Uniform Data Set version 4
UDSv4 - Template
United States
Reference ID
USDv4
Producer(s)
National Alzheimer’s Coordinating Center (NACC) and the NIA-funded ADRC network
Collections
Created on
Jul 02, 2026
Last modified
Jul 07, 2026
Page views
11476
26. If the referral source was a self-referral or a nonprofessional contact, how did the referral source learn of the ADRC? (reflearned)
Data file: UDSv4TemplateForXMLD_2026-04-14_0731.REDCap.xml
Overview
Valid:
56
Range:
-
Format:
Questions and instructions
Question pretext
[refersc] = '1' or [refersc] = '2'
Categories
| Value | Category | Cases | |
|---|---|---|---|
| 1 | ADRC sponsored event | 7 |
12.5%
|
| 2 | Event sponsored by an external organization (e.g., Alzheimer's Association event, institution sponsored venue, community health fair, professional conference)Event sponsored by an external organization (e.g., Alzheimer's Association event, institution sponsored venue, community health fair, professional conference) | 8 |
14.3%
|
| 3 | Newsletter (mailed or digital)Newsletter (mailed or digital) | 3 |
5.4%
|
| 4 | Study flyer/brochure (mailed or digital)Study flyer/brochure (mailed or digital) | 8 |
14.3%
|
| 5 | Center website | 5 |
8.9%
|
| 6 | Center social media | 2 |
3.6%
|
| 7 | Center registry | 4 |
7.1%
|
| 8 | Website | 6 |
10.7%
|
| 9 | Media | 2 |
3.6%
|
| 10 | Registry | 3 |
5.4%
|
| 88 | Other | 8 |
14.3%
|
| 99 | Unknown | 0 |
0%
|
Warning: these figures indicate the number of cases found in the data file. They cannot be interpreted as summary statistics of the population of interest.