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REBECCA-2
REBECCA-2

Reference ID
Project.REBECCA2
Collections
Clinical Trial
Metadata
DDI/XML JSON
Created on
Jul 07, 2026
Last modified
Jul 07, 2026
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8508
Variable Groups

Data file: REBECCA2_2025-10-22_1440.REDCap.xml

Cases: 197
Variables: 978

Variables

invasivity
Invasivity
invasivecancertype
Type of invasive cancer
otherinvasivecancer
What other invasive cancer.
erstatus
ER status immunohistochemistry
erpercentage
ER_Percentage
ercomment
ER_Comment
prgstatus
PgR status immunohistochemistry
pgrpercentage
PgR_Percentage
her2invasive
HER2
pgrcomment
PgR_Comment
her2ishanalysisinv
HER2 ISH analysis
her2ihc
HER2_IHC
her2fish
HER2_FISH
mai
MAI
pph3
PPH3
ck56
CK5_6
surgerymetastasisreason
Reason for no surgery or remote metastasis at diagnosis.
chestlesions
Number of lesions in the chest
largestlesionsize
Size for largest lesion (mm).
cistype
Type of CIS
othercistype
Other type of CIS
cisextent
Extent of cancer in situ
situcancerdegree
Histological degree (invasive) or nuclear type (cancer in situ)
erstatus_2
ER status immunohistochemistry
prgstatus_2
PgR status immunohistochemistry
her2cis
HER2 immunohistochemistry.
her2ishanalysiscis
HER2 ISH analysis.
ki67status
Ki67 status
removedsnls
Number of SLNs removed
slnmetastasis
Metastasis in SLN
slnmacrometastases
Number of SLNs with macrometastases (> 2mm)
slnmicrometastases
Number of SLNs with micrometastases
lymphnodes
Total number examined lymph nodes from all axillary engagement
lymphnodesnumber
Total number of lymph nodes with metastasis (> 0.2 mm) from all axillary procedures
remotemetastasisdetection
Remote metastasis detection within three months from sampling date (diagnosis date).
side
Side
distantmetastases
Is there postoperative loco-regional recurrence / distant metastases
locoregionalrecurrence
Loco-regional recurrence
recurrentside
Side for which recurrence was detected
firstdiscoverydate
Date of 1st discovery (Chest / chest wall)
lympnodesoperated
Recurrence on axillary lymph nodes on the operated side
firstdiscoverylymphnodes
Date of 1st discovery (for axillary lymph nodes)
lympnodesoperatedparasterna
l
Recurrence in lymph nodes in parasternal / supraclavicular / infraclavicular region on the operated side.
remotemetastasis
Discovery of remote metastasis?
firstmetastasisdate
Date of discovery of the 1st remote metastasis
firstmetastasislocation
Localization of the 1st remote metastasis.
metastasisdiagnosis
Diagnosis for metastasis
diagnosiscomment
Diagnosis_comment
patientcomment
Comment_patient
pt
pT
tumorinformation_complete
Complete?
lastmodified_treat
firsttreatmentdate
Date of first treatment
clinicalstudiespart
Participation in clinical studies
clinicalstudydetails
Details about clinical study
plannedaction
Planned action.
oncotreatment
Investigation of oncological treatment
whynooncotreatment
Reason for no oncological treatment
nosurgicaltreatment
No investigation of surgical treatment
nofollowup
No further follow-up
whynofollowup
Reasons for no further follow-up
oncotreatmenttype
Specify oncological treatment
operationtype
Type of operation (if any).
operatedate
Operating date 1st: the procedure
breastconcervation
Breast_concervation_1
mastectomy1
Mastectomy_1
dissection1
Axille_Dissection_1
reresection1
Reresection_1
breastconcervation2
Breast_concervation_2
masectomy2
Mastectomy_2
dissection2
Axille_Dissection_2
reresection2
Reresection_2
breastsurgeryresult
End result of breast surgery.
