum([sadfeeling_goc], [illnesscopying_goc], [losinghope_goc], [nervousfactb_goc], [worrydying_goc], [worrycondition_goc]) 19670.0117.67 Functional well-being sum Calculated : sum([workingability_goc], [fulfillingwork_goc], [enjoylifeability_goc], [illnessacceptance_goc], [sleepingwell_goc], [enjoyingfunthings_goc], [contentlifequality_goc]) 1971.520.16 Additional concerns sum Calculated : sum([handnumbness_goc], [feetnumbness_goc], [handsdiscomfort_goc], [feetdiscomfort_goc], [jointpain_goc], [weakallover_goc], [troublehearing_goc], [buzzinginears_goc], [troublebuttons_goc], [troublewalking_goc], [troublefeelingshape_goc]) 19644.101.48 Total summary: 17961.2918.11 Complete? 0 Incomplete63fact_gog_ntx_complete 1 Unverified54fact_gog_ntx_complete 2 Complete72fact_gog_ntx_complete 189 182 Motor examination (left foot) 0 normal3motor_left 2 weak188motor_left 191 Motor examination (right foot) 0 normal173motor_right 2 weak20motor_right 193 Motor examination total both sides Calculated : sum([motor_left], [motor_right]) 19370.1515.38 Pin sensation (left foot) - Segment 1 0 normal114pin_left 1 for each segment with reduced sensation0pin_left 2 for each segment with absent sensation74pin_left 188 Pin sensation (left foot) - Segment 2 0 normal51pin_left_2 1 for each segment with reduced sensation55pin_left_2 2 for each segment with absent sensation83pin_left_2 189 Pin sensation (left foot) - Segment 3 0 normal75pin_left_3 1 for each segment with reduced sensation45pin_left_3 2 for each segment with absent sensation59pin_left_3 179 Pin sensation (left foot) - Segment 4 0 normal43pin_left_4 1 for each segment with reduced sensation119pin_left_4 2 for each segment with absent sensation33pin_left_4 195 Pin sensation (left foot) - Segment 5 0 normal97pin_left_5 1 for each segment with reduced sensation86pin_left_5 2 for each segment with absent sensation0pin_left_5 183 Pin sensation (left foot) - Segment 6 0 normal44pin_left_6 1 for each segment with reduced sensation29pin_left_6 2 for each segment with absent sensation120pin_left_6 193 Pin sensation (right foot) - Segment 1 0 normal70pin_right 1 for each segment with reduced sensation64pin_right 2 for each segment with absent sensation59pin_right 193 Pin sensation (right foot) - Segment 2 0 normal81pin_right_2 1 for each segment with reduced sensation47pin_right_2 2 for each segment with absent sensation63pin_right_2 191 Pin sensation (right foot) - Segment 3 0 normal54pin_right_3 1 for each segment with reduced sensation70pin_right_3 2 for each segment with absent sensation67pin_right_3 191 Pin sensation (right foot) - Segment 4 0 normal8pin_right_4 1 for each segment with reduced sensation69pin_right_4 2 for each segment with absent sensation108pin_right_4 185 Pin sensation (right foot) - Segment 5 0 normal95pin_right_5 1 for each segment with reduced sensation48pin_right_5 2 for each segment with absent sensation41pin_right_5 184 Pin sensation (right foot) - Segment 6 0 normal46pin_right_6 1 for each segment with reduced sensation17pin_right_6 2 for each segment with absent sensation122pin_right_6 185 Pin sensation total score both sides Calculated : sum([pin_left], [pin_left_2], [pin_left_3], [pin_left_4], [pin_left_5], [pin_left_6], [pin_right], [pin_right_2], [pin_right_3], [pin_right_4], [pin_right_5], [pin_right_6]) 17955.904.46 Allodynia/ Hyperesthesia (left foot) 0 normal141allodynia_left 1 if present in toes or foot42allodynia_left 183 Allodynia/ Hyperesthesia (right foot) 0 normal131allodynia_right 1 if present in toes or foot52allodynia_right 183 Allodynia/hyperesthesia total score Calculated : sum([allodynia_left], [allodynia_right]) 18521.472.38 Large Fiber Sensation: Great toe vibration (left foot) 0 normal56vibration_left 1 