Uniform Data Set version 4
UDSv4 - Template

United States

Reference ID

USDv4

Producer(s)

National Alzheimer’s Coordinating Center (NACC) and the NIA-funded ADRC network

Collections

Clinical Trial

Metadata

DDI/XML JSON

Created on

Jul 02, 2026

Last modified

Jul 07, 2026

Page views

15759

Study Description
Data Dictionary

2a5. Sibling 1 -- Method of evaluation (sib1meval)

Data file: UDSv4TemplateForXMLD_2026-04-14_0731.REDCap.xml

Overview

Valid: 57

Range: -

Format:

Questions and instructions

Question pretext

([sibs]>0 and [sibs]<77) and [sibs]<>""

Categories

Value	Category	Cases
1	Participant /family report	12	21.1%
2	Medical records	5	8.8%
3	Exam (co-enrolled family members)	8	14%
4	Autopsy (if autopsy report available)	8	14%
6	Provided at previous visit	24	42.1%

Warning: these figures indicate the number of cases found in the data file. They cannot be interpreted as summary statistics of the population of interest.

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