oncoplasticsurgery
Oncoplastic surgery
axillaryengagement
Axillary engagement (SN and / or evacuation)
axillaryinterventionresult
End result axillary intervention
surgerysecondsession
Complementary breast surgery performed in a second session
axillarysurgsecondsessiom
Complementary axillary procedure performed in a second session
complsurgery
Number of complementary breast surgery and / or axill which are made due to tumor data.
oncologydate
Date of oncology therapeutic recommendation.
paddate
Date of 1st postoperative PAD information to patient.
postoncoplanned
Planned postoperative oncological treatment.
nopostonco
No postoperative oncological treatment.
curestart
Start date first cure
fec
FEC
ec
EC
fececstart
When did the FEC or EC treatment Start?
fececend
When did the FEC or EC treatment End?
ecthreatmenttype
Treatment
taxotere
Did the patient receive Taxotere treatment?
herceptin
Did the patient receive Herceptin treatment?
herceptinstart
When did the Herceptin treatment Start?
herceptinend
When did the Herceptin treatment End?
completedtreatment
Treatment completed according to plan
changereason
Reason for interruption / change
inpatientcare
Inpatient care due to treatment complications
radiation
Radiation therapy
firstdosedate
Start date, first dose
dosetarget
Target
boost
Total excl. Boost
boostdoses
Boost doses
endocrine
Endocrine treatment
curedate
Start date first cure
endocrinetreatmenttype
Treatment
changedtreatmenttype
What type of hormonal treatment did the patient receive after change?
changedtreatmentperiod
Specify the period the treament was received (in months).
antibody
Antibody treatment
antibodystartdate
Start date of antibody treatment
antibodytreattype
Treatment
bisph
Bisphosphonates
zometa
Did the patient receive bisphosphate/zoledronic acid?
relapsestatus
Relapse status.
deathdate
Date_death_or_last_FU
othermeds
What other medicine does the patient take?
comalignancy
What co malignancy does the patient have
treatment_complete
Complete?
lastmodified_compliance
forgetmed
Do you sometimes forget to take your breast cancer medication?
troubleremtakemed
How often do you have trouble remembering to take all your medicines?
compliance_complete
Complete?
lastmodified_eort23
drymouth
Did you have a dry mouth?
taste
Did food and drink taste different than usual?
eyes
Were your eyes painful, irritated or watery?
hairloss
Have you lost any hair?
upsethairloss
[Answer this question only if you had any hair loss:] During the past week, were you upset by the loss of your hair?
ill
Did you feel ill or unwell?
hotflushes
Did you have hot flushes?
headaches_927277
Did you have headaches?
feellessattractive
Have you felt physically less attractive as a result of your disease or treatment?
feellessfeminine
Have you been feeling less feminine as a result of your disease or treatment?
seenakedself
Did you find it difficult to look at yourself naked?
bodydissatisfaction
Have you been dissatisfied with your body?
futurehealthworry
Were you worried about your health in the future?
sexinterest
To what extent were you interested in sex?
sexuallyactive
To what extent were you sexually active? (with or without intercourse)
enjoysex
[Answer this question only if you have been sexually active:] To what extent was sex enjoyable for you?
armpain
Did you have any pain in your arm or shoulder?
swollenarm
Did you have a swollen arm or hand?
raisearm
Was it difficult to raise your arm or to move it sideways?
breastpain
Have you had any pain in the area of your affected breast?
breastswollen
Was the area of your affected breast swollen?
breastoversensitive
Was the area of your affected breast oversensitive?
breastskinproblems
Have you had skin problems on or in the area of your affected breast (e.g., itchy, dry, flaky)?
eortcqlqbr23_complete
Complete?
lastmodified_factb
energylack
I have a lack of energy.
nausea
I have nausea.
familyneeds
Because of my physical condition, I have trouble meeting the needs of my family.
painfactb
I have pain.
treatmentsideeffects
I am bothered by side effects of treatment.
illfactb
I feel ill.
bedtime
I am forced to spend time in bed.
closefriends
I feel close to my friends.
supportivefamily
I get emotional support from my family.
supportivefriends
I get support from my friends.
familyacceptance
My family has accepted my illness.
familycommunication
I am satisfied with family communication about my illness.