diminished122vibration_left 2 absent18vibration_left 196 Large Fiber Sensation: Great toe vibration (right foot) 0 normal62vibration_right 1 diminished76vibration_right 2 absent54vibration_right 192 Large Fiber Sensation: time (sec) (left foot) 0 Large Fiber Sensation: time (sec) (right foot) 19632.2315.37 Large Fiber Sensation: Great toe joint position (left foot) 0 normal73joint_left 1 diminished41joint_left 2 absent81joint_left 195 Large Fiber Sensation: Great toe joint position (right foot) 0 normal58joint_right 1 diminished109joint_right 2 absent18joint_right 185 Large fiber sensation total score Calculated : sum([vibration_left], [vibration_right], [joint_left], [joint_right]) 19048.3513.52 Deep Tendon Reflexes (left foot) 0 normal78reflexes_left 1 diminished70reflexes_left 2 absent41reflexes_left 189 Deep Tendon Reflexes (right foot) 0 normal77reflexes_right 1 diminished115reflexes_right 2 absent1reflexes_right 193 Deep tendon reflexes total score Calculated : sum([reflexes_left], [reflexes_right]) 19510.972.34 Total score Calculated : sum([total_motor], [total_pin_sensation], [total_allodynia], [total_fiber_sensation], [total_deep_tendon]) 18255.315.93 Complete? 0 Incomplete124utah_early_neuropathy_scale_complete 1 Unverified45utah_early_neuropathy_scale_complete 2 Complete23utah_early_neuropathy_scale_complete 192 Participant ID 190 Date of intervention 188 Diet guidelines for cancer survivors D1 [D1] Increased intake of wholegrains and legumes38 D2 [D2] Increased intake of vegetables and fruits25 D3 [D3] Limitation of consumption of "fast food" and other processed foods high in fat18 D4 [D4] Limitation of consumption of red meats (maximum 3 portions of 140g cooked red meat/week) and avoid processed meats78 D5 [D5] Avoidance of sugary drink consumption30 189 Limited evidence for breast cancer survivors D6 [D6] Consume foods that contain soy (2 mg/day of isoflavone)185 185 Physical Activity guidelines PA1 [PA1] 150 - 300 min of MIAPA (moderate-intensity aerobic physical activity) OR at least 75-150 min VIAPA (vigorous intensity aerobic physical activity) per week44 PA2 [PA2] 2 days per week muscle-strengthening39 PA3 [PA3] 3 days per week balance and strength training14 PA4 [PA4] Limit sedentary time and replace it with physical activity of any intensity (including light intensity)97 194 Sleep guidelines S1 [S1] General guideline: Sleeping Well13 S2 [S2] Sleep at least 7 hours a night36 S3 [S3] Quality of sleep is also important69 S4 [S4] A regular sleep pattern is crucial for achieving a restful and high-quality sleep59 177 Alcohol guidelines A1 [A1] Avoid or reduce alcohol intake (1 or less drinks per day)187 187 Tobacco guidelines T1 [T1] Avoid tobacco use186 186 Anxiety and Distress guidelines AD1 [AD1] Stress and anxiety can have a negative effect on breast cancer survivors' quality of life.31 AD2 [AD2] Anger can have a negative effect on breast cancer survivors' quality of life.62 AD3 [AD3] Loneliness can have a negative effect on breast cancer survivors' quality of life.102 195 Rebecca-specific indicators RSI1 [RSI1] Daily mobility47 RSI2 [RSI2] Working after treatment62 RSI3 [RSI3] Relationships and support systems44 RSI4 [RSI4] Eating behaviours (eating rate and portions)32 185 Referral for physiotherapy 1 Yes80physiotherapy 0 No114physiotherapy 194 Complete? 0 Incomplete4rebecca_intervention_form_complete 1 Unverified23rebecca_intervention_form_complete 2 Complete161rebecca_intervention_form_complete 188 Is the early warning system activated? 