closepartner
I feel close to my partner (or the person who is my main support).
answeronsexlife
Regardless of your current level of sexual activity, please answer the following question. If you prefer not to answer it, please mark this box and go to the next section.
sexlifesatisfaction
I am satisfied with my sex life.
sadfeeling
I feel sad.
illnesscopying
I am satisfied with how I am coping with my illness.
losinghope
I am losing hope in the fight against my illness.
nervousfactb
I feel nervous.
worrydying
I worry about dying.
worrycondition
I worry that my condition will get worse.
workingability
I am able to work (include work at home).
fulfillingwork
My work (include work at home) is fulfilling.
enjoylifeability
I am able to enjoy life.
illnessacceptance
I have accepted my illness.
sleepingwell
I am sleeping well.
enjoyingfunthings
I am enjoying the things I usually do for fun.
contentlifequality
I am content with the quality of my life right now.
breathshortness
I have been short of breath.
wayofdress
I am self-conscious about the way I dress.
swollenarms
One or both of my arms are swollen or tender.
sexuallyattractive
I feel sexually attractive.
hairlossfactb
I am bothered by hair loss.
worryaboutfamilyillness
I worry that other members of my family might someday get the same illness I have.
stressimpactillness
I worry about the effect of stress on my illness.
weightchange
I am bothered by a change in weight.
feelwoman
I am able to feel like a woman.
bodypain
I have certain parts of my body where I experience pain.
factb_complete
Complete?
lastmodified_k10
tiredk10
About how often did you feel tired out for no good reason?
nervouslastmonth
About how often did you feel nervous?
verynervous
About how often did you feel so nervous that nothing could calm you down?
hopelesslastmonth
About how often did you feel hopeless?
restlesslastmonth
About how often did you feel restless or fidgety?
veryrestless
About how often did you feel so restless you could not sit still?
depressed
About how often did you feel depressed?
effort
About how often did you feel that everything was an effort?
sad
About how often did you feel so sad that nothing could cheer you up?
worthless
About how often did you feel worthless?
k10_complete
Complete?
lastmodified_sf36
generalhealth_sf
In general, would you say your health is:
generalyearcompared_sf
Compared to one year ago, how would you rate your health in general now?
vigorousactivities_sf
Vigorous activities, such as running, lifting heavy objects, participating in strenuous sports.
moderateactivities_sf
Moderate activities, such as moving a table, pushing a vacuum cleaner, bowling, or playing golf.
liftinggroceries_sf
Lifting or carrying groceries.
climbingstairs_sf
Climbing several flights of stairs.
climbingstair_sf
Climbing one flight of stairs
bending_sf
Bending, kneeling, or stooping.
walkingmiles_sf
Walking more than a mile.
walkingblocks_sf
Walking several blocks.
walkingoneblock_sf
Walking one block.
bathingordressing_sf
Bathing or dressing yourself.
lesstimework_sf
Cut down the amount of time you spent on work or other activities.
accomplishless_sf
Accomplished less than you would like.
limitedinwork_sf
Were limited in the kind of work or other activities.
difficultywork_sf
Had difficulty performing the work or other activities (for example, it took extra effort).
lesstimeworkemotional_sf
Cut down the amount of time you spent on work or other activities.
accomplishlessemotional_sf
Accomplished less than you would like.
notcarefullwork_sf
Didn't do work or other activities as carefully as usual.
socialactivityimpact_sf
To what extend emotional problems interfered with your normal social activities with family, friends, neighbours, or groups?
bodypain_sf
How much bodily pain have you had during this period?
paininterferencework_sf
How much did pain interfere with your normal work (including both work outside the home and housework)?
fullpep_sf
Did you feel full of pep?
verynervousperson_sf
Have you been a very nervous person?
feelverydown_sf
Have you felt so down in the dumps that nothing could cheer you up?
feelcalm_sf
Have you felt calm and peaceful?
lotofenergy_sf
Did you have a lot of energy?
feeldownhearted_sf
Have you felt downhearted and blue?
feelwornout_sf
Did you feel worn out?
happyperson_sf
Have you been a happy person?