1 Yes87warning_activated 0 No96warning_activated 183 Date of the Intervention 186 Reason of the alarm 1 Decrease of steps26reason_of_alarm 2 Increase in pain levels39reason_of_alarm 3 Increase in anxiety47reason_of_alarm 4 Increase in tiredness20reason_of_alarm 5 Decrease in sleep14reason_of_alarm 6 Steps: normal fluctuations32reason_of_alarm 7 No data uploaded recently on Dashboard7reason_of_alarm 8 No alarm. Patient contacts healthcare professional8reason_of_alarm 193 Patient response 1 Decrease of steps due to technical problems (wearable unpaired, data upload, etc.)26patient_response 2 Decrease of steps due to weather conditions38patient_response 3 Decrease of steps due to pain25patient_response 4 Decrease of steps due to mental health55patient_response 5 Decrease of steps due to tiredness4patient_response 6 Patient stops using the smart-watch20patient_response 7 Unable to contact19patient_response 187 Alarm related to breast cancer diagnosis 1 Yes112alarm_related_to_cancer 0 No73alarm_related_to_cancer 185 Outcome 1 Positive intervention75warning_outcome 2 On contact with other healthcare professional or on treatment52warning_outcome 3 Unresolved45warning_outcome 4 Unable to solve technical problems16warning_outcome 188 Complete? 0 Incomplete37early_warning_system_complete 1 Unverified68early_warning_system_complete 2 Complete72early_warning_system_complete 177 Record ID 179 Participant_ID 189 The REBECCA app is: The REBECCA app is: : Obstructive | | Supportive 17993.7411.83 The REBECCA app is: The REBECCA app is: : Complicated | | Easy 18952.8724.90 The REBECCA app is: The REBECCA app is: : Inefficient | | Efficient 19616.376.01 The REBECCA app is: The REBECCA app is: : Confusing | | Clear 18623.719.48 The REBECCA app is: The REBECCA app is: : Boring | | Exciting 18114.006.71 The REBECCA app is: The REBECCA app is: : Not interesting | | Interesting 0 The REBECCA app is: The REBECCA app is: : Conventional | | Inventive 18786.5611.68 The REBECCA app is: The REBECCA app is: : Usual | | Leading edge 18555.313.38 I think that I would like to use this system frequently. I think that I would like to use this system frequently. : Strongly Agree | | Strongly disagree 19418.536.13 I found the system unnecessarily complex. I found the system unnecessarily complex. : Strongly Agree | | Strongly disagree 19787.8510.87 I thought the system was easy to use. I thought the system was easy to use. : Strongly Agree | | Strongly disagree 19431.665.84 I think that I would need the support of a technical person to be able to use this system. I think that I would need the support of a technical person to be able to use this system. : Strongly Agree | | Strongly disagree 17944.748.55 I found the various functions in this system were well integrated. I found the various functions in this system were well integrated. : Strongly Agree | | Strongly disagree 1862.051.06 I thought there was too much inconsistency in this system. I thought there was too much inconsistency in this system. : Strongly Agree | | Strongly disagree 18135.048.69 I would imagine that most people would learn to use this system very quickly. I would imagine that most people would learn to use this system very quickly. : Strongly Agree | | Strongly disagree 0 I found the system very cumbersome to use. I found the system very cumbersome to use. : Strongly Agree | | Strongly disagree 19230.6612.51 I felt very confident using the system. I felt very confident using the system. : Strongly Agree | | Strongly disagree 19623.890.09 I needed to learn a lot of things before I could get going with this system. I needed to learn a lot of things before I could get going with this system. : Strongly Agree | | Strongly disagree 19088.3310.93 The system was user-friendly and enjoyable to use The system was user-friendly and enjoyable to use : Strongly Agree | | Strongly disagree 19739.587.87 Were the instructions provided clear and easy to understand and follow? 