feeltired_sf
Did you feel tired?
socialactivityinterference_
sf
How much of the time has your physical health or emotional problems interfered with your social activities (like visiting with friends, relatives, etc.)?
getsickeasy_sf
I seem to get sick a little easier than other people.
ashealthyasanybody_sf
I am as healthy as anybody I know.
getworseexpectation_sf
I expect my health to get worse.
excellenthealth_sf
My health is excellent.
sf36_complete
Complete?
lastmodified_goc
energylack_goc
I have a lack of energy.
nausea_goc
I have nausea.
familyneeds_goc
Because of my physical condition, I have trouble meeting the needs of my family.
painfactb_goc
I have pain.
treatmentsideeffects_goc
I am bothered by side effects of treatment.
illfactb_goc
I feel ill.
bedtime_goc
I am forced to spend time in bed.
closefriends_goc
I feel close to my friends.
supportivefamily_goc
I get emotional support from my family.
supportivefriends_goc
I get support from my friends.
familyacceptance_goc
My family has accepted my illness.
familycommunication_goc
I am satisfied with family communication about my illness.
closepartner_goc
I feel close to my partner (or the person who is my main support).
answeronsexlife_goc
Regardless of your current level of sexual activity, please answer the following question. If you prefer not to answer it, please mark this box and go to the next section.
sexsatisfaction_goc
I am satisfied with my sex life.
sadfeeling_goc
I feel sad.
illnesscopying_goc
I am satisfied with how I am coping with my illness.
losinghope_goc
I am losing hope in the fight against my illness.
nervousfactb_goc
I feel nervous.
worrydying_goc
I worry about dying.
worrycondition_goc
I worry that my condition will get worse.
workingability_goc
I am able to work (include work at home).
fulfillingwork_goc
My work (include work at home) is fulfilling.
enjoylifeability_goc
I am able to enjoy life.
illnessacceptance_goc
I have accepted my illness.
sleepingwell_goc
I am sleeping well.
enjoyingfunthings_goc
I am enjoying the things I usually do for fun.
contentlifequality_goc
I am content with the quality of my life right now.
handnumbness_goc
I have numbness or tingling in my hands.
feetnumbness_goc
I have numbness or tingling in my feet.
handsdiscomfort_goc
I feel discomfort in my hands.
feetdiscomfort_goc
I feel discomfort in my feet.
jointpain_goc
I have joint pain or muscle cramps.
weakallover_goc
I feel weak all over.
troublehearing_goc
I have trouble hearing.
buzzinginears_goc
I get a ringing or buzzing in my ears.
troublebuttons_goc
I have trouble buttoning buttons.
troublewalking_goc
I have trouble walking.
troublefeelingshape_goc
I have trouble feeling the shape of small objects when they are in my hand.
physical_sum
Physical well-being sum
social_sum
Social/family well-being sum
emotional_sum
Emotional well-being sum
functional_sum
Functional well-being sum
concerns_sum
Additional concerns sum
total_sum
Total summary:
fact_gog_ntx_complete
Complete?
lastmodified_utah
motor_left
Motor examination (left foot)
motor_right
Motor examination (right foot)
total_motor
Motor examination total both sides
pin_left
Pin sensation (left foot) - Segment 1
pin_left_2
Pin sensation (left foot) - Segment 2
pin_left_3
Pin sensation (left foot) - Segment 3
pin_left_4
Pin sensation (left foot) - Segment 4
pin_left_5
Pin sensation (left foot) - Segment 5
pin_left_6
Pin sensation (left foot) - Segment 6
pin_right
Pin sensation (right foot) - Segment 1
pin_right_2
Pin sensation (right foot) - Segment 2
pin_right_3
Pin sensation (right foot) - Segment 3
pin_right_4
Pin sensation (right foot) - Segment 4
pin_right_5
Pin sensation (right foot) - Segment 5
pin_right_6
Pin sensation (right foot) - Segment 6
total_pin_sensation
Pin sensation total score both sides
allodynia_left
Allodynia/ Hyperesthesia (left foot)
Total: 978
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