1 Yes105q_2_en_wp6_p 0 No85q_2_en_wp6_p 190 Do you feel that the REBECCA app enhanced your quality of life after your primary treatment? 1 Yes107q_3_en_wp6_p 0 No89q_3_en_wp6_p 196 To what extent did it improve your quality of life? [q_3_en_wp6_p] = '1' 1 A little70q_3a_en_wp6_p 2 Moderately36q_3a_en_wp6_p 3 A lot73q_3a_en_wp6_p 4 Extremely15q_3a_en_wp6_p 194 Based on your experience as a participant in REBECCA, would you mind providing this type of data, in other contexts in the future? 1 Yes56q_4_en_wp6_p 2 No56q_4_en_wp6_p 3 Not sure85q_4_en_wp6_p 197 Do you think it would be good if all patients in the future could be followed up in this way? 1 Yes7q_5_en_wp6_p 2 No15q_5_en_wp6_p 3 Not sure165q_5_en_wp6_p 187 If no, what do you think should be changed/is missing? [f] = '2' 180 Has the use of the REBECCA system made you more worried or stressed about your health? 1 Yes78q_6_en_wp6_p 2 No78q_6_en_wp6_p 3 Not sure25q_6_en_wp6_p 181 How secure do you feel about the privacy and confidentiality of your data while using the REBECCA app? 1 Very Insecure19q_7_en_wp6_pk 2 Insecure36q_7_en_wp6_pk 3 I do not know65q_7_en_wp6_pk 4 Secure41q_7_en_wp6_pk 5 Very Secure31q_7_en_wp6_pk 192 The future is becoming more and more digital and the REBECCA project is future-oriented in this respect. We are therefore wondering what you think about sharing this type of data (smartwatch and GPS data)? 1 Okay28q_8_en_wp6_p 2 Not okay71q_8_en_wp6_p 3 Haven't thought about it79q_8_en_wp6_p 178 If not okay, what should be changed so that you think it is okay to share data? [a] = '2' 189 Have you felt monitored with regard to the data collection? 1 Yes27q_9_en_wp6_p 2 No129q_9_en_wp6_p 3 Haven't thought about it36q_9_en_wp6_p 192 If yes, is the collection of GPS contributing to your feeling of surveillance? [b] = '1' 1 Yes19q_9a_en_wp6_p 2 No120q_9a_en_wp6_p 3 Not sure38q_9a_en_wp6_p 177 Have you provided location (GPS) data to the project? [b] = '1' or [b] = '2' or [b] = '3' 1 Yes39q_9b_en_wp6_p 2 No152q_9b_en_wp6_p 191 If no, why not? [bbb] = '2' 1 I didn't want to63q_9c_en_wp6_p 2 The battery on the mobile got worse and I had to charge the phone more often117q_9c_en_wp6_p 180 Do you think it has taken a lot of time to be a participant in the REBECCA project? 1 Yes160q_10_en_wp6_p 2 No26q_10_en_wp6_p 186 What has taken a lot of time? [c] = '1' 194 If REBECCA's PC plug-in for collecting data related to your internet activity had been available for tablets and/or mobile phones, would you have wanted to use it? 1 Yes79q_11_en_wp6_p 2 No48q_11_en_wp6_p 3 Not sure58q_11_en_wp6_p 185 How would you rate your overall satisfaction with your experience using the REBECCA system? How would you rate your overall satisfaction with your experience using the REBECCA system? : Very saticfied | | Not saticfied at all 18397.355.90 Would you have used the REBECCA system longer if you had the opportunity? 1 Yes53q_13_en_wp6_p 2 No87q_13_en_wp6_p 3 Not sure37q_13_en_wp6_p 177 Please list three aspects of the system that you liked and three aspects that you believe need improvement or modification. 177 Do you have any additional comments or suggestions for enhancing the system further? 195 How much do you trust the guidance provided by the HCP based on the data collected in the REBECCA app? 1 Not at all56q_16_en_wp6_p 2 A little13q_16_en_wp6_p 3 Moderately63q_16_en_wp6_p 4 A lot20q_16_en_wp6_p 5 Extremely40q_16_en_wp6_p 192 Did the recommendations provided align with your needs? 1 Not at all54q_17_en_wp6_p 2 A little58q_17_en_wp6_p 3 Moderately35q_17_en_wp6_p 4 A lot3q_17_en_wp6_p 5 Extremely37q_17_en_wp6_p 187 Complete? 0 Incomplete134wp6p_evaluation_complete 1 Unverified21wp6p_evaluation_complete 2 Complete39wp6p_evaluation_complete 194